“I feel like a ghost.” How included to children and young people with chronic conditions feel in their education, and what can we learn from their...
https://bmjpaedsopen.bmj.com/content/3/1/e000525.full Full text is open. Abstract Objectives Chronic fatigue syndrome/myalgic encephalomyelitis...
Gemma Everson is publishing a book called 'Supercharged Superhero', which is based on a true story that helped her children come to terms with her...
Tea and cake: an opportunity for young people and their parents/guardians to eat cake and share ideas Abstract Background The Treatment and...
I just came across this this morning and it fills me with what I can only describe as the collywobbles. Firstly how many children with severe ME...
New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition....
Abstract Objectives Previous studies have found that parents of children with chronic fatigue syndrome (CFS) are more fatigued, and mothers are...
[Apologies if this has been posted before] [MEDIA] Dear Paediatrician, We are parents of children with ME. We are writing to as many...
Downstairs, my two-year-old son, Lucas, is playing. He’s a beautiful, clever and sweet little boy who lights up my entire world. Upstairs, I lie...
I've recently had to do a few internet searches looking for some helpful information. My son has been having difficulties as he realises that dad...
Separate names with a comma.
