get

  1. Gecko

    Ask Dr Ellie Cannon recommends GET - Mail on Sunday

    https://www.dailymail.co.uk/health/article-6197085/ASK-DR-ELLIE-CANNON-clear-big-lump-throat.html I assume this is just mindless regurgitation with zero research.
  2. Cheshire

    Treating chronic fatigue syndrome / Oxford Neuroscience

    Seems like MS still has friends in the UK at Oxford University: An ode to Michael's tremendous work (wondering who wrote this, I nearly choked while reading...): And the best (this was suposedly revised in 2018!): Direct...
  3. Hip

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    A few years ago I had the idea of starting up a website in which hospitals, institutions or individual psychiatrists and psychologists who coerce exercise therapy upon unwilling ME/CFS patients could be named and shamed. I was just recently reminded of the idea after reading this thread of an...
  4. R

    The CFS deconditioning hypothesis

    Note from the moderators: The discussion in this thread is focussed on the BPS theory of deconditioning. There is another thread for discussing the issue raised in this post: Muscle atrophy ****************************** Hi Everyone My recent muscle biopsy of my thigh has led to what seems...
  5. A

    2 Day CPET discussion - is it evidence that GET is harmful, and is it a biomarker?

    This post and subsequent posts have been copied and/or moved from this thread: David Tuller: Trial By Error: The Cochrane Controversy ..... The downside of GET is that there is also abundant evidence of it doing immense measurable harm. That is something we need to focus on more. People with a...
  6. Andy

    The effect of physiotherapy on fatigue and physical functioning in chronic fatigue syndrome patients: A systematic review, 2018, Servadio et al

    This is all that is currently available, presumably the PubMed page will be updated once publication occurs. https://www.ncbi.nlm.nih.gov/pubmed/30151552?dopt=Abstract
  7. Andy

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    @Cheshire first posted about this here, but I thought it was important enough to warrant its own thread. https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/
  8. MSEsperanza

    Dutch journalist asks about pwME's objection to CBT/GET

    Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper: https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/#post-55894 - Graham's video...
  9. Lucibee

    Investigating the origins of GET (graded exercise therapy)

    While reading the Ciba Foundation Symposium 173 papers (Wiley, 1993), I came across this quote from Peter White in one of the discussions (after Sharpe's presentation on Non-pharmacological treatments - p310): And thus, CBT/GET was born! However, I looked back at David McCluskey's...
  10. O

    Thoughts on AMPS—psychosomatizing?

    I was introduced to a diagnosis today that I found a bit disturbing. It’s called Amplified Musculoskeletal Pain Syndrome, and the chatter around it reminds me of GET and the like—symptoms seem disproportionate, exercising through the pain won’t harm you, fear of movement, the pain is bad because...
  11. Melanie

    Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament

    Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament
  12. Simone

    “Potentially harmful and old-fashioned chronic fatigue treatments under review” ABC Australia article and TV program

    This article has just been posted to the ABC (Australia) website, ahead of a story on the current affairs show, 7.30, on the same network tonight. Based on the article, we are on tenter hooks about the story tonight...
  13. MeSci

    Guided graded exercise self-help for chronic fatigue syndrome: Patient experiences and perceptions, 2018, Cheshire et al

    Findings look interesting (improvement (n=9) and deteriorated (n=10)); conclusion daft (Guided graded Exercise Self-help may be improved by targeting those most likely to improve, and education about the indeterminate phase.) Datum: 11 juli 2018 URL...
  14. Andy

    UK: The Yellow Card Scheme has been confirmed as the route to report 'adverse incidents' from GET and CBT (or has it?)

    I decided to make a new thread from this post in the UK House of Lords/ House of Commons Questions thread. The Countess Of Mar asked the following question: Lord O'Shaughnessy answered...
  15. Sly Saint

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    https://bmjopen.bmj.com/content/6/7/e011255 " Study design This study started in September 2015 and recruitment is expected to finish in August 2016. This is a feasibility RCT with integrated qualitative methods." " Ethical considerations GET, CBT and activity management are recommended as...
  16. Indigophoton

    Application of head scraping combined with five-tone therapy in CFS of liver qi stagnation, Meiling et al, 2018

    From the google translation of the paper, which is in the Journal of Clinical and Pathological Research, http://lcbl.amegroups.com/article/view/25451 I presume head scraping is this procedure applied to the head: https://en.wikipedia.org/wiki/Gua_sha?wprov=sfla1 While five-tone therapy is...
  17. Hutan

    Reports from participants in GET and CBT trials

    This thread has been started as a place where reports from PACE trial participants can be recorded. Edit - the scope of the thread has since been widened to all CBT and GET trials.
  18. Lucibee

    Cognitive behavioural therapy with optional graded exercise therapy in patients with severe fatigue with myotonic dystrophy 1, 2018, Okkersen et al

    Cognitive behavioural therapy with optional graded exercise therapy in patients with severe fatigue with myotonic dystrophy type 1: a multicentre, single-blind, randomised trial Kees Okkersen, et al. Lancet Neurology - 19th June 2018 - Online First [Sorry - I'm having terrible trouble with...
  19. Andy

    Action for ME have "reworked our treatment and symptom management page" and "updated our pages on GET and CBT"

    Text from their Facebook post Treatment and management page - https://www.actionforme.org.uk/living-with-me/treatment-and-management/ GET and CBT page - https://www.actionforme.org.uk/resources/questions-and-answers/what-are-get-and-cbt/ I'm sure many of us here will find the wording...
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