children

Hope 4 ME & Fibro NI " The charity is replacing monthly meetings in Newry by providing specialist speakers online by Zoom, until Covid - 19 social distancing rules are lifted. Our Zoom meeting this month will be dedicated to the needs of children with ME, presented by the charity’s Paediatric...

Wider collateral damage to children in the UK because of the social distancing measures designed to reduce the impact of COVID-19 in adults Esther Crawley1, Maria Loades1,2, Gene Feder3, Stuart Logan4, Sabi Redwood5, John Macleod2 https://bmjpaedsopen.bmj.com/content/4/1/e000701 Hmm...

Eligibility https://www.lincolnshire.gov.uk/special-educational-needs-disabilities-send/childrens-social-care-1/2

full paper here https://bmjpaedsopen.bmj.com/content/3/1/e000543

https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf

The book is set for release in spring 2020 full article here https://www.shropshirestar.com/entertainment/telford-entertainment/2019/11/25/telford-woman-releases-book-to-help-children-understand-adult-illness/

A correction has appeared in BMJ Open for a UK/Dutch study published in 2015. Esther Crawley was one of the original studies authors. https://bmjopen.bmj.com/content/9/11/e008830corr1 The original 2015 study: https://bmjopen.bmj.com/content/5/10/e008830

Open access, https://bmjopen.bmj.com/content/1/2/e000252 Reason for posting above https://bmjopen.bmj.com/content/9/11/e000252corr1 @dave30th

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:

https://senmagazine.co.uk/home/articles/senarticles-2/me-and-you

Document attached to this post. Source: https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf, which is a 'behind the scenes" link for this webpage, https://pmha-uk.org/ Internet archive link...

TIME FOR A PROFESSIONAL RETHINK ON ME : Your heart is as important as your head - blog by Jane Colby https://uttingwolffspouts.com/2018/05/12/when-children-dont-get-well/

Paywall, https://onlinelibrary.wiley.com/doi/abs/10.1111/ped.13976 Sci hub, https://sci-hub.se/10.1111/ped.13976

https://www.brighamandwomens.org/about-bwh/newsroom/press-releases-detail?id=3352 New Therapy Targets Gut Bacteria to Prevent and Reverse Food Allergies Study finds altered gut microbiota in infants with food allergy; oral therapy to replenish bacteria prevented food allergy and suppressed...

https://www.physiology.org/doi/abs/10.1152/ajpheart.00680.2018?journalCode=ajpheart This isn't ME/CFS research but it's not unrelated either, so I thought this should be in the ME/CFS research section.

ME is the biggest cause of long term sickness absence in schools [1]. 1 in 5 parents face child protection proceedings [2]. ME is not taught in medical schools and 80% of doctors think its psychosomatic [3]. Because healthcare professionals don't understand ME they start blaming the parents. ME...

https://www.nih.gov/news-events/news-releases/nih-announces-two-awards-multi-year-studies-influenza-immunity-children Nice to see money flowing...

Prognosis for childhood CFS is excellent For other conference abstracts see this thread: https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/

Source: Archives of Disease in Childhood Volume 104, Suppl 2 Date: May 2019 URL: https://adc.bmj.com/content/104/Suppl_2 Royal College of Paediatrics and Child Health --------------------------------------------- Abstracts of the RCPCH Conference and exhibition 13–15 May 2019, ICC...

They take the LP study seriously and the authors are from UCL and Great Ormond Street Hospital - this was enough for me to post in Psychosocial Research sub-forum rather than Biomedical. Paywall...