http://voicesfromtheshadowsfilm.co.uk/paediatric-mecfs/ Two videos, 12 and 14 minutes. The link also lists other resources for Pediatric ME/CFS....
A few years ago I had the idea of starting up a website in which hospitals, institutions or individual psychiatrists and psychologists who coerce...
ME/CFS Awareness part 2 (note part 1 is also at the link below) " Our Story We were a normal everyday family, doing all the things that families...
Agenda: Safeguarding children with CFS, Pervasive refusal syndrome, Gathering evidence – the police experience [MEDIA] [MEDIA]
Oxfordshire ME Group for Action (OMEGA) Experiences of Children with ME July 2018 Main Report...
Archive of Diseases in Childhood: Editor's Note on Lightning Process trial: 'Clinical and cost-effectiveness of the Lightning Process in addition...
https://bmjopen.bmj.com/content/6/7/e011255 " Study design This study started in September 2015 and recruitment is expected to finish in August...
Exploring more ways to take advantage of children. Abstract Objectives We explored children’s views on research without prior consent (RWPC) and...
[Apologies if this has been posted before] [MEDIA] Dear Paediatrician, We are parents of children with ME. We are writing to as many...
"Amy Mooney, MS, OTR/L, is an occupational therapist who knows first-hand about the role of caregiving and about Myalgic Encephalomyelitis, or...
Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME) is characterised by persistent fatigue, which has a significant impact on...
https://www.theguardian.com/society/2006/may/01/childrensservices.uknews A judge has instructed the GMC to relook at a complaint against two...
" 1st May 18 Libby is one of the youngest people in the UK to develop the chronic fatigure condition. A mum has spoken out about her 11-year-old...
A coalition of parents and other carers to children and adolescents with ME has written a letter to the Norwegian Directorate of Health about the...
Access to education for children with chronic illnesses- As you may know my daughter is manly bedbound and cognitive function is not good. It has...
http://www.sleep-journal.com/article/S1389-9457(18)30017-0/fulltext?cc=y= Simon M. Collin, Tom Norris, Paul Gringras, Peter S. Blair, Kate...
I've recently had to do a few internet searches looking for some helpful information. My son has been having difficulties as he realises that dad...
I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about...
Obviously not directly about ME but I'm sure it talks about many issues that parents of children with ME face. For a long time, children have...
The RCPCH Conference returns to Glasgow from 13-15 March 2018 for what promises to be an energising three days of inspirational talks,...
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