hi all on the thread about GET being camouflaged as pacing we were looking at the actual patient handbook that the NHS CFS/ME clinics use nowadays...
So, I encountered something unusual and was wondering if anyone else had as well. I was talking to someone from Australia who has a sleep...
A new blog post by @Lucibee, In my first blog about the PACE trial, I discussed the lack of objective measures, and the bothersome issue of not...
Australians with ME/CFS continue to be harmed by GET. If you’ve been harmed by GET, write a letter to one of our campaign targets (RACGP...
Chronic fatigue syndrome treatment 'should be withdrawn' http://www.bbc.co.uk/news/newsbeat-44004882# A common treatment for chronic fatigue...
Something to send your healthcare provider the next time they recommend graded exercise....
Source: Rheumatology Vol 57, Suppl 3 Date: April 25, 2018 URL: https://academic.oup.com/rheumatology/article/57/suppl_3/key075.505/4971407 The...
23-second clip of a segment of Michael Sharpe's appearance on Victoria Derbyshire Talking therapies and exercise for #ME are "not magic cures but...
One person's account of his experiences and consequences of forced GET. After the failure of my ill health retirement application in August i set...
[MEDIA] $75,436 and even higher since this Tweet. I had a feeling someone was going to come in towards the end and take care of this. :thumbsup:
Scientists and Dr Tuller brief Australia’s Chief Medical Officer
Social Justice interview with David Tuller on his ongoing Trial by Error series. Hour long. 2pm Sun 15 Apr 2018...
I thought I might have seen this posted somewhere but can't find it. It says 2018 but from the link it might be from 2016.: " Alison Millington...
One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS...
I don't think this has been posted yet - by @FrankTwisk, The results of the guided graded exercise self-help trial (GETSET) by Lucy Clark and...
A short article in Psychology Magazine, the Journal of the Norwegian Psychology Association, on the 'psychology of PEM'. It's the argument that...
Free full text: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3 [ATTACH] [ATTACH]
The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always...
From twitter [MEDIA] Hit link.to see thread
Exerpt: ME is not a specific disease or condition and is generally a ‘diagnosis of exclusion’ – one given when no definitive disease can be...
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