usa

This thread has been split from a thread discussing a book about Ron Davis: The Puzzle Solver by Tracie White I've been following ME/CFS research and news and reading forums for over 25 years. I think that the UK has played a much bigger part internationally in psychologising the condition and...

From an email from Solve. Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments. Ten other ME/CFS organizations joined...

A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Medpage today: "NIH Striving to Avoid False Hope in Chronic Fatigue" Shame about the title, yet again. https://www.medpagetoday.com/publichealthpolicy/publichealth/70529

Post copied from Attitudes of incoming US politicians to ME/CFS and post-Covid 19 illness Details below. Basically, they aim to recruit a lot of people with a positive diagnosis for SARS-COV2 and follow them for 18 months, with ME/CFS as the primary outcome. (I think that's quite a strong...

NIH Funding for ME in 2020: Falling Flat http://occupyme.net/2020/11/06/nih-funding-for-me-in-2020-falling-flat/

Not quite sure what this is but all references to Myalgic Encephalomyelitis/Chronic fatigue syndrome are to be removed (can't cut and paste relevant bits that show redactions p41/42): below is one of them. https://www.ama-assn.org/system/files/2020-10/nov2020-mss-ref-com-report.pdf...

The antinuclear antibody dense fine speckled pattern and possible clinical associations: An indication of a proinflammatory microenvironment (2020) Lundgren et al Abstract Background: Indirect immunofluorescence (IIF) is the most prevalent screening antinuclear antibody test for systemic...

From the NIH MECFS Information List emailing list To foster communication and engagement with ME/CFS stakeholders, the ME/CFS Collaborative Research Centers have launched a new Community Advisory Committee (CAC), which will be managed by the Center for Solutions for ME/CFS at Columbia...

From an email from Solve. >>>>> The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. To protect the health of our advocates and congressional representatives, ME/CFS Advocacy Week 2021 will remain virtual with remote access to all...

omf sent this out: vvv NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS A resource for clinicians and patients. The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS. This handout is being made...

First Meeting of Interagency ME/CFS Working Group will be VideoCast Led by NIH and CDC, U.S. Agencies are coming together to coordinate their efforts and facilitate stakeholder input through the new Interagency ME/CFS Working group. Air date: Tuesday, August 11, 2020, 3:00 PM EDT / 8:00 PM UK...

" #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for questions from the audience, and it will feature a toolkit of the panelists’ most useful resources. This seminar is only for clinicians and medical students...

https://www.health.harvard.edu/a_to_z/chronic-fatigue-syndrome-a-to-z This could really do with being challenged. Harvard has had some good material on ME/CFS over the past couple of years, especially with the launch of the Harvard ME/CFS Collaboration. I wonder if it's worth trying to get...

Moderator note: This thread has been split off from Possibility of ME or PVFS after COVID-19 And merged with another thread about the same podcast. ________________ This morning, a public radio program in the USA ran a program on those with lingering symptoms, "the long haulers", post-Covid19...

Paywall, https://content.iospress.com/articles/work/wor203173 Sci hub, https://sci-hub.tw/10.3233/WOR-203173

Not a recommendation. https://carolyngeorgemd.com/chronic-fatigue/

Raskin Introduces Legislation to Address America’s Hidden Health Crisis

"Senator Kevin Cramer joined a bipartisan letter led by Senator Ed Markey (D-MA) today calling on Senate Leadership to prioritize medical research funding for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in any upcoming coronavirus relief package. Click here for the text of the...

https://www.washingtonpost.com/lifestyle/2020/05/08/what-i-learned-watching-my-mom-parent-with-disability/ Brittany Collins, author The mom has ME. May be paywalled.

Chronic Fatigue Syndrome (Systemic Exertion Intolerance Disease; SEID; Myalgic Encephalomyelitis; ME/CFS) By Stephen Gluckman , MD, Perelman School of Medicine at The University of Pennsylvania Last full review/revision Apr 2020| Content last modified Apr 2020 Consumer Version...