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The Draft Report by the Institute for Quality and Efficiency in Healthcare Does Not Provide Any Evidence That Graded Exercise Therapy and Cognitive Behavioral Therapy Are Safe and Effective Treatments for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Mark Vink and Alexandra Vink-Niese...

There's a thread dating from four years ago about GET and whether there is good evidence it is actually harmful. I was wondering whether there has been any new evidence since then. (old thread is here...

Full title: Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort with the post-COVID-19 syndrome Background Post Exertional Symptom Exacerbation (PESE) is a characteristic symptom of Post-COVID Syndrome (PCS)...

The ME/CFS patient community has long worked on debunking graded exercise and CBT as treatments for the disease but I am not aware of similar efforts in the fibromyalgia patient community. Rather, it seems to me that they have accepted these treatments as part of their standard of care. I...

This post has been copied from this thread: Percentage of people with ME/CFS able to work or attend school The latest Virology blog: “Trial By Error: Research From GET/CBT Ideological Brigades Shows No Improvements in Work Status” see...

Merged thread - article discussed first Abstract here Came across this article in the telegraph reporting CBT and exercise improves fatigue in RA: https://www.telegraph.co.uk/news/2022/06/28/arthritis-getting-positive-thinking-could-ease-symptoms/ It seems to be in connection to this paper...

(an old paper, mentioned on another thread here) Interventions for the Treatment and Management of Chronic Fatigue Syndrome: A Systematic Review https://jamanetwork.com/journals/jama/article-abstract/194209 Penny Whiting, MSc; 1 Anne-Marie Bagnall, PhD; 1 Amanda J. Sowden, PhD; 1 John E...

Copied post Video is now available https://youtu.be/D8ayxBSsk_M

Very PACE trial based information. eg" Adverse effects Surveys by patient groups of their members have suggested that GET may be harmful to some people with CFS. However, this finding is believed to be due to inappropriately planned or progressed exercise programs, possibly undertaken...

"The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical staff that the recommended treatments for people with ME have changed. We want to get the...

This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and other organisations' press releases. The NICE ME/CFS Guideline Project documents page gives links to: the Final Guideline the Evidence Review the...

https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harms-ab215021-5d66-4f72-9ba2-06a633f298f3?source_location=topic_page

(Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United Kingdom generally. If you have comments about specific services, please post on the relevant service thread (listed below or make a new thread). We...

https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c9-3ebe-4faf-b3bc-e01257e82c65).html Abstract (Paragraphs mine for legibility) Chronic fatigue syndrome (CFS), sometimes referred to as myalgic...

Open access: https://jnnp.bmj.com/content/86/10/1113 Glenn Nielsen, Jon Stone, Audrey Matthews, Melanie Brown, Chris Sparkes, Ross Farmer, Lindsay Masterton, Linsey Duncan, Alisa Winters, Laura Daniell, Carrie Lumsden, Alan Carson, Anthony S David, Mark Edwards Abstract Background Patients...

The idea of this thread is to collect useful *short* arguments to refute the claims most often used by BPSionists in reaction to criticism of GET and CBT as treatments for ME. Note: Before you post here, please read the discussion on the members only thread on non-evidenced and other...

https://journalofethics.ama-assn.org/article/importance-listening-treating-invisible-illness-and-long-haul-covid-19/2021-07

From the News from Germany thread: Update provided by a forum member 23/10/22:

Abstract Objective We investigated the effectiveness of Graded Exercise Therapy (GET) delivered to patients with Chronic Fatigue Syndrome (CFS/ME) in a routine, specialist clinic by measuring patient-reported outcome data collected prospectively over several timepoints alongside therapy...

Apart from the US and the UK, of course. I'm looking for any other countries, even if they just quietly removed the CBT/GET recommendations, so that I can give more examples to my GP to show him that a shift is happening. (This is in connection with the possible ME/CFS clinic he has in mind.)