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Do graded activity therapies cause harm in chronic fatigue syndrome? (Kindlon, 2017)

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Tom Kindlon, Mar 20, 2019.

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  1. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    It's the 2-year anniversary of this open access paper of mine, so I'm giving it a plug in a few places.

    It could be useful if there is any suggestion that somebody should be coerced into doing graded activity or exercise programmes; also to counter claims that the PACE Trial showed graded activity programs are safe.

    The word limit for the abstract was 100 words, so I couldn't say as much as I would have liked.

    I would have liked to have mentioned the PACE trial in the title as a lot of the focus was the harms reporting in the PACE Trial but the journal's editor wanted something shorter.

    https://journals.sagepub.com/doi/full/10.1177/1359105317697323


     
    Tom Kindlon, Mar 20, 2019
    #1
    Invisible Woman, Kalliope, JohnTheJack and 25 others like this.
  2. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Mar 20, 2019
    #2
    Amw66, Snow Leopard, Invisible Woman and 19 others like this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    All those papers were two years ago? That's such a long time. Progress since then feels so slow!

    Thanks for all your work. This was a really useful paper on a difficult topic.
     
    Esther12, Mar 20, 2019
    #3
    Invisible Woman, Hutan, JohnTheJack and 17 others like this.
  4. Dechi

    Dechi Senior Member (Voting Rights)

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    Thank you for doing such amazing work and not giving up !
     
    Dechi, Mar 20, 2019
    #4
    Invisible Woman, Hutan, EzzieD and 11 others like this.
  5. Obermann

    Obermann Senior Member (Voting Rights)

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    Solid and scientifically sound criticism of the reporting of harm in GET trials. As always, it is a pleasure to read your papers, Tom! :thumbup:
     
    Obermann, Mar 20, 2019
    #5
    Invisible Woman, Sean, Simbindi and 9 others like this.
  6. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Mar 20, 2019
    #6
    Invisible Woman, Amw66, Obermann and 1 other person like this.
  7. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Mar 20, 2020
    #7
    Simbindi, mango, Mithriel and 3 others like this.
  8. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    I have actually used the original paper when someone was considering recommending GET for me. I think they felt I had little to lose by trying it but the paper made them think again.

    Thank you @Tom Kindlon :thumbup:
     
    Invisible Woman, Mar 20, 2020
    #8
    lycaena, MEMarge, Sean and 5 others like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    maybe someone could enlighten the author of this blog:
    Code:
    https://medium.com/@djsan77/6-long-term-negative-effects-of-lack-of-physical-activity-b4970374d40b
     
    Sly Saint, Mar 21, 2020
    #9
    Simbindi and Invisible Woman like this.

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