RC Psych (Royal College of Psychiatrists)
Chronic fatigue syndrome: helping your child to get better
(note: Disclaimer This is information, not advice. Please read our disclaimer.)...
Free full text:
http://www.diagnostyka.net.pl/An-automated-system-for-body-temperature-monitoring-of-children-people-with-disabilities,125314,0,2.html
Mainly posting this paper because of this:
I wonder on what basis they made this claim? Are there published studies that have found this?
Sign-up/Paywall, https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt
Mod note: See post #13 for the full page of articles
Title including weird quote, “The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’
Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/hsc.13029
Hope 4 ME & Fibro NI
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The charity is replacing monthly meetings in Newry by providing specialist speakers online by Zoom, until Covid - 19 social distancing rules are lifted.
Our Zoom meeting this month will be dedicated to the needs of children with ME, presented by the charity’s Paediatric...
Wider collateral damage to children in the UK because of the social distancing measures designed to reduce the impact of COVID-19 in adults
Esther Crawley1,
Maria Loades1,2,
Gene Feder3,
Stuart Logan4,
Sabi Redwood5,
John Macleod2
https://bmjpaedsopen.bmj.com/content/4/1/e000701
Hmm...
The book is set for release in spring 2020
full article here
https://www.shropshirestar.com/entertainment/telford-entertainment/2019/11/25/telford-woman-releases-book-to-help-children-understand-adult-illness/
A correction has appeared in BMJ Open for a UK/Dutch study published in 2015.
Esther Crawley was one of the original studies authors.
https://bmjopen.bmj.com/content/9/11/e008830corr1
The original 2015 study:
https://bmjopen.bmj.com/content/5/10/e008830
Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children
full paper
https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8
eta:
Document attached to this post.
Source: https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf, which is a 'behind the scenes" link for this webpage, https://pmha-uk.org/
Internet archive link...
TIME FOR A PROFESSIONAL RETHINK ON ME : Your heart is as important as your head - blog by Jane Colby
https://uttingwolffspouts.com/2018/05/12/when-children-dont-get-well/
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