usa

  1. Andy

    Rates and Factors Associated With Documentation of Diagnostic Codes for Long COVID in the National Veterans Affairs Health Care System, 2022, Ioannou

    Key Points Question What are the rates, clinical settings, and factors associated with documentation of care related to COVID-19 at 3 or more months after acute infection? Findings In this cohort study of 198 601 persons with a positive SARS-CoV-2 test, COVID-19 care was documented in 13.5%...
  2. T

    Open US (South Florida): The Use of Directed Probiotics in ME/CFS

    https://www.nova.edu/nim/research-studies/research-studies-pages/INIM-studies/kaneka-probiotic-study.html The Use of Directed Probiotics in ME/CFS In this virtual study, we aim to use the probiotic, Floradapt Intensive GI (other name i3.1), to reduce gastrointestinal (GI) inflammation and...
  3. Sly Saint

    USA: CDC: School-Based Active Surveillance (SBAS) of ME/CFS Among Schoolchildren, comments invited until 20th Sept 2022.

    https://www.federalregister.gov/documents/2022/07/22/2022-15735/proposed-data-collection-submitted-for-public-comment-and-recommendations
  4. Wyva

    Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop, 2022

    Contributor(s): National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Laura Aiuppa Denning and Erin Hammers Forstag, Rapporteurs -- 'Long COVID' refers to the wide range of long-lasting symptoms experienced by some patients...
  5. LarsSG

    US: Long Covid prevalence from Household Pulse Survey

    The US National Center for Health Statistics has added a question about Long Covid to their Household Pulse Survey. Nearly One in Five American Adults Who Have Had COVID-19 Still Have “Long COVID” New data from the Household Pulse Survey show that more than 40% of adults in the United States...
  6. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    full details and sample email https://www.meaction.net/2022/05/27/email-doctor-unger-about-misinformation-at-cdc/
  7. Wyva

    Updated ME/CFS prevalence estimates reflecting post-COVID increases and associated economic costs and funding implications, 2022, Mirin, Jason et al

    ABSTRACT In this article, we update our earlier analyses of myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) economic impact and its National Institutes of Health (NIH) funding versus disease burden, taking into account the anticipated new cases of ME/CFS resulting from COVID-19...
  8. rvallee

    USA: The White House: Memorandum on Addressing the Long-Term Effects of COVID-⁠19

    Copied post from here More info: White House launches national plan to address long COVID https://www.reuters.com/world/us/white-house-launches-national-plan-address-long-covid-2022-04-05/ President Joe Biden on Tuesday announced a national action plan to be developed by the U.S. health...
  9. Hip

    Advice on mask-wearing to protect against Covid-19

    Western medical authorities and the WHO have repeatedly stated that the populace do not need to wear masks or respirators, and that for the general public these offer no protection from coronavirus. The WHO say: Source: here It's rather annoying when scientists hide behind deceptive...
  10. Sly Saint

    USA: Foundation for Total Recovery

    http://www.brainonfire.org/autoimmune-encephalopathy-secondary-to-infectious-disease-february-9-11-2022/
  11. J

    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    Copied post: USA: Massachusetts ME/CFS & FM Association news Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid https://sites.google.com/massmecfs.org/2021annualmeeting
  12. J

    USA: Massachusetts ME/CFS & FM Association news

    Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid https://sites.google.com/massmecfs.org/2021annualmeeting
  13. Dolphin

    University of Arkansas for Medical Sciences audio pieces & transcripts

    Doesn’t look great but maybe of interest to someone —- Station: University of Arkansas for Medical Sciences Date: October 14, 2021 WebRadio: https://news.uams.edu/2021/10/14/chronic-fatigue-syndrome/ Item: 5x CFS/M
  14. Wyva

    New Statesman article: “Society is ableist”: Alice Hattrick on gender, chronic illness and long Covid

    Alice Hattrick is an author who lives with ME/CFS and has recently published the book "Ill Feelings". Alice Hattrick was aged eight when their mother collapsed with mycoplasma pneumonia. The author – who prefers the gender-neutral pronoun “they” – found her on the kitchen floor at their home in...
  15. Wyva

    Fortune: Why Instacart’s new CEO is also launching a women’s health startup

    "For the past year, as she oversaw Facebook’s flagship app and then made the jump to Instacart this summer, Simo has been quietly helping get a new women’s health startup off the ground. The Metrodora Institute, a for-profit clinic with a non-profit foundation devoted to research and advocacy...
  16. Wyva

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    Author: Litsa Dremousis, who has written similar articles for the Washington Post before, from the perspective of a pwME. "Congress has allocated $1.15 billion to the National Institutes of Health for long covid research, and ME advocacy groups such as M.E. Action Network are lobbying NIH to...
  17. T

    Consensus Guidance Statement on PASC Fatigue, 2021, Herrera et al (AAPM&R)

    Full Title: Multi-Disciplinary Collaborative Consensus Guidance Statement on the Assessment and Treatment of Fatigue in Post-Acute Sequelae of SARS-CoV-2 infection (PASC) Patients Authors American Academy of Physical Medicine and Rehabilitation Multi- Disciplinary PASC Collaborative 1...
  18. ahimsa

    July 2021 edition of Medical Board of California News includes article about ME/CFS and Long COVID by MEAction

    The July 2021 edition of Medical Board of California News issue includes a 2-page article called, "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID: What Every Physician Needs to Know" by MEAction. https://www.mbc.ca.gov/Download/Newsletters/Newsletter2021-July.pdf The full...
  19. Andy

    The kids are not alright: A preliminary report of Post-COVID syndrome in university students, 2021, Walsh-Messinger et al

    Abstract Objective To investigate the prevalence and features of protracted COVID-19 symptoms in non-hospitalized university students who experienced mild-to-moderate acute illness. Participants COVID-19 positive participants with symptoms ≥ 28 days (N = 22), herein referred to as post-COVID...
  20. cassava7

    IOM report update

    The summary of the IOM report reads (p. 10, bolding mine): It is encouraging to note that progress already is being made in understanding the etiology, natural history, pathophysiology, and effective treatment of ME/CFS using a variety of physiological and molecular methods. Several large...
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