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  1. Wyva
    Thread

    Updated ME/CFS prevalence estimates reflecting post-COVID increases and associated economic costs and funding implications, 2022, Mirin, Jason et al

    ABSTRACT In this article, we update our earlier analyses of myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) economic impact and its...
    Thread by: Wyva, Apr 12, 2022, 5 replies, in forum: ME/CFS research
  2. rvallee
    Thread

    USA: The White House: Memorandum on Addressing the Long-Term Effects of COVID-⁠19

    Copied post from here [MEDIA] More info: White House launches national plan to address long COVID...
    Thread by: rvallee, Apr 5, 2022, 13 replies, in forum: Long Covid news
  3. Hip
    Thread

    Advice on mask-wearing to protect against Covid-19

    Western medical authorities and the WHO have repeatedly stated that the populace do not need to wear masks or respirators, and that for the...
    Thread by: Hip, Apr 2, 2020, 311 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  4. Sly Saint
    Thread

    USA: Foundation for Total Recovery: Autoimmune Encephalopathy Secondary to Infectious Disease: Why are you still sick? February 9 - 11th, 2022

    We are excited to announce that we are holding our next conference, Autoimmune Encephalopathy Secondary to Infectious Disease: A New Perspective...
    Thread by: Sly Saint, Dec 20, 2021, 0 replies, in forum: Other treatments
  5. Jaybee00
    Thread

    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    Copied post: USA: Massachusetts ME/CFS & FM Association news Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long...
    Thread by: Jaybee00, Oct 22, 2021, 67 replies, in forum: ME/CFS research news
  6. Jaybee00
    Thread

    USA: Massachusetts ME/CFS & FM Association news - next event 14 Dec 2021

    Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid [MEDIA]...
    Thread by: Jaybee00, Oct 22, 2021, 3 replies, in forum: News from organisations
  7. Dolphin
    Thread

    University of Arkansas for Medical Sciences audio pieces & transcripts

    Doesn’t look great but maybe of interest to someone —- Station: University of Arkansas for Medical Sciences Date: October 14, 2021 WebRadio:...
    Thread by: Dolphin, Oct 15, 2021, 0 replies, in forum: General ME/CFS news
  8. Wyva
    Thread

    New Statesman article: “Society is ableist”: Alice Hattrick on gender, chronic illness and long Covid

    Alice Hattrick is an author who lives with ME/CFS and has recently published the book "Ill Feelings". Alice Hattrick was aged eight when their...
    Thread by: Wyva, Oct 8, 2021, 10 replies, in forum: General ME/CFS news
  9. Wyva
    Thread

    Fortune: Why Instacart’s new CEO is also launching a women’s health startup

    "For the past year, as she oversaw Facebook’s flagship app and then made the jump to Instacart this summer, Simo has been quietly helping get a...
    Thread by: Wyva, Oct 4, 2021, 4 replies, in forum: General ME/CFS news
  10. Wyva
    Thread

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    Author: Litsa Dremousis, who has written similar articles for the Washington Post before, from the perspective of a pwME. "Congress has allocated...
    Thread by: Wyva, Aug 8, 2021, 42 replies, in forum: General ME/CFS news
  11. Three Chord Monty
    Thread

    Consensus Guidance Statement on PASC Fatigue, 2021, Herrera et al (AAPM&R)

    Full Title: Multi-Disciplinary Collaborative Consensus Guidance Statement on the Assessment and Treatment of Fatigue in Post-Acute Sequelae of...
    Thread by: Three Chord Monty, Aug 6, 2021, 6 replies, in forum: Long Covid news
  12. ahimsa
    Thread

    July 2021 edition of Medical Board of California News includes article about ME/CFS and Long COVID by MEAction

    The July 2021 edition of Medical Board of California News issue includes a 2-page article called, "Myalgic Encephalomyelitis/Chronic Fatigue...
    Thread by: ahimsa, Jul 16, 2021, 5 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    The kids are not alright: A preliminary report of Post-COVID syndrome in university students, 2021, Walsh-Messinger et al

    Abstract Objective To investigate the prevalence and features of protracted COVID-19 symptoms in non-hospitalized university students who...
    Thread by: Andy, Jul 10, 2021, 1 replies, in forum: Long Covid research
  14. cassava7
    Thread

    IOM report update

    The summary of the IOM report reads (p. 10, bolding mine): It is encouraging to note that progress already is being made in understanding the...
    Thread by: cassava7, Jun 29, 2021, 5 replies, in forum: Diagnostic Criteria and Naming Discussions
  15. Cheshire
    Thread

    USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021

    CDC guidelines Updated June 14, 2021 Evaluating and Caring for Patients with Post-COVID Conditions: Interim Guidance Management Patients with...
    Thread by: Cheshire, Jun 15, 2021, 9 replies, in forum: Other guidelines with public consultation process
  16. Andy
    Thread

    Population-based estimates of post-acute sequelae of SARS-CoV-2 infection (PASC) prevalence and characteristics, 2021, Hirschtick et al

    Abstract Background Emerging evidence suggests many people have persistent symptoms after acute COVID-19 illness. Our objective was to estimate...
    Thread by: Andy, Jun 14, 2021, 1 replies, in forum: Long Covid research
  17. Andy
    Thread

    US: COVID-19 Long Haulers Act (H.R. 2754) Has Been Introduced

    Text from a Solve ME email. Bipartisan Long Hauler Legislation Introduced Before Congress! Thanks to your dedication and advocacy efforts, the...
    Thread by: Andy, May 26, 2021, 5 replies, in forum: Advocacy Projects and Campaigns
  18. Sly Saint
    Thread

    New York University Center for Disability Studies (CDS)

    Building a community of teaching, research, & activism about disability In the spring of 2017, the NYU Senate’s Equity, Diversity and Inclusion...
    Thread by: Sly Saint, May 3, 2021, 7 replies, in forum: General disability topics and advocacy
  19. Roy S
    Thread

    USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID

    Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic....
    Thread by: Roy S, Apr 22, 2021, 16 replies, in forum: General ME/CFS news
  20. Kalliope
    Thread

    Journal of Preventive Medicine & Healthcare: A Comparison of Patients with CFS and ME from USA and Japan - 2021 - Jason et al

    Full title: A Comparison of Patients with Chronic Fatigue Syndrome and Myalgic Encephalomyelitis from the United Stated and Japan Elzbieta...
    Thread by: Kalliope, Apr 10, 2021, 6 replies, in forum: ME/CFS research
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