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usa

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  1. Sly Saint
    Thread

    USA : Ford Foundation Launches First-Ever U.S. Disability Rights Program

    Merged thread (MEAction funding) The Ford Foundation today announced the launch of its first-ever grantmaking program focused on advancing the...
    Thread by: Sly Saint, Oct 15, 2021 at 12:09 PM, 0 replies, in forum: Health News and Research unrelated to ME/CFS
  2. Three Chord Monty
    Thread

    Consensus Guidance Statement on PASC Fatigue, 2021, Herrera et al (AAPM&R)

    Full Title: Multi-Disciplinary Collaborative Consensus Guidance Statement on the Assessment and Treatment of Fatigue in Post-Acute Sequelae of...
    Thread by: Three Chord Monty, Aug 6, 2021, 6 replies, in forum: Epidemics (including Covid-19)
  3. cassava7
    Thread

    IOM report update

    The summary of the IOM report reads (p. 10, bolding mine): It is encouraging to note that progress already is being made in understanding the...
    Thread by: cassava7, Jun 29, 2021, 5 replies, in forum: Diagnostic Guidelines
  4. Cheshire
    Thread

    USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021

    CDC guidelines Updated June 14, 2021 Evaluating and Caring for Patients with Post-COVID Conditions: Interim Guidance Management Patients with...
    Thread by: Cheshire, Jun 15, 2021, 9 replies, in forum: Other guidelines with public consultation process
  5. Andy
    Thread

    Population-based estimates of post-acute sequelae of SARS-CoV-2 infection (PASC) prevalence and characteristics, 2021, Hirschtick et al

    Abstract Background Emerging evidence suggests many people have persistent symptoms after acute COVID-19 illness. Our objective was to estimate...
    Thread by: Andy, Jun 14, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  6. Sly Saint
    Thread

    New York University Center for Disability Studies (CDS)

    Building a community of teaching, research, & activism about disability In the spring of 2017, the NYU Senate’s Equity, Diversity and Inclusion...
    Thread by: Sly Saint, May 3, 2021, 6 replies, in forum: General ME/CFS News
  7. wingate
    Thread

    USA radio: NPR/WHYY Episode: The Aftermath of Viruses

    Interesting show about the aftermath of viruses on NPR station WHYY this morning. One segment focuses on long COVID. Includes interviews with an...
    Thread by: wingate, Mar 26, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  8. Trish
    Thread

    USA: News from #MEAction

    From an email: #MEAction to Hold Press Conference on ME & long COVID! #MEAction is thrilled to announce that we are hosting a press conference...
    Thread by: Trish, Mar 18, 2021, 18 replies, in forum: News from Organisations
  9. Andy
    Thread

    USA: News from Solve ME

    The Solve Newsletter thread has been merged with this thread. Spring 2018 Contents: Page 2 - SMCI This Quarter: A Summary of Our Work Page 5 -...
    Thread by: Andy, May 18, 2018, 31 replies, in forum: News from Organisations
  10. Dolphin
    Thread

    The influence of the biopsychosocial (BPS) view of ME/CFS in government guidelines and medical practice in different countries (past and present)

    This thread has been split from a thread discussing a book about Ron Davis: The Puzzle Solver by Tracie White I've been following ME/CFS...
    Thread by: Dolphin, Feb 21, 2021, 32 replies, in forum: General ME/CFS News
  11. Tom Kindlon
    Thread

    USA: NIH National Institutes of Health

    A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Split from Possibility of ME or PVFS after COVID-19,...
    Thread by: Tom Kindlon, Jan 19, 2021, 60 replies, in forum: News from Organisations
  12. Simon M
    Thread

    USA: INSPIRE Innovative Support for Patients with Covid-19 Registry (ME/CFS outcome measure)

    Post copied from Attitudes of incoming US politicians to ME/CFS and post-Covid 19 illness I did a superficial search to find out whether any of...
    Thread by: Simon M, Nov 9, 2020, 5 replies, in forum: BioMedical ME/CFS News
  13. Andy
    Thread

    USA: NIH annual funding for ME/CFS research (discussion)

    NIH Funding for ME in 2020: Falling Flat NIH funding for ME/CFS research should be increasing each year. Everyone agrees that this is needed....
    Thread by: Andy, Nov 6, 2020, 14 replies, in forum: General ME/CFS News
  14. Sly Saint
    Thread

    USA: Report of the Medical Student Section Reference Committee : American Medical Association (November 2020)

    Not quite sure what this is but all references to Myalgic Encephalomyelitis/Chronic fatigue syndrome are to be removed (can't cut and paste...
    Thread by: Sly Saint, Nov 2, 2020, 1 replies, in forum: Epidemics (including Covid-19)
  15. Milo
    Thread

    The antinuclear antibody dense fine speckled pattern & possible clinical associations: indicates a proinflammatory environment, 2020, Lundgren et al

    The antinuclear antibody dense fine speckled pattern and possible clinical associations: An indication of a proinflammatory microenvironment...
    Thread by: Milo, Oct 31, 2020, 3 replies, in forum: BioMedical ME/CFS Research
  16. Andy
    Thread

    ME/CFS Collaborative Research Centers launch new Community Advisory Committee

    From the NIH MECFS Information List emailing list To foster communication and engagement with ME/CFS stakeholders, the ME/CFS Collaborative...
    Thread by: Andy, Oct 30, 2020, 1 replies, in forum: General ME/CFS News
  17. Andy
    Thread

    Solve ME/CFS: The 5th Annual ME/CFS Advocacy Week April 18-24, 2021

    From an email from Solve. >>>>> The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. To...
    Thread by: Andy, Oct 28, 2020, 8 replies, in forum: Advocacy Projects and Campaigns
  18. Medfeb
    Thread

    New US ME/CFS Clinician Coalition website

    The US ME/CFS Clinician Coalition has released a website for medical providers with information to help them deliver better care for people with...
    Thread by: Medfeb, Sep 16, 2020, 20 replies, in forum: General ME/CFS News
  19. Sly Saint
    Thread

    US: CDC - Proposed Data Collection Submitted for Public Comment and Recommendations Aug 2020

    SUMMARY: The Centers for Disease Control and Prevention (CDC), as part of its continuing effort to reduce public burden and maximize the utility...
    Thread by: Sly Saint, Aug 2, 2020, 4 replies, in forum: BioMedical ME/CFS News
  20. Sly Saint
    Thread

    USA: #MEAction ME/CFS clinical seminars

    " #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for...
    Thread by: Sly Saint, Jul 14, 2020, 2 replies, in forum: General ME/CFS News
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