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Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

Discussion in 'Advocacy Projects and Campaigns' started by Sly Saint, Mar 2, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    raised on another thread by @MEMarge.

    The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has
    an amber 'Requires Improvement' warning having been inspected in 2016.
    The various checks on 'Specific Services' seem to only cover mental illness services.


    I'm not au fait with FOIs but maybe one which asked the CQC what checks have been made in England on the services specifically for ME/CFS particularly with regards to figures for those receiving CBT/GET as per the NICE guidelines.

    Other than Leeds, have any other inspections of other services for patients with ME/CFS either at 'specialist clinics' or through GPs been assessed?

    Have any attempts been made to assess the efficacy of these treatments as part of primary care?
    (I would have thought this would be something NICE should want to know as part of their guideline review(?))

    I'm sure others will come up with other questions.
    Last edited: Mar 2, 2018
    adambeyoncelowe, MEMarge, Jan and 3 others like this.
  2. Trish

    Trish Committee Member

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    There has also been concern about an ME service that seems to have gone wildly off piste in Oxfordshire and Dorset, using a jumbled mix of NLP, LP, 'recovery focused' therapy and stuff of their own invention which has not been properly researched.

    Discussed here:
    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    And then there is the move from ME/CFS services to MUS services with who knows what mumbo jumbo on offer and no promise of expert diagnosis.
    adambeyoncelowe, Jan, Mij and 3 others like this.
  3. MEMarge

    MEMarge Senior Member (Voting Rights)

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  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Jan and MEMarge like this.

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