Access to education for children with chronic illnesses- As you may know my daughter is manly bedbound and cognitive function is not good. It has been hard for everyone to adjust to this as she was an active, very intelligent child. There is no online educational provision in Scotland, such as that provided by Nissai/ Interhigh in the rest of UK and BEDNET in Belgium. There is not even a national equivalent of "Moodle". At the moment I am working with others to try to open the door for virtual classroom based education as it would help many children with chronic illness who either cannot access mainstream schooling/ cannot attend full time. This has meant asking awkward questions that authorities are not keen to answer - schools are great at attendance figures ( generally all in the 90+%), however asking for numbers for those with less than 80% attendance, and for numbers with chronic illness with no access to education are issues that many would prefer not to look at (3.5% of school population for latter) We have learned the hard way, that school attendance does not work. The current system is skewed towards attendance. Children that can only attend on reduced timetables can miss significant " chunks" of subjects and are being set up to fail : non attendance can trigger social work involvement. There have been two parliamentary meetings with opposition MPs, however it is clear that many would prefer to pass the torch on rather than carry it. We have partnered up with Clic Sargent to provide a broader appeal, (people tend to understand cancer) and to benefit from their resources for research and PR. It is clear that we are going to have to create our own publicity to drive this forward, and that it will have to be a co-ordinated campaign covering as many outlets as we can. I have no PR background -suggestions for advocacy would be appreciated.