get

A good article on Your Care Everywhere website. https://www.yourcareeverywhere.com/health-research/health-insights/pain-care-insights/stop-exercising-for-chronic-fatigue-syndrome-symptoms.html

hi all on the thread about GET being camouflaged as pacing we were looking at the actual patient handbook that the NHS CFS/ME clinics use nowadays At post #52 on the thread on this page https://www.s4me.info/threads/re-framing-get-as-pacing-or-vice-versa.4030/page-3 (sorry couldnt work out how...

So, I encountered something unusual and was wondering if anyone else had as well. I was talking to someone from Australia who has a sleep disorder, and she was talking about graded exercise therapy that she'd been given for her issue. I started to protest that GET doesn't work in all...

A new blog post by @Lucibee, https://lucibee.wordpress.com/2018/05/09/pace-trial-whatever-happened-to-actigraphy/

Australians with ME/CFS continue to be harmed by GET. If you’ve been harmed by GET, write a letter to one of our campaign targets (RACGP President, Dr Bastian Seidel, or Chief Medical Officer, Dr Brendan Murphy) or your local MP, to explain the impact of this treatment on you, and ask for...

Chronic fatigue syndrome treatment 'should be withdrawn' http://www.bbc.co.uk/news/newsbeat-44004882# A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK's leading experts in the illness. Dr Charles Shepherd says graded exercise therapy...

Something to send your healthcare provider the next time they recommend graded exercise. http://www.workwellfoundation.org/wp-content/uploads/2018/05/MECFS-GET-Letter-to-Health-Care-Providers-v4-30-2.pdf Excerpt follows: Previously, this was a letter to the British Journal of Sports...

Source: Rheumatology Vol 57, Suppl 3 Date: April 25, 2018 URL: https://academic.oup.com/rheumatology/article/57/suppl_3/key075.505/4971407 The G.E.T. Going Group: A graded exercise therapy circuit class for rheumatology pain patients: outcomes of those completing the group, and survey of...

23-second clip of a segment of Michael Sharpe's appearance on Victoria Derbyshire Talking therapies and exercise for #ME are "not magic cures but useful treatments": Professor Sharpe on his report Does anyone have the full broadcast?

One person's account of his experiences and consequences of forced GET. https://spiritofbelerion.wordpress.com/2018/04/03/the-struggle-continues/amp

$75,436 and even higher since this Tweet. I had a feeling someone was going to come in towards the end and take care of this. :thumbsup:

Scientists and Dr Tuller brief Australia’s Chief Medical Officer

Social Justice interview with David Tuller on his ongoing Trial by Error series. Hour long. 2pm Sun 15 Apr 2018 http://radioadelaide.org.au/program/a-peace-of-the-action/

I thought I might have seen this posted somewhere but can't find it. It says 2018 but from the link it might be from 2016.: " Alison Millington Mar. 22, 2018 " Living with CFS feels like being tired all the time — but it's so much more than being tired. The illness is thought to affect at...

One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS content. Healthwise provides medical content for many major healthcare corporations in the United States, including Kaiser Permanente with its 13...

I don't think this has been posted yet - by @FrankTwisk, http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(18)30673-1/abstract

A short article in Psychology Magazine, the Journal of the Norwegian Psychology Association, on the 'psychology of PEM'. It's the argument that psychosocial factors are the reason patients remain sick. Via google translate, Norwegian site here, English translation here.

Free full text: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3

The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always interesting to look at how they present themselves. Someone sent me this old report recently, and while it's not that interesting or relevant to us, I...

From twitter Hit link.to see thread