get

It is not needed to go to third parties analysis to find the glaring errors. Quoting something I wrote for other purposes. The PACE trial was the largest trial into CBT/GET/APT as a proposed treatment for CFS/ME. The authors of this trial later released Adaptive pacing, cognitive behaviour...

I haven't seen this posted. It's a personal account by a UK pwME who participated in a study, pre-PACE, using GET/CBT. Very unfortunately, and fairly predictably the author of this story worsened from this treatment. She notes that some others in the study did not have symptoms like hers...

I've written a blog post about the recent amendment to the Cochrane review and how it doesn't address the major flaws. I will post the full text below as this makes it easier to quote and discuss...

Following discussion on this thread I have now sent the following personal letter to Sonya Chowdhury, Chief Executive of the UK charity Action for ME about their current web page of advice about Graded exercise therapy. I will post any response I get on this thread.

I thought it might be useful to get an overview of medical guidelines on ME/CFS that have been influenced by the Cochrane review on graded exercise therapy (GET). I’m mostly interested in official government positions or influential medical authorities that have referred to the Cochrane review...

In case it's of interest to anybody Free full text: https://www.tandfonline.com/doi/full/10.1080/0284186X.2019.1659513

Corsius et al. (2019). Zorg voor betere behandeling bij ME. Enquête onder ME-patiënten naar hun ervaringen met behandelingen bij ME. A new patient survey was published two days ago by the Dutch ME/CFS Association (ME/CVS Vereniging). It was conducted online in 2017 and had valid results for...

Hi everyone, A prominent Dutch psychiatrist Bram Bakker has written a book where he published a critical chapter about PACE, CBT/GET and pro Mark Vink. I can't post the whole chapter here but it would be great if you could help me retweet the quote I posted so it gets the attention it needs...

Sandler, C; Llloyd, A Barry, B (2016), Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome, Medicine & Science in Sports & Exercise: October 2016 - Volume 48 - Issue 10 - p 1875–1885 doi: 10.1249/MSS.0000000000000983 /...

Thread split from “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019) Who comprise the HANDI group and what are their interests. Interesting re timing of this piece

https://journals.sagepub.com/doi/abs/10.1177/1755738019852393?journalCode=inoa

On Royal Free website: CFS/ME research "This purpose of the PACE trial was to better understand the possible causes of chronic fatigue syndrome." Really? Since when? https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/cfs-me-research/ (see also Graded exercise...

This thread aims to draw together all our discussions on the Cochrane Review: Exercise Therapy for Chronic Fatigue Syndrome, Version published: 25 April 2017 by Larun et al. Threads in date order from oldest to newest: David Tuller: Trial By Error: The Cochrane Controversy Cochrane ME/CFS...

Michael Sharpe breaks his retirement promise on ME/CFS and returns with this monstrosity, a blog for the BMJ (British Medical Journal) He says ME/CFS is an illness but not a disease... Mind, Medicine and Morals: A Tale of Two Illnesses...

The Royal College of General Practioners (RCGP) is having its Presidential election soon. https://www.rcgp.org.uk/about-us/news/2019/may/rcgp-announces-seven-candidates-for-college-president.aspx There are 7 candidates... Could we canvas & lobby the the candidates for their views on matters...

There is a post today on MEA facebook - https://www.facebook.com/pg/meassociation/posts/?ref=page_internal one of the personal quotes accompanied by pics, that they've been running recently - for awareness week i think? There is a photo of the lady on her stair lift with the accompanying text...

https://journals.sagepub.com/doi/abs/10.1177/1359105319847261?journalCode=hpqa#articleShareContainer

I saw this article (which is mostly about antidepressants) on the Human Givens Institute and thought it worth sharing as it is written by a psychotherapist...

ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019 https://www.meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/ Lady...

It's the 2-year anniversary of this open access paper of mine, so I'm giving it a plug in a few places. It could be useful if there is any suggestion that somebody should be coerced into doing graded activity or exercise programmes; also to counter claims that the PACE Trial showed graded...