children

  1. Sly Saint

    UK Royal College of Psychiatrists

    RC Psych (Royal College of Psychiatrists) Chronic fatigue syndrome: helping your child to get better (note: Disclaimer This is information, not advice. Please read our disclaimer.)...
  2. Dolphin

    An automated system for body temperature monitoring of children, people with disabilities and bedridden people using a continuous analysis, 2020

    Free full text: http://www.diagnostyka.net.pl/An-automated-system-for-body-temperature-monitoring-of-children-people-with-disabilities,125314,0,2.html Mainly posting this paper because of this: I wonder on what basis they made this claim? Are there published studies that have found this?
  3. Andy

    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    Sign-up/Paywall, https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt Mod note: See post #13 for the full page of articles
  4. Andy

    Editorial: Research, recommendations & lived/personal experience with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2020, Mooney

    Open access, https://content.iospress.com/articles/work/wor203179
  5. Dolphin

    The Relationship Between Childhood Trauma and the Response to Group CBT for CFS, 2020, De Venter et al

    Free full text: https://www.frontiersin.org/articles/10.3389/fpsyt.2020.00536/full
  6. Sly Saint

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/explorer/ project 3 thread: https://www.s4me.info/threads/the-care-of-younger-children-5–11-years-with-cfs-me-a-qualitative-study-comparing-families’-teachers’-and-clinicians’-perspectives’-2020-crawley.15475/ eta...
  7. Andy

    The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’, 2020, Crawley

    Title including weird quote, “The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’ Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/hsc.13029
  8. Sly Saint

    'Children and ME' - Zoom meeting with guest speaker Dr Nigel Speight July 7th 2020

    Hope 4 ME & Fibro NI " The charity is replacing monthly meetings in Newry by providing specialist speakers online by Zoom, until Covid - 19 social distancing rules are lifted. Our Zoom meeting this month will be dedicated to the needs of children with ME, presented by the charity’s Paediatric...
  9. Sly Saint

    Wider collateral damage to children in the UK because of the social distancing [...] COVID-19, 2020, Crawley et al. And other papers by Crawley et al

    Wider collateral damage to children in the UK because of the social distancing measures designed to reduce the impact of COVID-19 in adults Esther Crawley1, Maria Loades1,2, Gene Feder3, Stuart Logan4, Sabi Redwood5, John Macleod2 https://bmjpaedsopen.bmj.com/content/4/1/e000701 Hmm...
  10. Sly Saint

    Lincolnshire County Council; Children's social care 2020

    Eligibility https://www.lincolnshire.gov.uk/special-educational-needs-disabilities-send/childrens-social-care-1/2
  11. Sly Saint

    How are behavioural interventions delivered to children (5–11 years old): a systematic mapping review - Brigden, Crawley et al Dec 2019

    full paper here https://bmjpaedsopen.bmj.com/content/3/1/e000543
  12. Dolphin

    Open (California, USA) CDC-funded study on children aged 10-17 with ME/CFS

    https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf
  13. Sly Saint

    Telford woman releases book to help children understand adult illness, 2019

    The book is set for release in spring 2020 full article here https://www.shropshirestar.com/entertainment/telford-entertainment/2019/11/25/telford-woman-releases-book-to-help-children-understand-adult-illness/
  14. John Mac

    Correction: CFS/ME is different in children compared to in adults: a study of UK and Dutch clinical cohorts. 2019

    A correction has appeared in BMJ Open for a UK/Dutch study published in 2015. Esther Crawley was one of the original studies authors. https://bmjopen.bmj.com/content/9/11/e008830corr1 The original 2015 study: https://bmjopen.bmj.com/content/5/10/e008830
  15. Andy

    Unidentified (CFS/ME) is a major cause of school absence: surveillance outcomes from school-based clinics, 2011, Crawley et al

    Open access, https://bmjopen.bmj.com/content/1/2/e000252 Reason for posting above https://bmjopen.bmj.com/content/9/11/e000252corr1 @dave30th
  16. Sly Saint

    Developing and pretesting a new patient reported outcome measure for paediatric CFS/ME: cognitive interviews with children, 2019, Crawley et al

    Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:
  17. Andy

    SEN Magazine: "ME and you" by Mary-Jane Willows

    https://senmagazine.co.uk/home/articles/senarticles-2/me-and-you
  18. Andy

    UK: Document: MEDICALLY UNEXPLAINED SYMPTOMS (MUS) IN CHILDREN AND YOUNG PEOPLE, 2018

    Document attached to this post. Source: https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf, which is a 'behind the scenes" link for this webpage, https://pmha-uk.org/ Internet archive link...
  19. Andy

    UK - The Young ME Sufferers (TYMES) Trust

    TIME FOR A PROFESSIONAL RETHINK ON ME : Your heart is as important as your head - blog by Jane Colby https://uttingwolffspouts.com/2018/05/12/when-children-dont-get-well/
  20. Andy

    Sleep Education in Primary School Prevents Future School Refusal Behavior, 2019, Miike et al

    Paywall, https://onlinelibrary.wiley.com/doi/abs/10.1111/ped.13976 Sci hub, https://sci-hub.se/10.1111/ped.13976
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