The UK only petition has closed but the Global one is still ongoing. Currently at 4765. In addition to MAGENTA (Esther Crawleys PACE for...
raised on another thread by @MEMarge. The CQC only deals with services in England but from briefly looking at their website the only ME/CFS...
NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the...
I wrote this primer last year, outlining the flaws in the GET research and explaining why GET is likely to be harmful for people with ME/CFS. It...
This looks annoying and worthless: http://bmjopen.bmj.com/content/7/5/e014133 There is also recent evidence that combining CBT and GET may be...
Not sure if this has been posted. (MD is a member of S4ME) Clinical Guidance for ME: “Evidence-Based” Guidance Gone Awry Mary Dimmock January...
Hello all, I'm pleased to report that our major critique and reanalysis of the PACE trial has been accepted for publication in BMC Psychology....
Letter to British Journal of Sports Medicine from CPET Experts Last October, the British Journal of Sports Medicine published a short paper that...
An in-depth analysis of five hallmark studies of the Dutch Expertise Center for Chronic Fatigue (NKCV) confirms that cognitive behavorial...
My letter. The only edit (besides removal of personal info) is the KP web link I included in my email went stale, so I updated it below: Sent:...
Taken from the Grace Charity for ME (updated 2017) "This document was originally written in response to the Chief Medical Officer’s report in 2002...
I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about...
In short they are asking for GET and CBT to be removed as treatments before the review concludes in 2020. Core of first letter By removing the...
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(16)32589-2/fulltext Lancet. 2017 Jul 22;390(10092):363-373. doi:...
Note that this is not a new study. Full text at http://sci-hub.bz/10.1017/s1352465800015241 Chalder T, Butler S, Wessely S. In-patient...
This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS Supposed treatments for ME CFS...
Severely affected ME (Myalgic Encephalomyelitis) analysis report on questionnaire 25% ME Group (UK) 2004 Link to survey ME 2008: What progress...
Free full text:...
This is another article part of the new narrative that seems to be emerging. It uses the recent results of Georgetown University to quickly...
It seems more and more treatment recommandations are being updated! [MEDIA] http://www.mydr.com.au/first-aid-self-care/chronic-fatigue-syndrome
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