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petition

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  1. Sly Saint
    Thread

    Renewed discussion of the EU petition: 1 December 2021

    Merged thread Renewed discussion of the petition " The meeting is planned to take place in Brussels on 1 December 2021. The petition on myalgic...
    Thread by: Sly Saint, Nov 25, 2021, 4 replies, in forum: General ME/CFS News
  2. Lucibee
    Thread

    United Kingdom: Petition: Set up a national harms reporting scheme for non-pharmacological treatments

    OK. I'm off to jump through a few hoops. brb... (in about a week) Seems someone got in there first... :wink:...
    Thread by: Lucibee, Nov 19, 2021, 25 replies, in forum: Petitions
  3. Andy
    Thread

    Austria: Petition: ME / CFS: Recognition, Medical Care and Protection of the Affected, and Research Funding, closes 22 Nov 2021

    I'm relying on Google translation here, if any errors are spotted please let me know. Quote: Myalgic Encephalomyelitis / Chronic Fatigue...
    Thread by: Andy, Nov 5, 2021, 23 replies, in forum: Petitions
  4. John Mac
    Thread

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harm...
    Thread by: John Mac, Nov 2, 2021, 32 replies, in forum: Petitions
  5. Suffolkres
    Thread

    United Kingdom: Petition, Create a Task Force to Oversee Drug Procurement for ALL Post Viral Conditions - deadline 20 November 2021

    Moved post The great majority of doctors will not get to hear about this. However, quite a high proportion of GPs are likely to take note since it...
    Thread by: Suffolkres, Oct 19, 2021, 0 replies, in forum: Petitions
  6. Andy
    Thread

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    [Can be signed by anybody] Quote: Our Pleas to the German Bundestag We ask the German Bundestag to commit itself to the provision of healthcare...
    Thread by: Andy, Oct 14, 2021, 78 replies, in forum: Petitions
  7. Andy
    Thread

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    "We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. People...
    Thread by: Andy, Aug 19, 2021, 87 replies, in forum: Petitions
  8. Andy
    Thread

    UK Action for ME petition: 'Equity for ME' asking UK governments for equity of recognition and research funding with long Covid. closes 26th Nov 2021

    [MEDIA]
    Thread by: Andy, Aug 4, 2021, 21 replies, in forum: Petitions
  9. Andy
    Thread

    Canada: Petition: ME/CFS research funding, closes Sept 10, 2021

    "We, the undersigned, Citizens of Canada, call upon the Government of Canada to: 1. Set Aside $50 Million Dollars for ME/CFS biomedical research;...
    Thread by: Andy, May 15, 2021, 5 replies, in forum: Petitions
  10. Andy
    Thread

    UK: Petition: Specify ME/CFS on the list of neurological conditions under group 6 for UK Covid19 vaccine

    ME (or CFS as some still call it) is a chronic neurological condition that affects around 250,000 people across the UK, 75% are too unwell to work...
    Thread by: Andy, Feb 13, 2021, 21 replies, in forum: Petitions
  11. Michiel Tack
    Thread

    Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS'

    Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS' Brussels, 10 June 2020 More than one...
    Thread by: Michiel Tack, Jun 10, 2020, 2 replies, in forum: Advocacy Projects and Campaigns
  12. Michiel Tack
    Thread

    European ME Coalition (EMEC)

    The advocacy group of Evelien Van Den Brink and Francis Martin (of which I’m part) now has an official name and website. Check it out here:...
    Thread by: Michiel Tack, Apr 19, 2020, 11 replies, in forum: Advocacy Projects and Campaigns
  13. Michiel Tack
    Thread

    ME Action: The EU committee on petition is preparing a resolution on ME

    "Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...
    Thread by: Michiel Tack, Feb 9, 2020, 68 replies, in forum: Advocacy Projects and Campaigns
  14. Sly Saint
    Thread

    Wales (UK) - Govt petition P-05-926 To Provide a Chronic Fatigue Department in Wales

    07/01/2020 - Agenda item, Petitions Committee P-05-926 To Provide a Chronic Fatigue Department in Wales P-05-926 To Provide a Chronic Fatigue...
    Thread by: Sly Saint, Jan 3, 2020, 12 replies, in forum: General ME/CFS News
  15. ahimsa
    Thread

    ME Activist Evelien Van Den Brink Testifies before EU Parliament

    News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
    Thread by: ahimsa, Oct 5, 2019, 1 replies, in forum: General Advocacy Discussions
  16. Peter Trewhitt
    Thread

    UK petition for teacher education

    A young woman with ME has started UK Parliamentary petition seeking training in relation to ME for teachers: Staff training and mandatory support...
    Thread by: Peter Trewhitt, Jul 25, 2019, 10 replies, in forum: Petitions
  17. FMMM1
    Thread

    EU Petition 2019 - opportunity to lobby for funding for ME research

    A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the...
    Thread by: FMMM1, Jul 12, 2019, 143 replies, in forum: Petitions
  18. Sly Saint
    Thread

    Don't merge the assessments for PIP and ESA - April 2019

    UK Gov petition (ie at 10,000 Govt will respond) In a speech on 5/3/19, Work & Pensions Secretary Amber Rudd announced plans to merge assessments...
    Thread by: Sly Saint, Apr 11, 2019, 10 replies, in forum: Petitions
  19. John Mac
    Thread

    Petition, change.org: Define "Melvin Ramsay's Myalgic Encephalomyelitis (M.E.)" as own distinct disease from CFS

    I realise this may be controversial but it goes into it quite deeply, maybe too deeply. I believe that "Melvin Ramsay's Myalgic...
    Thread by: John Mac, Apr 10, 2019, 15 replies, in forum: Petitions
  20. Andy
    Thread

    Spanish petition: Retiren la Guía del INSS para Fibromialgia, SFCem, SQM y EHS

    Been asked to share this Spanish petition on social media but wondered if any of our Spanish speaking members could offer an opinion on the...
    Thread by: Andy, Apr 7, 2019, 11 replies, in forum: Petitions
Showing results 1 to 20 of 38
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