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Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own. In Episode 3 of our expert interviews series, Dr Asad Khan talks to Dr Ben...

https://www.sciencedirect.com/science/article/abs/pii/S0022399921001781 Journal of Psychosomatic Research Available online 28 May 2021, 110533 In Press, Journal Pre-proof Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome P.D.White a...

Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection Published online by Cambridge University Press: 11 April 2018 " Editor's summary In a recent Round the Corner, Mitchell commented on a Cochrane Review of exercise therapy for chronic fatigue syndrome (CFS). One of the...

Highlights • Guided graded exercise self-help (GES) can lead to sustained improvement in patients with chronic fatigue syndrome. • There was no evidence of greater harm after GES compared to specialist medical care at long-term follow-up. • The study showed that GES was probably...

Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic Evaluations Open access, https://link.springer.com/article/10.1007/s40258-021-00635-7

(This was about SARS, not properly controlled either) A randomised controlled trial of the effectiveness of an exercise training program in patients recovering from severe acute respiratory syndrome https://www.sciencedirect.com/science/article/pii/S0004951405700027 This is from the first...

Abstract: Background Postural orthostatic tachycardia syndrome (POTS) is an autonomic nervous system disorder causing an abnormal cardiovascular response to upright posture. It affects around 0.2% of the population, most commonly women aged 13 to 50 years. POTS can be debilitating...

https://sapc.ac.uk/conference/2017/abstract/effect-of-cbt-get-and-pacing-treatments-mecfs-symptoms-analysis-of-patient

Abstract Background NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year. Variation in therapy programmes and treatment outcomes across services has not been described. Methods We described treatments provided by 11 CFS/ME...

https://www.virology.ws/2020/10/01/tria-by-error-royal-society-of-medicine-webinar-on-long-covid/

Thought this was an interesting editorial. It's from 2004 but is still relevant. Source: http://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC351829&blobtype=pdf

Free full text: https://gredos.usal.es/bitstream/handle/10366/143718/TFG_PoloFerrandez_EjercicioFatiga.pdf?sequence=1&isAllowed=y From: Dr. Marc-Alexander Fluks Source: University of Salamanca Date: June 2020 URL: https://gredos.usal.es/handle/10366/143718...

https://www.meaction.net/2020/07/15/take-action-graded-exercise-harming-people-with-me-and-covid-long-haulers/

https://www.nice.org.uk/guidance/gid-ng10091/documents/interim-findings-2 "NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before the current pandemic and it should not...

I realise that this is hardly news but thought it worth a reread as Chalder and Butler in a 1989 MEA newsletter considered it one of the two papers that should be read for an understanding of their approach. The other was the better known 1988 study by Straus. Normal muscle strength and...

Open access, https://content.iospress.com/articles/work/wor203174 Sci hub, https://sci-hub.tw/10.3233/WOR-203174 ETA: Now open access.

Mod note: The reply by Lubet and Tuller was in response to an article by Sharpe and Greco, discussed here: Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses By Steven Lubet & David Tuller. Abstract: Link...

"On the trail of a less inflamed ME debate." Clinical psychogist Grete Lilledalen about ME and CBT/GET. Well worth the read and share! "We must stop attributing illness and the absence of improvement to the patient's personality." "Instead of building the stigma of "treatment resistance" and...

This post and the following one have been moved or copied from this thread. Oooooo...! https://www.cochrane.org/news/appointment-lead-independent-advisory-group __________________________ Edit: Added for information: Cochrane Community Stakeholder engagement in high-profile reviews pilot...

Open access to PDF, https://www.mdpi.com/2076-3425/10/1/4 Note: Fukuda selection criteria. ETA: I was conflicted whether this should go in the Biomedical or the Psychosocial sub-forum as, to my mind, there are elements of both about it.