There's a thread dating from four years ago about GET and whether there is good evidence it is actually harmful. I was wondering whether there has...
Full title: Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort with...
The ME/CFS patient community has long worked on debunking graded exercise and CBT as treatments for the disease but I am not aware of similar...
This post has been copied from this thread: Percentage of people with ME/CFS able to work or attend school The latest Virology blog: “Trial By...
Merged thread - article discussed first Abstract here Came across this article in the telegraph reporting CBT and exercise improves fatigue in...
(an old paper, mentioned on another thread here) Interventions for the Treatment and Management of Chronic Fatigue Syndrome: A Systematic Review...
Copied post The Norwegian ME Association is organising a webinar with prof. Brian Hughes on the NICE guidelines. Anyone can register on zoom for...
Very PACE trial based information. eg" Adverse effects Surveys by patient groups of their members have suggested that GET may be harmful to some...
"The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and...
This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...
https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harm...
(Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United...
https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c...
Open access: https://jnnp.bmj.com/content/86/10/1113 Glenn Nielsen, Jon Stone, Audrey Matthews, Melanie Brown, Chris Sparkes, Ross Farmer,...
The idea of this thread is to collect useful *short* arguments to refute the claims most often used by BPSionists in reaction to criticism of GET...
Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible,...
From the News from Germany thread: The IQWIG revealed their method of creating a report about the current situation of ME/CFS for the german...
Abstract Objective We investigated the effectiveness of Graded Exercise Therapy (GET) delivered to patients with Chronic Fatigue Syndrome...
Apart from the US and the UK, of course. I'm looking for any other countries, even if they just quietly removed the CBT/GET recommendations, so...
Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I...
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