children

  1. MeSci

    Childhood sleep and adolescent CFS/ME: evidence of associations in a UK birth cohort (2018) Crawley et al.

    http://www.sleep-journal.com/article/S1389-9457(18)30017-0/fulltext?cc=y= Simon M. Collin, Tom Norris, Paul Gringras, Peter S. Blair, Kate Tilling, Esther Crawley Abstract Objective /Background: Sleep abnormalities are characteristic of chronic fatigue syndrome (CFS, also known as ‘ME’), but...
  2. A

    Resources for Parents with ME - helping children come to terms with chronic illness

    I've recently had to do a few internet searches looking for some helpful information. My son has been having difficulties as he realises that dad is ill and may not get better. This is quite a normal reaction apparently for a child of his age (9). It is manifesting itself mainly as...
  3. Joh

    Bath Fatigue Clinic - example of advice that harms child

    I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)
  4. Andy

    School sends home sick asthmatic 5y/o, then bans him from Xmas party for ‘poor attendance’

    Obviously not directly about ME but I'm sure it talks about many issues that parents of children with ME face. https://evolvepolitics.com/teachers-send-home-sick-asthmatic-5y-o-then-ban-him-from-xmas-party-for-poor-attendance/
  5. Andy

    Royal College of Paediatrics and Child Health conference, 13-15th March 2018, "Children First – Ethics, Morality and Advocacy in Childhood"

    https://www.rcpch.ac.uk/events/annual-conference Despite the theme, Crawley will be there. Day One, "How to manage CFS/ME, fatigue and pain in children, Professor Esther Crawley" Other highlights Day One, "The role of systematic family work in the management of children with severe medically...
  6. Kalliope

    Norway: Parents of children with ME threatened with child welfare authorities

    The Norwegian Broadcasting Corporation (NRK) with article on ME and child welfare authorities. One of four parents with children with ME say they have been threatened of child welfare authorities from school, health personell or others. A father with two children under assessment for ME tells...
  7. Kalliope

    Professor Kristian Sommerfelt on cognitive challenges for children/adolescents with ME

    The Norwegian ME Association has interviewed neurologist and paediatrician professor Kristian Sommerfelt about cognitive challenges for children and adolescents with ME. He works at the children's ward at Haukeland university hospital in Bergen, Norway. He has long experience with children and...
  8. Viola

    Faulty testing leads to children taken from parents

    This is a very interesting recent documentary about how faulty drug testing methodology resulted in children being taken from parents in Canada. As far as I can remember from the documentary this testing was also used in the US but is no longer now, once the errors were discovered. It is just...
  9. Sly Saint

    BBC File on 4 programme 'Children with ME'

    From earlier this year Matthew Hill reports for BBC's File on Four program "Children with ME"; Parents of children diagnosed with Myalgic Encephalomyelitis (ME) reveal how they have been investigated and referred for child protection measures on suspicion of a rare form of child abuse known as...
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