1. The 'News In Brief' post for w/c 8th October is now available Guest, click here.
    Dismiss Notice

Healthwise to "retire the GET/CBT topics" from medical content

Discussion in 'Advocacy Projects and Campaigns' started by Webdog, Apr 11, 2018.

  1. Webdog

    Webdog Senior Member (Voting Rights)

    Messages:
    1,224
    Likes Received:
    7,893
    Location:
    California
    One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS content.

    Healthwise provides medical content for many major healthcare corporations in the United States, including Kaiser Permanente with its 13 million members.

    Over the past 16 months, whenever a paper, letter, or Tuller blog post about GET/CBT appeared, I would send it off to Healthwise, asking them to consider removing GET/CBT from their ME/CFS content.

    Last year, after pressure by myself and others, Healthwise downgraded GET/CBT as treatments for ME/CFS. But these modules were still included in their ME/CFS content.

    Today, I got a Twitter direct message from Healthwise, soon after sending them @FrankTwisk 's excellent letter to The Lancet. From the message, the recent clinician summit in Salt Lake City influenced them significantly.

    Healthwise will be modifying their ME/CFS content fall of 2018, including retiring the GET/CBT topics from the ME/CFS section!

    It will likely take a few more months for major healthcare organizations to refresh their websites with the updated Healthwise content.

    Below is the Twitter direct message from my email inbox.

    healthwise.png
     
    Last edited: Apr 11, 2018
    Roy S, TigerLilea, Joh and 101 others like this.
  2. Joel

    Joel Senior Member (Voting Rights)

    Messages:
    622
    Likes Received:
    3,581
    Location:
    UK
    Well done, that effort paid off!!
     
    Joh, Simone, Jan and 25 others like this.
  3. BruceInOz

    BruceInOz Senior Member (Voting Rights)

    Messages:
    194
    Likes Received:
    1,318
    Location:
    Tasmania
    Well done @Webdog ! Sometimes persistence does pay off.
     
    Joh, Simone, Jan and 19 others like this.
  4. Webdog

    Webdog Senior Member (Voting Rights)

    Messages:
    1,224
    Likes Received:
    7,893
    Location:
    California
    As my wife jokes, being a continual pain in the ass is my superpower. :)
     
    TigerLilea, Joh, TiredSam and 47 others like this.
  5. Hutan

    Hutan Moderator Staff Member

    Messages:
    2,317
    Likes Received:
    10,052
    That's fabulous news. It makes me so happy. :thumbup:
     
  6. AndyPandy

    AndyPandy Senior Member (Voting Rights)

    Messages:
    192
    Likes Received:
    2,034
    Location:
    Australia
    Well done @Webdog

    What will you be focussing your superpower on next? :)
     
  7. Webdog

    Webdog Senior Member (Voting Rights)

    Messages:
    1,224
    Likes Received:
    7,893
    Location:
    California
    Thanks. My other iron still in the fire is a "Scope of Practice" complaint submitted to the Medical Board of Calfornia.

    I am asking the medical board to rule that GET/CBT are inappropriate ME/CFS treatments in the State of California ("outside the scope of practice").
     
    Last edited: Apr 11, 2018
    Joh, AndyPandy, Simone and 31 others like this.
  8. Louie41

    Louie41 Senior Member (Voting Rights)

    Messages:
    303
    Likes Received:
    2,004
    Location:
    upper Midwest US
    Terrific news, @Webdog! Well done!
     
  9. Yessica

    Yessica Senior Member (Voting Rights)

    Messages:
    108
    Likes Received:
    942
    Tears of joy. What a relief! Thank you @Webdog!!! Well done! Seriously I can't thank you enough and everyone else that played a role in making this happen. Thank you!
     
    Joh, Simone, Jan and 11 others like this.
  10. Dechi

    Dechi Senior Member (Voting Rights)

    Messages:
    324
    Likes Received:
    1,602
    Great job, congratulations and many thanks !
     
  11. JamBob

    JamBob Established Member

    Messages:
    24
    Likes Received:
    195
    Woohoo @Webdog - what a fantastic result - thanks so much for your hard work and persistence in making this happen. :):)
     
  12. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    990
    Likes Received:
    8,192
    An outstanding example of successful (and totally legitimate) activism. One for the instruction manual. :thumbup:

    :laugh:

    Is that how you won her over? Just wouldn't take no for an answer? :D
     
  13. Allele

    Allele Senior Member (Voting Rights)

    Messages:
    1,047
    Likes Received:
    9,121
    Wow! Go Webdog, you're a rockstar! It makes me so happy to see this :party:
     
  14. sea

    sea Senior Member (Voting Rights)

    Messages:
    353
    Likes Received:
    2,508
    Location:
    NSW, Australia
    Well done @Webdog your persistence has been rewarded and we all benefit by the chipping away at CBT/GET recommendations.
     
  15. Snowdrop

    Snowdrop Senior Member (Voting Rights)

    Messages:
    330
    Likes Received:
    2,240
    That's really good news. Thanks Webdog for pursuing this.
     
  16. Webdog

    Webdog Senior Member (Voting Rights)

    Messages:
    1,224
    Likes Received:
    7,893
    Location:
    California
    Those on Twitter can thank @Healthwise for their commitment to remove GET and CBT from their ME/CFS content. It never hurts to thank people for doing the right thing.
     
    TiredSam, Simone, Jan and 24 others like this.
  17. Medfeb

    Medfeb Established Member (Voting Rights)

    Messages:
    91
    Likes Received:
    719
    This is fantastic, Webdog. Thank you for your persistance and for sharing the twitter PM.
     
  18. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    2,239
    Likes Received:
    11,157
    Wow, well done, thats amazing!
     
  19. Allele

    Allele Senior Member (Voting Rights)

    Messages:
    1,047
    Likes Received:
    9,121
    That's a really good reminder! I don't twitter, but thanking them is an excellent idea.
     
  20. Webdog

    Webdog Senior Member (Voting Rights)

    Messages:
    1,224
    Likes Received:
    7,893
    Location:
    California
    You can also send Healthwise a note on their website:

    https://www.healthwise.org/contact.aspx
     
    Joh, Medfeb, TiredSam and 10 others like this.

Share This Page