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  1. Melanie
    Thread

    David Tuller Crowdfunding over $75k

    [MEDIA] $75,436 and even higher since this Tweet. I had a feeling someone was going to come in towards the end and take care of this. :thumbsup:
    Thread by: Melanie, Apr 24, 2018, 3 replies, in forum: Advocacy Projects and Campaigns
  2. Melanie
    Thread

    Scientists and Dr Tuller brief Australia’s Chief Medical Officer - by Sasha Nimo ME Australia

    Scientists and Dr Tuller brief Australia’s Chief Medical Officer
    Thread by: Melanie, Apr 23, 2018, 4 replies, in forum: General ME/CFS news
  3. Melanie
    Thread

    David Tuller Interview - A Peace of the Action Program - Radio Adelaide (Apr 15, 2018)

    Social Justice interview with David Tuller on his ongoing Trial by Error series. Hour long. 2pm Sun 15 Apr 2018...
    Thread by: Melanie, Apr 16, 2018, 11 replies, in forum: General ME/CFS news
  4. Sly Saint
    Thread

    What it's like to have Chronic Fatigue Syndrome, an illness that makes you feel exhausted all the time

    I thought I might have seen this posted somewhere but can't find it. It says 2018 but from the link it might be from 2016.: " Alison Millington...
    Thread by: Sly Saint, Apr 15, 2018, 5 replies, in forum: General ME/CFS news
  5. Webdog
    Thread

    Healthwise to "retire the GET/CBT topics" from medical content

    One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS...
    Thread by: Webdog, Apr 11, 2018, 110 replies, in forum: Advocacy Projects and Campaigns
  6. Indigophoton
    Thread

    Graded exercise self-help for chronic fatigue syndrome in GETSET, Twisk, 2018

    I don't think this has been posted yet - by @FrankTwisk, The results of the guided graded exercise self-help trial (GETSET) by Lucy Clark and...
    Thread by: Indigophoton, Apr 9, 2018, 12 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Indigophoton
    Thread

    Article: ME patients misunderstand, Andresen, 2018

    A short article in Psychology Magazine, the Journal of the Norwegian Psychology Association, on the 'psychology of PEM'. It's the argument that...
    Thread by: Indigophoton, Apr 9, 2018, 11 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Tom Kindlon
    Thread

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Free full text: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3 [ATTACH] [ATTACH]
    Thread by: Tom Kindlon, Mar 22, 2018, 273 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  9. Esther12
    Thread

    United Kingdom: Science Media Centre (including Fiona Fox)

    The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always...
    Thread by: Esther12, Dec 10, 2017, 727 replies, in forum: News from organisations
  10. Amw66
    Thread

    CBT- Jen Brea Twitter

    From twitter [MEDIA] Hit link.to see thread
    Thread by: Amw66, Mar 16, 2018, 121 replies, in forum: General ME/CFS news
  11. Milo
    Thread

    An integrative approach to ME, Hippocratic Post, Not a recommendation

    Exerpt: ME is not a specific disease or condition and is generally a ‘diagnosis of exclusion’ – one given when no definitive disease can be...
    Thread by: Milo, Mar 13, 2018, 6 replies, in forum: General ME/CFS news
  12. Sly Saint
    Thread

    2018 STOP Graded Exercise Trials - Global petition still 'running'

    The UK only petition has closed but the Global one is still ongoing. Currently at 4765. In addition to MAGENTA (Esther Crawleys PACE for...
    Thread by: Sly Saint, Mar 12, 2018, 1 replies, in forum: Petitions
  13. Sly Saint
    Thread

    Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

    raised on another thread by @MEMarge. The CQC only deals with services in England but from briefly looking at their website the only ME/CFS...
    Thread by: Sly Saint, Mar 2, 2018, 11 replies, in forum: Advocacy Projects and Campaigns
  14. Sly Saint
    Thread

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the...
    Thread by: Sly Saint, Feb 23, 2018, 141 replies, in forum: Petitions
  15. Simone
    Thread

    Post-Exertional Malaise & Graded Exercise Therapy in ME/CFS - a Primer

    I wrote this primer last year, outlining the flaws in the GET research and explaining why GET is likely to be harmful for people with ME/CFS. It...
    Thread by: Simone, Feb 13, 2018, 6 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Esther12
    Thread

    RCT of online continuing education for health professionals to improve the management of chronic fatigue syndrome: protocol (2017) Lloyd, Barry

    This looks annoying and worthless: http://bmjopen.bmj.com/content/7/5/e014133 There is also recent evidence that combining CBT and GET may be...
    Thread by: Esther12, Feb 10, 2018, 3 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Sly Saint
    Thread

    Clinical Guidance for ME: “Evidence-Based” Guidance Gone Awry - Mary Dimmock

    Not sure if this has been posted. (MD is a member of S4ME) Clinical Guidance for ME: “Evidence-Based” Guidance Gone Awry Mary Dimmock January...
    Thread by: Sly Saint, Feb 6, 2018, 0 replies, in forum: General ME/CFS news
  18. Carolyn Wilshire
    Thread

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Hello all, I'm pleased to report that our major critique and reanalysis of the PACE trial has been accepted for publication in BMC Psychology....
    Thread by: Carolyn Wilshire, Feb 6, 2018, 137 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Kalliope
    Thread

    Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts

    Letter to British Journal of Sports Medicine from CPET Experts Last October, the British Journal of Sports Medicine published a short paper that...
    Thread by: Kalliope, Feb 5, 2018, 68 replies, in forum: General ME/CFS news
  20. FrankTwisk
    Thread

    Analysis of five hallmark studies from the Netherlands, 2018, Twisk and Corsius

    An in-depth analysis of five hallmark studies of the Dutch Expertise Center for Chronic Fatigue (NKCV) confirms that cognitive behavorial...
    Thread by: FrankTwisk, Feb 2, 2018, 11 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Showing results 121 to 140 of 156
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