get

Exerpt: More at the link https://www.hippocraticpost.com/integrative/integrative-approach-me/ There is an opportunity for comments.

The UK only petition has closed but the Global one is still ongoing. Currently at 4765. In addition to MAGENTA (Esther Crawleys PACE for children), FITNET-NHS (also EC costing c£1m) is going on, and who knows what else is in the pipeline. In addition to removing CBT/GET from the NICE...

raised on another thread by @MEMarge. The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has an amber 'Requires Improvement' warning having been inspected in 2016. The various checks...

NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the current guidelines in place, despite the recommendations for treatments that are known to be harmful...

I wrote this primer last year, outlining the flaws in the GET research and explaining why GET is likely to be harmful for people with ME/CFS. It is specifically targeted towards health professionals and disability assessors, to give them a summary of the issues with the GET research. The primer...

This looks annoying and worthless: http://bmjopen.bmj.com/content/7/5/e014133 Wow, they've really taken the time to understand this straw-man of why patients are concerned about the promotion of CBT/GET: I'm mainly posting this because it says: I'm not sure that this organisation would...

Not sure if this has been posted. (MD is a member of S4ME) Clinical Guidance for ME: “Evidence-Based” Guidance Gone Awry Mary Dimmock January 2018 " This article is intended as a high-level summary of key issues in the conduct of reviews of the ME evidence-base that have resulted in flawed...

Hello all, I'm pleased to report that our major critique and reanalysis of the PACE trial has been accepted for publication in BMC Psychology. Title: Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and...

Letter to British Journal of Sports Medicine from CPET Experts Last October, the British Journal of Sports Medicine published a short paper that was essentially a summary of Cochrane’s systematic review of graded exercise for chronic fatigue syndrome (as Cochrane calls the illness). In...

An in-depth analysis of five hallmark studies of the Dutch Expertise Center for Chronic Fatigue (NKCV) confirms that cognitive behavorial therapy combined with a graded activity protocol (CBT+) has no objective positive effect on the (health) status of patients diganosed with chronic fatigue...

My letter. The only edit (besides removal of personal info) is the KP web link I included in my email went stale, so I updated it below: CDC response (emphasis mine): As instructed by the CDC, I've written to California State Department of Health. When I get a reply, I'll post it. I used...

Taken from the Grace Charity for ME (updated 2017) "This document was originally written in response to the Chief Medical Officer’s report in 2002 which triggered the current NHS Chronic Fatigue Syndrome/Myalgic Encephalomyelitis clinics, set up across the country. These clinics consist mainly...

I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)

In short they are asking for GET and CBT to be removed as treatments before the review concludes in 2020. Core of first letter Core of Mark Baker's reply And core of IiME response Link leads to, at time of posting, all three letters - http://www.investinme.org/IIMER-Newslet-1801-01.shtml

http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(16)32589-2/fulltext Lancet. 2017 Jul 22;390(10092):363-373. doi: 10.1016/S0140-6736(16)32589-2. Epub 2017 Jun 22. Guided graded exercise self-help plus specialist medical care versus specialist medical care alone for chronic...

Note that this is not a new study. Full text at http://sci-hub.bz/10.1017/s1352465800015241 Chalder T, Butler S, Wessely S. In-patient treatment of Chronic Fatigue Syndrome. Behavioural and Cognitive Psychotherapy 1996, 24; 315-365. I don't recall seeing anything published about in-patient...

This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS Supposed treatments for ME CFS - plus overview by Mayo clinic https://www.drugs.com/condition/chronic-fatigue-syndrome-cfs.html Content supplied by Mayo clinic...

Severely affected ME (Myalgic Encephalomyelitis) analysis report on questionnaire 25% ME Group (UK) 2004 Link to survey ME 2008: What progress Action for ME and Association of Young People with ME (UK) 2008 Link to survey Ervaringen van de achterban van patiëntenorganisaties met de...

Free full text: http://www.openaccessjournals.com/articles/studies-and-surveys-implicate-potential-iatrogenic-harm-of-cognitive-behavioral-therapy-and-graded-exercise-therapy-for-myalgic-en-12190.html

This is another article part of the new narrative that seems to be emerging. It uses the recent results of Georgetown University to quickly describe the new landscape of ME/CFS, (references to the drop of GET in US guidelines, to David Tuller's work and @Tom Kindlon 's review of harm due to...