children

  1. Sly Saint

    What stops children with a chronic illness accessing health care: a mixed methods study in children with CFS/ME, 2011, Webb, Crawley et al

    Paper from 2011 Abstract Background Paediatric Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is relatively common and disabling with a mean time out of school of more than one academic year. NICE guidelines recommend referral to specialist services immediately if severely affected...
  2. SNT Gatchaman

    [Preprint/Protocol] Researching COVID to enhance recovery (RECOVER) pediatric study protocol: Rationale, objectives and design, 2023, Gross et al.

    Researching COVID to enhance recovery (RECOVER) pediatric study protocol: Rationale, objectives and design Importance: The prevalence, pathophysiology, and long-term outcomes of COVID-19 (post-acute sequelae of SARS-CoV-2 [PASC] or “Long COVID”) in children and young adults remain unknown...
  3. Sly Saint

    Priority setting for children and young people with chronic conditions and disabilities (Australia)

    Background The aim of this project was to identify the top 10 priorities for childhood chronic conditions and disability (CCD) research from the perspectives of children and young people with lived experience, their parents and caregivers and the professionals who work with them. Methods We...
  4. Sly Saint

    Fifteen-minute consultation: Managing post-COVID-19 syndrome (long COVID) in children and young people 2023,Wacks, Gregorowski et al

    Abstract Post-COVID-19 syndrome is a new condition that can have a major impact on the physical and mental well-being of children and young people, affecting their ability to access activities including education. Paediatricians and general practitioners need to be able to assess and manage...
  5. Dx Revision Watch

    WHO releases clinical case definition for post #COVID19 condition or ‘#LongCovid’ in children and adolescents

  6. Sly Saint

    Long COVID in Children and Adolescents A Retrospective Study in a Pediatric Cohort 2023, de Lima et al

    Abstract Studies on long coronavirus disease (COVID) in children are scarce. We aimed to describe persistent symptoms and identify risk factors for its development. In our study population, 17.6% presented with long COVID, with respiratory symptoms more frequent in the first weeks and...
  7. SNT Gatchaman

    Inborn errors of OAS–RNase L in SARS-CoV-2–related multisystem inflammatory syndrome in children, 2022, Lee et 100 al

    Inborn errors of OAS-RNase L in SARS-CoV-2-related multisystem inflammatory syndrome in children Multisystem inflammatory syndrome in children (MIS-C) is a rare and severe condition that follows benign COVID-19. We report autosomal recessive deficiencies of OAS1, OAS2, or RNASEL in five...
  8. Sly Saint

    Approach to the child with fatigue: A focus for the general pediatrician 2022, De Nardi et al

    Background: Fatigue is a common, nonspecific complaint commonly used to describe various conditions, ranging from a vague, subjective sense of weariness to muscular weakness, fatigability, exercise intolerance or excessive daytime somnolence. Despite its high frequency in the general population...
  9. Sly Saint

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    Abstract Objectives Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in children aged 5–16 years over 13 months. Secondary objectives: to describe the demographic features, symptoms, impact on activities...
  10. T

    Support Experiences of Children and Youth with ME/CFS and Epilepsy in New Zealand Schools: A Parental Perspective, 2022, Bierre (thesis)

    Support Experiences of Children and Youth with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Epilepsy in New Zealand Schools: A Parental Perspective A thesis presented in partial fulfilment of the requirements for the degree of Master of Science with an Endorsement in Health...
  11. Dolphin

    The ME Association Clinical & Research Guide 2022: Children & Adolescents

    ME Association The ME Association Clinical & Research Guide 2022: Children & Adolescents - available as a free download ME/CFS has been reported in children as young as five, and there appears to be a peak of onset around 13 to 15 years of age. This 6-page chapter has been taken from the 2022...
  12. Sly Saint

    Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe ME/CFS 2022, Hiremath

    Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS other authors include Anna Gregorowski (BACME) Hiremath, S.; Doukrou, M.; Flannery, H.; Carey, C...
  13. Andy

    The importance of school in the management of (ME/CFS): issues identified by adolescents and their families, 2022, Cleary, Crawley et al

    Full title: The importance of school in the management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): issues identified by adolescents and their families Abstract Paediatric Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a disabling condition. Schools play a...
  14. SNT Gatchaman

    Recovering or Persisting: The Immunopathological Features of SARS-CoV-2 Infection in Children, 2022, Buonsenso et al

    Recovering or Persisting: The Immunopathological Features of SARS-CoV-2 Infection in Children Buonsenso D, Valentini P, De Rose C, Tredicine M, Pereyra Boza MdC, Camponeschi C, Morello R, Zampino G, Brooks AES, Rende M, Ria F, Sanguinetti M, Delogu G, Sali M, Di Sante G, on behalf of the...
  15. LarsSG

    Post–COVID-19 Conditions Among Children 90 Days After SARS-CoV-2 Infection, 2022, Funk et al

    Key Points Question What proportion of children infected with SARS-CoV-2 who were tested in emergency departments (EDs) reported post–COVID-19 conditions (PCCs) 90 days after their ED visits? Findings In this cohort study of 1884 SARS-CoV-2–positive children with 90-day follow-up, 5.8% of...
  16. Mij

    Post-Concussive Orthostatic Tachycardia is Distinct from POTS in Children and Adolescents, 2022, Rachel Pearson MD et al

    Abstract Background: Orthostatic tachycardia (OT) affects some patients after concussion/mild traumatic brain injury (mTBI). In this study, we sought to identify the factors associated with increased risk for OT in patients with mTBI. Methods: We conducted a retrospective review of 268...
  17. Dolphin

    Recommendation for standardized medical care for children and adolescents with long COVID [German]. Statement of a ..., 2022, Töpfner et al

    Full title: Recommendation for standardized medical care for children and adolescents with long COVID [German]. Statement of a multidisciplinary pediatric expert group of the DGKJ convent societies (status: February 2022) From: Dr. Marc-Alexander Fluks Source: Monatsschrift Kinderheilkunde...
  18. Sly Saint

    Validation of child-adapted short scales for measuring gastrointestinal-specific avoidance and anxiety, 2022, Lalouni, Chalder et al

    Abstract Aim To validate child-adapted shortened versions of the Irritable Bowel Syndrome-Behavioral Responses Questionnaire (IBS-BRQ; short scale denoted BRQ-C) and the Visceral Sensitivity Index (VSI; short scale denoted VSI-C) for children with functional abdominal pain disorders (FAPDs)...
  19. SNT Gatchaman

    Comparison of Seroconversion in Children and Adults With Mild COVID-19, 2022, Toh et al.

    Comparison of Seroconversion in Children and Adults With Mild COVID-19 Zheng Quan Toh, Jeremy Anderson, Nadia Mazarakis, Melanie Neeland, Rachel A. Higgins, Karin Rautenbacher, Kate Dohle, Jill Nguyen, Isabella Overmars, Celeste Donato, Sohinee Sarkar, Vanessa Clifford, Andrew Daley, Suellen...
  20. SNT Gatchaman

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer, Rowe et al, 2017

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer Peter C. Rowe, Rosemary A. Underhill, Kenneth J. Friedman, Alan Gurwitt, Marvin S. Medow, Malcolm S. Schwartz, Nigel Speight, Julian M. Stewart, Rosamund Vallings and Katherine S. Rowe Abstract...
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