usa

From the NIH MECFS Information List emailing list To foster communication and engagement with ME/CFS stakeholders, the ME/CFS Collaborative Research Centers have launched a new Community Advisory Committee (CAC), which will be managed by the Center for Solutions for ME/CFS at Columbia...

From an email from Solve. >>>>> The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. To protect the health of our advocates and congressional representatives, ME/CFS Advocacy Week 2021 will remain virtual with remote access to all...

omf sent this out: vvv NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS A resource for clinicians and patients. The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS. This handout is being made...

First Meeting of Interagency ME/CFS Working Group will be VideoCast Led by NIH and CDC, U.S. Agencies are coming together to coordinate their efforts and facilitate stakeholder input through the new Interagency ME/CFS Working group. Air date: Tuesday, August 11, 2020, 3:00 PM EDT / 8:00 PM UK...

" #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for questions from the audience, and it will feature a toolkit of the panelists’ most useful resources. This seminar is only for clinicians and medical students...

https://www.health.harvard.edu/a_to_z/chronic-fatigue-syndrome-a-to-z This could really do with being challenged. Harvard has had some good material on ME/CFS over the past couple of years, especially with the launch of the Harvard ME/CFS Collaboration. I wonder if it's worth trying to get...

Moderator note: This thread has been split off from Possibility of ME or PVFS after COVID-19 And merged with another thread about the same podcast. ________________ This morning, a public radio program in the USA ran a program on those with lingering symptoms, "the long haulers", post-Covid19...

Paywall, https://content.iospress.com/articles/work/wor203173 Sci hub, https://sci-hub.tw/10.3233/WOR-203173

Not a recommendation. https://carolyngeorgemd.com/chronic-fatigue/

Raskin Introduces Legislation to Address America’s Hidden Health Crisis

"Senator Kevin Cramer joined a bipartisan letter led by Senator Ed Markey (D-MA) today calling on Senate Leadership to prioritize medical research funding for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in any upcoming coronavirus relief package. Click here for the text of the...

https://www.washingtonpost.com/lifestyle/2020/05/08/what-i-learned-watching-my-mom-parent-with-disability/ Brittany Collins, author The mom has ME. May be paywalled.

Chronic Fatigue Syndrome (Systemic Exertion Intolerance Disease; SEID; Myalgic Encephalomyelitis; ME/CFS) By Stephen Gluckman , MD, Perelman School of Medicine at The University of Pennsylvania Last full review/revision Apr 2020| Content last modified Apr 2020 Consumer Version...

Increasing Prevalence of Antinuclear Antibodies in the United States. Dinse GE1, Parks CG2, Weinberg CR3, Co CA1, Wilkerson J1, Zeldin DC4, Chan EKL5, Miller FW6. Author information 1. Clinical and Public Health Sciences, Social & Scientific Systems, Durham, NC, U.S.A. 2. Epidemiology Branch...

2nd Annual EmPOWER M.E. Roundtable: Navigating Public and Private Disability Insurance with ME/CFS We're less than a week away from the 2nd Annual EmPOWER M.E. Roundtable: Navigating Public and Private Disability Insurance with ME/CFS. Since we could not be there in person, we will bring...

Free full text: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2763606

A. Voth, MD, LMCC, FRCP, (Can) Fellow ACP http://www.cpsa.ca/guest-column-the-orphan-patients/ ME/CFS is mentioned specifically I learned about this in the newsletter of the National ME/FM Action Network

Free full text: https://www.nature.com/articles/s41398-020-0741-x

Don't think I've seen this discussed here? Society to Improve Diagnosis in Medicine: https://www.improvediagnosis.org/ Appears to be US based. May be an advocacy opportunity for someone, especially the patient engagement bit? Have only skimmed the site and found no mention of ME...

USA/ Canada classes LDT Applications to Chronic Fatigue Syndrome, Fibromyalgia, MS & Chronic Neuroinflammations (LCFS-FM) I think noto_O https://chiklyinstitute.com/Class/LDT/LCFS-FM https://chiklyinstitute.com/ [also available in Malaysia...