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Healthwise to "retire the GET/CBT topics" from medical content

Discussion in 'Advocacy Projects and Campaigns' started by Webdog, Apr 11, 2018.

  1. Webdog

    Webdog Senior Member (Voting Rights)

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    One of my personal advocacy projects for the past 16 months has been to try to have Healthwise remove the GET and CBT modules from their ME/CFS content.

    Healthwise provides medical content for many major healthcare corporations in the United States, including Kaiser Permanente with its 13 million members.

    Over the past 16 months, whenever a paper, letter, or Tuller blog post about GET/CBT appeared, I would send it off to Healthwise, asking them to consider removing GET/CBT from their ME/CFS content.

    Last year, after pressure by myself and others, Healthwise downgraded GET/CBT as treatments for ME/CFS. But these modules were still included in their ME/CFS content.

    Today, I got a Twitter direct message from Healthwise, soon after sending them @FrankTwisk 's excellent letter to The Lancet. From the message, the recent clinician summit in Salt Lake City influenced them significantly.

    Healthwise will be modifying their ME/CFS content fall of 2018, including retiring the GET/CBT topics from the ME/CFS section!

    It will likely take a few more months for major healthcare organizations to refresh their websites with the updated Healthwise content.

    Below is the Twitter direct message from my email inbox.

    healthwise.png
     
    Last edited: Apr 11, 2018
  2. Joel

    Joel Senior Member (Voting Rights)

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    Well done, that effort paid off!!
     
    Joh, Simone, Jan and 25 others like this.
  3. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    Well done @Webdog ! Sometimes persistence does pay off.
     
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  4. Webdog

    Webdog Senior Member (Voting Rights)

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    As my wife jokes, being a continual pain in the ass is my superpower. :)
     
  5. Hutan

    Hutan Moderator Staff Member

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    That's fabulous news. It makes me so happy. :thumbup:
     
  6. AndyPandy

    AndyPandy Senior Member (Voting Rights)

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    Well done @Webdog

    What will you be focussing your superpower on next? :)
     
  7. Webdog

    Webdog Senior Member (Voting Rights)

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    Thanks. My other iron still in the fire is a "Scope of Practice" complaint submitted to the Medical Board of Calfornia.

    I am asking the medical board to rule that GET/CBT are inappropriate ME/CFS treatments in the State of California ("outside the scope of practice").
     
    Last edited: Apr 11, 2018
    Joh, AndyPandy, Simone and 31 others like this.
  8. Louie41

    Louie41 Senior Member (Voting Rights)

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    Terrific news, @Webdog! Well done!
     
  9. Yessica

    Yessica Senior Member (Voting Rights)

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    Tears of joy. What a relief! Thank you @Webdog!!! Well done! Seriously I can't thank you enough and everyone else that played a role in making this happen. Thank you!
     
    Joh, Simone, Jan and 11 others like this.
  10. Dechi

    Dechi Senior Member (Voting Rights)

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    Great job, congratulations and many thanks !
     
  11. JamBob

    JamBob Established Member (Voting Rights)

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    Woohoo @Webdog - what a fantastic result - thanks so much for your hard work and persistence in making this happen. :):)
     
  12. Sean

    Sean Senior Member (Voting Rights)

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    An outstanding example of successful (and totally legitimate) activism. One for the instruction manual. :thumbup:

    :laugh:

    Is that how you won her over? Just wouldn't take no for an answer? :D
     
  13. Allele

    Allele Senior Member (Voting Rights)

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    Wow! Go Webdog, you're a rockstar! It makes me so happy to see this :party:
     
  14. sea

    sea Senior Member (Voting Rights)

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    Well done @Webdog your persistence has been rewarded and we all benefit by the chipping away at CBT/GET recommendations.
     
  15. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    That's really good news. Thanks Webdog for pursuing this.
     
  16. Webdog

    Webdog Senior Member (Voting Rights)

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    Those on Twitter can thank @Healthwise for their commitment to remove GET and CBT from their ME/CFS content. It never hurts to thank people for doing the right thing.
     
    TiredSam, Simone, Jan and 24 others like this.
  17. Medfeb

    Medfeb Senior Member (Voting Rights)

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    This is fantastic, Webdog. Thank you for your persistance and for sharing the twitter PM.
     
  18. Alvin

    Alvin Senior Member (Voting Rights)

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    Wow, well done, thats amazing!
     
  19. Allele

    Allele Senior Member (Voting Rights)

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    That's a really good reminder! I don't twitter, but thanking them is an excellent idea.
     
  20. Webdog

    Webdog Senior Member (Voting Rights)

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    You can also send Healthwise a note on their website:

    https://www.healthwise.org/contact.aspx
     
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