children

  1. Dr Carrot

    Journalist looking for case study with child who has ME

    A journalist is looking for a case study of parents of a child with ME who have had social services become involved inappropriately. I googled and she’s written about ME before: https://www.thesun.co.uk/fabulous/6235179/chronic-fatigue-syndrome-me-and-me/
  2. MeSci

    The importance of accurate diagnosis of ME/CFS in children and adolescents: A commentary (2018), by Geraghty and Adeniji

    Source: Frontiers in Pediatrics Preprint Date: December 31, 2018 URL: https://www.frontiersin.org/articles/10.3389/fped.2018.00435/abstract The importance of accurate diagnosis of ME/CFS in children and adolescents: A commentary ----------------------------------------------------------...
  3. Dolphin

    Nationwide Study in Denmark of Association Between Treated Infections and the Subsequent Risk of Treated Mental Disorders in Children and Adolescents

    Free full text: https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2716981
  4. Sly Saint

    Children's pain: we can make it better? - featuring J. Bond-Kendall

    https://www.csp.org.uk/frontline/article/childrens-pain-we-can-make-it-better links to FITNET another of NICE guidelines committee members.
  5. Sly Saint

    Nov 29th #YoungHeartsDay - for #KidswithME

    just wondering if we could do something to show our support?
  6. Tilly

    NICE guidelines and the needs of children with ME

    Moderator note: This post and several following posts have been copied or moved from this thread about the NICE guideline review appointments to enable discussion of issues raised. This is how I see it pan out: All the main players are in the new or only CFS centres, all are psychological...
  7. Kalliope

    Cochrane review by Hiran Thabrew et al: E-Health interventions for anxiety/depression in children and adolescents with long-term physical conditions

    This is from Aug. 15th 2018 and as far as I know not shared here already. Not sure if studies on ME patients are included in the review, but thought it was of interest nevertheless. E-Health interventions for anxiety and depression in children and adolescents with long-term physical conditions...
  8. Sly Saint

    UK: Lack of support fears for thousands of 'hidden carers'

    Article in Bicester Advertiser: " The number of young people caring for loved ones in Oxfordshire increased by 374 in just a few months earlier this year, according to new figures. There are now 2,900 known young carers in the county but officials predict the real number could be up to four...
  9. Trish

    Videos by Prof Peter Rowe & Dr Nigel Speight: ME/CFS in children and young people - diagnosis, symptoms, controversies, management

    http://voicesfromtheshadowsfilm.co.uk/paediatric-mecfs/ Two videos, 12 and 14 minutes. The link also lists other resources for Pediatric ME/CFS. ME/CFS in children and young people Part 1 - diagnosis, symptoms and controversies Part 2 - management. Thanks to @Tom Kindlon for flagging this up...
  10. Hip

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    A few years ago I had the idea of starting up a website in which hospitals, institutions or individual psychiatrists and psychologists who coerce exercise therapy upon unwilling ME/CFS patients could be named and shamed. I was just recently reminded of the idea after reading this thread of an...
  11. Sly Saint

    ME/CFS Awareness - Arias journal

    ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families do. It wasn’t until my daughter fell ill at twelve years old, that everything fell apart. It would start by her sleeping for two weeks at a time. It...
  12. Joh

    Event: BACCH: "Navigating the minefield: MUS and FII", 7th Dec. 2018

    Agenda: Safeguarding children with CFS, Pervasive refusal syndrome, Gathering evidence – the police experience
  13. Dolphin

    Oxfordshire ME Group for Action (OMEGA) Experiences of Children with ME July 2018

    Oxfordshire ME Group for Action (OMEGA) Experiences of Children with ME July 2018 Main Report http://www.trevwilliams.co.uk/OMEGA%20Report%20Children's%20Experiences%20of%20ME.pdf Executive Summary...
  14. Melanie

    Archive of Diseases in Childhood: Editor's Note on Lightning Process Trial (June 2018)

  15. Sly Saint

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    https://bmjopen.bmj.com/content/6/7/e011255 " Study design This study started in September 2015 and recruitment is expected to finish in August 2016. This is a feasibility RCT with integrated qualitative methods." " Ethical considerations GET, CBT and activity management are recommended as...
  16. Andy

    Children’s views on research without prior consent in emergency situations: a UK qualitative study, 2018, Woolfall et al (including Crawley)

    Exploring more ways to take advantage of children. Open access at http://bmjopen.bmj.com/content/8/6/e022894
  17. Dolphin

    Letter from parents of children with ME to paediatricians in the UK

    [Apologies if this has been posted before] Dear Paediatrician, We are parents of children with ME. We are writing to as many Paediatricians as we can because many of you look after children with ME. ME is the single greatest cause of long term school absences in children, and in this...
  18. Sly Saint

    On the Air - two podcasts on ME with Amy Mooney

    "Amy Mooney, MS, OTR/L, is an occupational therapist who knows first-hand about the role of caregiving and about Myalgic Encephalomyelitis, or "ME," as the mother of a child with this condition. ME is also referred to as Chronic Fatigue Syndrome (CFS), Myalgic Encephalopathy, Post-Viral Fatigue...
  19. Andy

    Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

    If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/
  20. G

    Legal Precedent against GMC in a child with ME!!

    https://www.theguardian.com/society/2006/may/01/childrensservices.uknews A judge has instructed the GMC to relook at a complaint against two Paediatrician's who accused a family of Fii with a child with ME.
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