I've recently had to do a few internet searches looking for some helpful information. My son has been having difficulties as he realises that dad is ill and may not get better. This is quite a normal reaction apparently for a child of his age (9). It is manifesting itself mainly as difficulty sleeping\ general worries etc. I looked online for a guide or something to help explain things to him, but most of the resources (understandably) are for parents dealing with children that have ME rather than the other way around. So I thought I would start this thread so we can pop useful articles and resources to help children who have parents with ME. The first thing I have tried is the following book recommended by the MEA This is quite good in that it is written by a fellow sufferer and highlights some of the key day to day issues (description of the condition, prognosis, cant play rough and tumble games, cant have friends around to the house as often etc. etc.). I havent read all of this with him, so don't know if its helping yet, but already this has helped tease out his main fears and worries and get him to ask questions. Best not reading this before bedtime though.