children

(Embargoed until 2099?) Oxford criteria, so tagged as "chronic fatigue", not applicable to ME/CFS. Philippa Clery*, Alexander Royston , Katie Driver, Jasmine Bailey, Esther M Crawley, Maria Loades...

Objective: To investigate the influence of comorbidities on the prognosis of pediatric postural tachycardia syndrome (POTS). Methods: In this retrospective cohort study, 275 children with POTS admitted to the Department of Pediatrics at Peking University First Hospital were recruited from 2016...

Hi all, not sure if this is the best place for this post.. Our 8 year old daughter is currently really struggling with the fact that I am ill, which is utterly heartbreaking. I was wondering if anyone had come across any resources for kids to help them come to terms with a parent who is ill? I...

https://www.haaretz.com/israel-news/the-new-frontier-israeli-hopsitals-contend-with-long-covid-in-children-1.10280661 Has anything similar been reported in ME/CFS?

Comparison of the Active Sitting Test and Head-Up Tilt Test for Diagnosis of Postural Tachycardia Syndrome in Children and Adolescents Hong Cai, Shuo Wang, Runmei Zou, Ping Liu, Fang Li, Yuwen Wang, Cheng Wang Objectives: We aimed to compare the hemodynamic responses to the active sitting test...

Abstract In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS) and their caregivers. The literature search was conducted across 10 academic databases, adhering to PRISMA-P guidelines. Quality appraisal was...

Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and relatively common (1-2% of teenagers). We need to improve treatment but need a well developed Patient Reported Outcome Measure (PROM) to do this. Clinical...

Abstract Psychosocial and socioeconomic adversity in early childhood (termed ‘social adversity’) can have lifelong detrimental effects on health and development. Physiological stress is one proposed mechanism by which social adversity ‘gets under the skin’. There is substantial research...

I don't often post but this is a real concern see p7: Children and young people with Long Covid (CLoCK) (publishing.service.gov.uk). Study summary Study title: Tracking the impact of Covid-19 on the mental health of children, young people and families; follow up of a national longitudinal...

P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of recovery and future treatment needs Philippa Clery, MBBS BSc, Jennifer Starbuck, BSc DClinPsy, Amanda Laffan, BSc DClinPsy, Esther Crawley, MBBCh PhD...

The Emotionally Disturbed Child as a Family Scapegoat Ezra F. Vogel and Norman W. Bell The phenomenon of scapegoating is as old as human society. Sir James Frazer records, in The Golden Bough,2 numerous instances, reaching back to antiquity, of public scapegoats, human and otherwise. He views...

Background The World Health Organization has recently recognized Long COVID, calling the international medical community to strengthen research and comprehensive care of patients with this condition. However, if Long COVID pertains to children as well is not yet clear. Methods An anonymous...

Open access, https://adc.bmj.com/content/early/2021/01/12/archdischild-2020-320746

https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/exfactr-study/ ACT, 'new' replacement for CBT. A favourite of Trudie Chalder. @dave30th

https://link.springer.com/article/10.1007/s12369-020-00714-0 Published: 06 November 2020 Telepresence Robot Use for Children with Chronic Illness in Australian Schools: A Scoping Review and Thematic Analysis International Journal of Social Robotics (2020)Cite this article 9 Accesses...

https://adc.bmj.com/content/105/Suppl_1/A189.2

Open access, https://journals.sagepub.com/doi/10.1177/1359104520964528

"Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits. "You’re constantly...

Full title: Fatigue-Related Cognitive-Behavioral Factors in Survivors of Childhood Cancer: Comparison with Chronic Fatigue Syndrome and Survivors of Adult-Onset Cancer Paywall, https://www.liebertpub.com/doi/10.1089/jayao.2020.0094 Sci hub, https://sci-hub.tw/10.1089/jayao.2020.0094

Open access, https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2768569