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resources

  1. Tom Kindlon
    Thread

    "Caring for people with ME/CFS who are bedbound" (2023)

    "Caring for people with ME/CFS who are bedbound" (2023) 8-page fact sheet from Emerge Australia...
    Thread by: Tom Kindlon, Aug 2, 2023, 1 replies, in forum: Resources
  2. SNT Gatchaman
    Thread

    Post-exertional Malaise in ME/CFS - Webinar for Health Professionals - Dr Cathy Stephenson

    Posts moved from News from Aotearoa/New Zealand and the Pacific Islands YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports -...
    Thread by: SNT Gatchaman, Jun 23, 2023, 27 replies, in forum: Resources
  3. SNT Gatchaman
    Thread

    Introduction to Genomics for Engineers

    https://learngenomics.dev/ Audience is computer scientists, but useful for anyone wanting an overview of this complex topic. This Guide is...
    Thread by: SNT Gatchaman, Nov 25, 2022, 1 replies, in forum: Resources
  4. Dolphin
    Thread

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I thought I would brainstorm on this as there may be documents I’ve forgotten about or was never aware of. They don’t have to be long: one- and...
    Thread by: Dolphin, Apr 8, 2022, 57 replies, in forum: General Advocacy Discussions
  5. Jaybee00
    Thread

    Expert source list for journalists on Long COVID. Compiled by Fiona Lowenstein and Betsy Ladyzhets

    FYI—includes MECFS Also not sure why Fiona is calling MECFS a related post-viral condition, when many Long Covid people meet the criteria for...
    Thread by: Jaybee00, Nov 5, 2021, 1 replies, in forum: Advocacy Projects and Campaigns
  6. Sly Saint
    Thread

    Telford woman releases book to help children understand adult illness, 2019

    Gemma Everson is publishing a book called 'Supercharged Superhero', which is based on a true story that helped her children come to terms with her...
    Thread by: Sly Saint, Nov 25, 2019, 1 replies, in forum: General ME/CFS news
  7. ahimsa
    Thread

    Introducing #MEAction’s 2019 ME Research Summary

    We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into myalgic...
    Thread by: ahimsa, Jun 13, 2019, 16 replies, in forum: Advocacy Projects and Campaigns
  8. arewenearlythereyet
    Thread

    Resources for Parents with ME - helping children come to terms with chronic illness

    I've recently had to do a few internet searches looking for some helpful information. My son has been having difficulties as he realises that dad...
    Thread by: arewenearlythereyet, Jan 29, 2018, 6 replies, in forum: Relationships and coping
Showing results 1 to 8 of 8