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Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

Discussion in 'Advocacy Projects and Campaigns' started by Sly Saint, Mar 2, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    raised on another thread by @MEMarge.

    The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has
    an amber 'Requires Improvement' warning having been inspected in 2016.
    The various checks on 'Specific Services' seem to only cover mental illness services.

    http://www.cqc.org.uk/provider/RGD

    I'm not au fait with FOIs but maybe one which asked the CQC what checks have been made in England on the services specifically for ME/CFS particularly with regards to figures for those receiving CBT/GET as per the NICE guidelines.

    Other than Leeds, have any other inspections of other services for patients with ME/CFS either at 'specialist clinics' or through GPs been assessed?

    Have any attempts been made to assess the efficacy of these treatments as part of primary care?
    (I would have thought this would be something NICE should want to know as part of their guideline review(?))

    I'm sure others will come up with other questions.
     
    Last edited: Mar 2, 2018
    adambeyoncelowe, MEMarge, Jan and 3 others like this.
  2. Trish

    Trish Moderator Staff Member

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    There has also been concern about an ME service that seems to have gone wildly off piste in Oxfordshire and Dorset, using a jumbled mix of NLP, LP, 'recovery focused' therapy and stuff of their own invention which has not been properly researched.

    Discussed here:
    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme
    https://www.s4me.info/threads/co-cr...tion-of-a-rebuilding-your-life-programme.761/

    And then there is the move from ME/CFS services to MUS services with who knows what mumbo jumbo on offer and no promise of expert diagnosis.
     
    adambeyoncelowe, Jan, Mij and 3 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    This from their report on Leeds:
    "
    The Yorkshire Centre for Psychological Medicine is an
    eight-bed specialist inpatient unit based at Leeds General
    Infirmary. It provides holistic care and treatment for
    patients using a biopsychosocial approach for the
    following:
    • severe and complex, medically unexplained
    symptoms
    • severe psychological and physical long-term health
    problems occurring at the same time
    • severe chronic fatigue syndrome and/or myalgic
    encephalomyelitis (commonly known as ME).
    The biopsychosocial model addresses a patient’s
    physical functioning, psychological condition, and their
    social needs."

    "
    This is the only unit in the country that accommodates
    patients presenting with these issues. Four of the beds
    are reserved for patients from the Leeds area. The
    remaining four beds are available to patients from across
    the United Kingdom.

    At the time of our inspection, there were eight patients
    allocated to the ward; one patient was on home leave.
    None of the patients were detained under the Mental
    Health Act 1983 and the ward had not admitted any
    detained patients for four years. All admissions were
    elective. The main unit entrance door was locked on
    entry, for security reasons, but exit was unrestricted.
    We previously inspected the ward in October 2014 and
    found that the suitability of the premises did not meet the
    required standards. Since then, the trust had undertaken
    some refurbishment work to improve the environment.
    Plans for a new purpose built unit were reliant on finding
    a suitable location, which was delaying the project from
    moving forward."
     
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  4. MEMarge

    MEMarge Senior Member (Voting Rights)

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  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Jan and MEMarge like this.

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