http://www.sleep-journal.com/article/S1389-9457(18)30017-0/fulltext?cc=y=
Simon M. Collin, Tom Norris, Paul Gringras, Peter S. Blair, Kate Tilling, Esther Crawley
Abstract
Objective
/Background: Sleep abnormalities are characteristic of chronic fatigue syndrome (CFS, also known as ‘ME’), but...
I've recently had to do a few internet searches looking for some helpful information. My son has been having difficulties as he realises that dad is ill and may not get better.
This is quite a normal reaction apparently for a child of his age (9). It is manifesting itself mainly as...
I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)
Obviously not directly about ME but I'm sure it talks about many issues that parents of children with ME face.
https://evolvepolitics.com/teachers-send-home-sick-asthmatic-5y-o-then-ban-him-from-xmas-party-for-poor-attendance/
https://www.rcpch.ac.uk/events/annual-conference
Despite the theme, Crawley will be there.
Day One, "How to manage CFS/ME, fatigue and pain in children, Professor Esther Crawley"
Other highlights
Day One, "The role of systematic family work in the management of children with severe medically...
The Norwegian Broadcasting Corporation (NRK) with article on ME and child welfare authorities.
One of four parents with children with ME say they have been threatened of child welfare authorities from school, health personell or others.
A father with two children under assessment for ME tells...
The Norwegian ME Association has interviewed neurologist and paediatrician professor Kristian Sommerfelt about cognitive challenges for children and adolescents with ME. He works at the children's ward at Haukeland university hospital in Bergen, Norway.
He has long experience with children and...
This is a very interesting recent documentary about how faulty drug testing methodology resulted in children being taken from parents in Canada. As far as I can remember from the documentary this testing was also used in the US but is no longer now, once the errors were discovered.
It is just...
From earlier this year Matthew Hill reports for BBC's File on Four program "Children with ME";
Parents of children diagnosed with Myalgic Encephalomyelitis (ME) reveal how they have been investigated and referred for child protection measures on suspicion of a rare form of child abuse known as...
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