usa

CDC guidelines Updated June 14, 2021 Evaluating and Caring for Patients with Post-COVID Conditions: Interim Guidance Management https://www.cdc.gov/coronavirus/2019-ncov/hcp/clinical-care/post-covid-index.html

moved thread Ok, but most of these studies are based on confirmed PCR tests which if I understand correctly require virus particles, not necessarily antibodies. On Twitter someone pointed me to this Danish preprint which found that 16% of patients reported fatigue and 13% concentration...

A thread for news from the US that isn't covered by other threads such as (in no particular order) USA: News from the Workwell Foundation. USA: News from Solve ME USA: NIH National Institutes of Health Overview of NIH grants for ME/CFS research USA: News from #MEAction USA: The RECOVER...

Text from a Solve ME email. Bipartisan Long Hauler Legislation Introduced Before Congress! Thanks to your dedication and advocacy efforts, the COVID-19 Long Haulers Act (H.R. 2754) was formally introduced before Congress! The legislation was first announced during Advocacy Week by...

Building a community of teaching, research, & activism about disability https://disabilitystudies.nyu.edu/ Emily Lim Rogers https://www.emilylimrogers.com/

Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic. (Pix is of an @unrestfilm event yrs ago. Slide behind me is a statement of support for people w/ ME fr the entire Massachusetts Congressional...

Full title: A Comparison of Patients with Chronic Fatigue Syndrome and Myalgic Encephalomyelitis from the United Stated and Japan Elzbieta Wiedbusch, Joseph Cotler, Leonard A. Jason Abstract: Chronic fatigue syndrome (CFS) and Myalgic Encephalomyelitis (ME) are debilitating conditions found...

By Litsa Dremousis "As is true for many disabled Americans, my health-care costs resemble pipe bombs that keep blowing up my bank account, leaving it a pile of smoldering ash. As such, I can’t afford a house. Like many disabled Americans, I live in a multiunit dwelling where the majority of my...

Interesting show about the aftermath of viruses on NPR station WHYY this morning. One segment focuses on long COVID. Includes interviews with an immunologist who studies long-term impacts of viruses on the body and a physician trying to help her many patients suffering from long COVID. Second...

This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...

Background: Gender bias has been an ongoing issue in health care, examples being underrepresentation of women in health studies, trivialization of women's physical complaints, and discrimination in the awarding of research grants. We examine here a different issue—gender disparity when it comes...

The Solve Newsletter thread has been merged with this thread. Spring 2018 Contents: Page 2 - SMCI This Quarter: A Summary of Our Work Page 5 - SMCI Welcomes Two New Members to Its Board of Directors Page 6 - What’s in a Definition? Finding a Common Language for ME/CFS Page 8 - PEM: It’s Time...

Solve M.E. Spearheads “Long COVID Alliance” to Accelerate Post-Infectious Research From a Solve email. Today, Solve M.E. warmly welcomes 50 new partners in the fight to return millions of Americans to health. The Long COVID Alliance, launched by Solve M.E., is a network of patient-advocates...

This thread has been split from a thread discussing a book about Ron Davis: The Puzzle Solver by Tracie White I've been following ME/CFS research and news and reading forums for over 25 years. I think that the UK has played a much bigger part internationally in psychologising the condition and...

From an email from Solve. Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments. Ten other ME/CFS organizations joined...

A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Medpage today: "NIH Striving to Avoid False Hope in Chronic Fatigue" Shame about the title, yet again. https://www.medpagetoday.com/publichealthpolicy/publichealth/70529

Post copied from Attitudes of incoming US politicians to ME/CFS and post-Covid 19 illness Details below. Basically, they aim to recruit a lot of people with a positive diagnosis for SARS-COV2 and follow them for 18 months, with ME/CFS as the primary outcome. (I think that's quite a strong...

NIH Funding for ME in 2020: Falling Flat http://occupyme.net/2020/11/06/nih-funding-for-me-in-2020-falling-flat/

Not quite sure what this is but all references to Myalgic Encephalomyelitis/Chronic fatigue syndrome are to be removed (can't cut and paste relevant bits that show redactions p41/42): below is one of them. https://www.ama-assn.org/system/files/2020-10/nov2020-mss-ref-com-report.pdf...

The antinuclear antibody dense fine speckled pattern and possible clinical associations: An indication of a proinflammatory microenvironment (2020) Lundgren et al Abstract Background: Indirect immunofluorescence (IIF) is the most prevalent screening antinuclear antibody test for systemic...