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Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

Discussion in 'Advocacy Projects and Campaigns' started by Sly Saint, Mar 2, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    raised on another thread by @MEMarge.

    The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has
    an amber 'Requires Improvement' warning having been inspected in 2016.
    The various checks on 'Specific Services' seem to only cover mental illness services.

    http://www.cqc.org.uk/provider/RGD

    I'm not au fait with FOIs but maybe one which asked the CQC what checks have been made in England on the services specifically for ME/CFS particularly with regards to figures for those receiving CBT/GET as per the NICE guidelines.

    Other than Leeds, have any other inspections of other services for patients with ME/CFS either at 'specialist clinics' or through GPs been assessed?

    Have any attempts been made to assess the efficacy of these treatments as part of primary care?
    (I would have thought this would be something NICE should want to know as part of their guideline review(?))

    I'm sure others will come up with other questions.
     
    Last edited: Mar 2, 2018
  2. Trish

    Trish Moderator Staff Member

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    There has also been concern about an ME service that seems to have gone wildly off piste in Oxfordshire and Dorset, using a jumbled mix of NLP, LP, 'recovery focused' therapy and stuff of their own invention which has not been properly researched.

    Discussed here:
    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme
    https://www.s4me.info/threads/co-cr...tion-of-a-rebuilding-your-life-programme.761/

    And then there is the move from ME/CFS services to MUS services with who knows what mumbo jumbo on offer and no promise of expert diagnosis.
     
  3. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Wonko, alktipping, Annamaria and 9 others like this.
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Attached Files:

  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    upload_2019-8-26_8-47-55.png
    The CQC would like your feedback please
    August 22, 2019



    https://www.metrust.org.uk/2019/08/22/the-cqc-would-like-your-feedback-please/

    (don't know a lot about the ME trust apart from CofM being a patron, and that they are a Christian group and include spiritual guidance as part of their treatment).
     
    ladycatlover, MEMarge and Annamaria like this.
  6. MeSci

    MeSci Senior Member (Voting Rights)

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    What's CofM?
     
  7. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    The Countess of Mar.
     
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    The Care Quality Commission (CGC) Is Being Duped by IAPT
    21st August 2019
    from CBTWatch
     
    Sean, Wonko, Annamaria and 12 others like this.
  9. rvallee

    rvallee Senior Member (Voting Rights)

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    Louder

    Changes on a psychometric test do not qualify as a clinically relevant outcome

    Even louder

    Changes on a psychometric test do not qualify as a clinically relevant outcome

    Evener morer louder

    Changes on a psychometric test do not qualify as a clinically relevant outcome

    Perfect
     
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  10. Sarah94

    Sarah94 Senior Member (Voting Rights)

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    Sorry, I didn't quite catch that?
     
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  11. rvallee

    rvallee Senior Member (Voting Rights)

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    Sad trombone at the demise of the <blink> tag.
     
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