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Ask Dr Ellie Cannon recommends GET - Mail on Sunday

Discussion in 'General ME/CFS news' started by Gecko, Sep 23, 2018.

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  1. Gecko

    Gecko Senior Member (Voting Rights)

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    https://www.dailymail.co.uk/health/article-6197085/ASK-DR-ELLIE-CANNON-clear-big-lump-throat.html

    I assume this is just mindless regurgitation with zero research.
     
    Gecko, Sep 23, 2018
    #1
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  2. James

    James Established Member (Voting Rights)

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    James, Sep 23, 2018
    #2
    alktipping, andypants, adambeyoncelowe and 6 others like this.
  3. Trish

    Trish Moderator Staff Member

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    :(:cry:
     
    Trish, Sep 23, 2018
    #3
    alktipping, Indigophoton, andypants and 6 others like this.
  4. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    About the author - google blurb on her book:

    Jack of all trades.....
     
    Invisible Woman, Sep 23, 2018
    #4
    andypants, adambeyoncelowe, MEMarge and 2 others like this.
  5. Trish

    Trish Moderator Staff Member

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    With such a wide media influence, I wonder if it's worth contacting her.
     
    Trish, Sep 23, 2018
    #5
    alktipping, Indigophoton, James Morris-Lent and 15 others like this.
  6. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Yeah, even if it was just some of the material we have such as the letter to the Lancet with all the signatories, a copy of the psychology journal......
     
    Invisible Woman, Sep 23, 2018
    #6
    alktipping, Indigophoton, Hutan and 10 others like this.
  7. Barry

    Barry Senior Member (Voting Rights)

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    Makes you wonder where the next big advocacy push needs to come from. Seems to be a bit of a stalemate at the minute.
     
    Barry, Sep 23, 2018
    #7
    alktipping, ladycatlover, andypants and 3 others like this.
  8. Amw66

    Amw66 Senior Member (Voting Rights)

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    Where would a GP/ medic look for advice - NHS guidance.
    Is this really surprising?
     
    Amw66, Sep 23, 2018
    #8
    alktipping, Indigophoton, ladycatlover and 8 others like this.
  9. large donner

    large donner Guest

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    So it could arise after the only three possible possibilities and also because at first a doc might just tell you you are mentally ill even though it was actually ME, the dustbin diagnosis you started of with has to still stand in your medical notes.

    You may get cancer after a physical illness or a mental illness or not or you may get it without any of those things happening first.



    "One study!! " :banghead:


    Great!! This is encouraging! More beneficial than Lucozade and grapes or less beneficial or nearly the same?

    Hanging on your every word. Whats fatigue got to do with anything though.

    Let me guess, so one can hear more of this shit?

    Wow tell us more.

    2018 and she is still spouting this crap??

    So wait that's pacing not GET? If it is pacing why would it be called a treatment?

    Wrong!

    Not according to the "experts" she got the above drivel from. Tests are actively discouraged according to them.
     
    Last edited: Sep 24, 2018
    large donner, Sep 24, 2018
    #9
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  10. Keela Too

    Keela Too Senior Member (Voting Rights)

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    I think tests are only discouraged after disgnosis. Initial tests to rule out other possibilities are recommended. But if those tests don’t pick the problem up, it seems they should be regarded as definitive*, and further explorations are discouraged and CBT/GET is the next step.

    * IE They say “We could find nothing wrong with this patient” - which WE know does not mean the same as ‘there IS nothing wrong’, but that is the way it is interpreted, and after this point the medic is discouraged from testing further. Sometimes, when new symptoms appear these are ignored also.
     
    Last edited: Sep 24, 2018
    Keela Too, Sep 24, 2018
    #10
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  11. Eagles

    Eagles Senior Member (Voting Rights)

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    MEA: Mail on Sunday: Ask Dr Ellie Cannon – Recently diagnosed with M.E. How long must I put up with this fatigue? | 24 September 2018

    https://www.meassociation.org.uk/20...ecently-diagnosed-with-m-e-24-september-2018/

    In yesterday’s Daily Mail, in the regular “Ask Dr Ellie Cannon” column, a question was featured about M.E.

    Dr Charles Shepherd has responded with the following information to Dr Cannon, hoping this might provide her with more accurate information and a better understanding of the disease...
     
    Eagles, Sep 24, 2018
    #11
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  12. Trish

    Trish Moderator Staff Member

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    That is a very good response from Dr Shepherd. @Russell Fleming please convey my thanks.
     
    Trish, Sep 24, 2018
    #12
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  13. Andy

    Andy Committee Member

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    Still talks of general improvements though that I'm not convinced that the evidence exists for.
     
    Andy, Sep 24, 2018
    #13
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  14. Trish

    Trish Moderator Staff Member

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    True, but nobody's perfect. ;)
    I'd also like to know the evidence for it being a minority who get worse over time.
     
    Trish, Sep 24, 2018
    #14
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  15. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Thes
    These quotes are from the CMO 2002 report. So quite a while ago and before forums and FB groups were as popular.

    I think it's a generally good response, especially as a fair amount of his w/e was spent responding re the "Sussex" post.
     
    MEMarge, Sep 24, 2018
    #15
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