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Page 6 of 8
  1. NelliePledge
    Thread

    small advocacy project: replacement for CFS/ME clinic patient manual

    hi all on the thread about GET being camouflaged as pacing we were looking at the actual patient handbook that the NHS CFS/ME clinics use nowadays...
    Thread by: NelliePledge, Jun 3, 2018, 7 replies, in forum: Advocacy Projects and Campaigns
  2. JaimeS
    Thread

    Re-framing GET as pacing, or vice-versa

    So, I encountered something unusual and was wondering if anyone else had as well. I was talking to someone from Australia who has a sleep...
    Thread by: JaimeS, May 9, 2018, 64 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Indigophoton
    Thread

    Blog: PACE trial: Whatever happened to actigraphy?

    A new blog post by @Lucibee, In my first blog about the PACE trial, I discussed the lack of objective measures, and the bothersome issue of not...
    Thread by: Indigophoton, May 9, 2018, 3 replies, in forum: Psychosomatic theories and treatments discussions
  4. Andy
    Thread

    Advocacy alert: Australians with ME/CFS continue to be harmed by GET.

    Australians with ME/CFS continue to be harmed by GET. If you’ve been harmed by GET, write a letter to one of our campaign targets (RACGP...
    Thread by: Andy, May 9, 2018, 0 replies, in forum: Advocacy Action Alerts
  5. Eagles
    Thread

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Chronic fatigue syndrome treatment 'should be withdrawn' http://www.bbc.co.uk/news/newsbeat-44004882# A common treatment for chronic fatigue...
    Thread by: Eagles, May 8, 2018, 75 replies, in forum: General ME/CFS news
  6. Webdog
    Thread

    Workwell Foundation letter to healthcare providers: Opposition to GET for ME/CFS

    Something to send your healthcare provider the next time they recommend graded exercise....
    Thread by: Webdog, May 2, 2018, 15 replies, in forum: ME/CFS research news
  7. MeSci
    Thread

    A graded exercise therapy circuit class for rheumatology pain patients (Warning - may raise blood pressure!)

    Source: Rheumatology Vol 57, Suppl 3 Date: April 25, 2018 URL: https://academic.oup.com/rheumatology/article/57/suppl_3/key075.505/4971407 The...
    Thread by: MeSci, May 1, 2018, 11 replies, in forum: General ME/CFS news
  8. Melanie
    Thread

    Prof. Michael Sharpe on Victoria Derbyshire - On CBT/GET

    23-second clip of a segment of Michael Sharpe's appearance on Victoria Derbyshire Talking therapies and exercise for #ME are "not magic cures but...
    Thread by: Melanie, May 1, 2018, 4 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  9. Indigophoton
    Thread

    Blog: The struggle continues….

    One person's account of his experiences and consequences of forced GET. After the failure of my ill health retirement application in August i set...
    Thread by: Indigophoton, Apr 28, 2018, 8 replies, in forum: General ME/CFS news
  10. Melanie
    Thread

    David Tuller Crowdfunding over $75k

    [MEDIA] $75,436 and even higher since this Tweet. I had a feeling someone was going to come in towards the end and take care of this. :thumbsup:
    Thread by: Melanie, Apr 24, 2018, 3 replies, in forum: Advocacy Projects and Campaigns
  11. Melanie
    Thread

    Scientists and Dr Tuller brief Australia’s Chief Medical Officer - by Sasha Nimo ME Australia

    Scientists and Dr Tuller brief Australia’s Chief Medical Officer
    Thread by: Melanie, Apr 23, 2018, 4 replies, in forum: General ME/CFS news
  12. Melanie
    Thread

    David Tuller Interview - A Peace of the Action Program - Radio Adelaide (Apr 15, 2018)

    Social Justice interview with David Tuller on his ongoing Trial by Error series. Hour long. 2pm Sun 15 Apr 2018...
    Thread by: Melanie, Apr 16, 2018, 11 replies, in forum: General ME/CFS news
  13. Sly Saint
    Thread

    What it's like to have Chronic Fatigue Syndrome, an illness that makes you feel exhausted all the time

    I thought I might have seen this posted somewhere but can't find it. It says 2018 but from the link it might be from 2016.: " Alison Millington...
    Thread by: Sly Saint, Apr 15, 2018, 5 replies, in forum: General ME/CFS news
  14. Webdog
    Thread

    Healthwise to "retire the GET/CBT topics" from medical content

    One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS...
    Thread by: Webdog, Apr 11, 2018, 110 replies, in forum: Advocacy Projects and Campaigns
  15. Indigophoton
    Thread

    Graded exercise self-help for chronic fatigue syndrome in GETSET, Twisk, 2018

    I don't think this has been posted yet - by @FrankTwisk, The results of the guided graded exercise self-help trial (GETSET) by Lucy Clark and...
    Thread by: Indigophoton, Apr 9, 2018, 12 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Indigophoton
    Thread

    Article: ME patients misunderstand, Andresen, 2018

    A short article in Psychology Magazine, the Journal of the Norwegian Psychology Association, on the 'psychology of PEM'. It's the argument that...
    Thread by: Indigophoton, Apr 9, 2018, 11 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Tom Kindlon
    Thread

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Free full text: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3 [ATTACH] [ATTACH]
    Thread by: Tom Kindlon, Mar 22, 2018, 273 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Esther12
    Thread

    United Kingdom: Science Media Centre (including Fiona Fox)

    The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always...
    Thread by: Esther12, Dec 10, 2017, 674 replies, in forum: News from organisations
  19. Amw66
    Thread

    CBT- Jen Brea Twitter

    From twitter [MEDIA] Hit link.to see thread
    Thread by: Amw66, Mar 16, 2018, 121 replies, in forum: General ME/CFS news
  20. Milo
    Thread

    An integrative approach to ME, Hippocratic Post, Not a recommendation

    Exerpt: ME is not a specific disease or condition and is generally a ‘diagnosis of exclusion’ – one given when no definitive disease can be...
    Thread by: Milo, Mar 13, 2018, 6 replies, in forum: General ME/CFS news
Showing results 101 to 120 of 145
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