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Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

Discussion in 'Petitions' started by Sly Saint, Feb 23, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Barry, fossil, mari_gold and 27 others like this.
  2. Alvin

    Alvin Senior Member (Voting Rights)

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    Can anyone ask Jen Brea to tweet this?
     
  3. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Great idea. Sorry, don't tweet but am considering it after last few days. I want to know the MPs who have tweeted support to send their names on to my MP in the hope that a group will form to push things on.
     
    Barry, MEMarge, Jan and 3 others like this.
  4. Alvin

    Alvin Senior Member (Voting Rights)

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    I don't tweet either, but i don't have the cognitive fortitude to sign up and figure it out these days.
     
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  5. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Same here. I think that's what has been putting me off. But it might be becoming a necessity in this line of work!
     
    janice, Indigophoton and Alvin like this.
  6. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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  7. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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  8. Daisybell

    Daisybell Moderator Staff Member

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  9. MeSci

    MeSci Senior Member (Voting Rights)

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  10. Hutan

    Hutan Moderator Staff Member

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  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    It's on Jane Colbys twitter feed and #MEAction


    eta: and on MEA
     
    Last edited: Feb 24, 2018
    Nina, MEMarge, Jan and 11 others like this.
  12. Amw66

    Amw66 Senior Member (Voting Rights)

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    Signed and shared to Facebook groups
     
  13. TiredSam

    TiredSam Moderator Staff Member

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  14. Nellie

    Nellie Senior Member (Voting Rights)

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  15. EzzieD

    EzzieD Senior Member (Voting Rights)

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    Signed it and Tweeted it.
     
  16. Daisybell

    Daisybell Moderator Staff Member

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    1404 signatures so far...
     
  17. Jenny TipsforME

    Jenny TipsforME Senior Member (Voting Rights)

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    Is there any precedent of NICE adding a note to guidelines or withdrawing treatment before the end of a review?
     
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "
    13.4 Withdrawing the guideline
    Sometimes NICE's Guidance Executive decides that the recommendations in a guideline no longer apply, but that the guideline is not of sufficiently high priority for updating. In this case NICE's Guidance Executive will recommend that the whole guideline or specific recommendations are withdrawn. This decision will be consulted on with registered stakeholders."
    "
    13.5 Exceptional updates
    Exceptionally, significant new evidence may mean an update of a guideline is agreed before the next scheduled check of the need for updating (particularly when safety or safeguarding issues need to be addressed).

    The evidence might be a single piece of evidence, an accumulation of evidence or other published NICE guidance. Examples include significant data from published studies, changes in licensing and patents or warnings issued by licensing agencies, major changes in costs or changes in legislation."
    "
    Determining the need for an exceptional update
    The NICE Centre responsible for the guideline advises NICE's Guidance Executive on the need for an exceptional update and which recommendations are being considered for updating. The Centre also advises on whether there is any other evidence (published, unpublished or from ongoing studies) that is relevant.

    If NICE's Guidance Executive decides that an exceptional update is needed, registered stakeholders are informed of the planned approach."
     
  19. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Interesting. Thanks for digging this out Sly worth sharing this around making people aware that it isn’t anything unheard of that’s being asked for.
     
    Louie41, Jan, Indigophoton and 8 others like this.
  20. MarcNotMark

    MarcNotMark Senior Member (Voting Rights)

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    Signed, making it 1478 :)
     
    Louie41, Hutan, MEMarge and 6 others like this.

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