usa

Note: This action is for folks living in the USA. #MEAction is urging folks to contact their elected officials to ask that Medicare coverage for telehealth (doctor visits via phone or video) continue to be covered past Dec. 31...

FDA proposes pulling Sudafed and Benadryl from pharmacy shelves

Moderation note: Please note the title of the thread and keep on-topic. Restrict your posting to information that is highly relevant to ME/CFS and Long Covid. Consider our rules, particularly this part of Rule 11, before posting: ******* Not good. https://wapo.st/3UEZWaZ Florida surgeon...

NIH's MapMECFS newsletter stated that the clinical data and biospecimens from CDC's Multi-Site Clinical Assessment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (MCAM) study are now available on mapMECFS and searchMECFS. But it requires a request as below, not just an account, to access...

Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them to support a new "home" for "Infection-Associated Chronic Conditions and Illnesses" (IACCIs). Text part of the automated tool: There's another...

Protecting yourself from COVID-19 these days is hard. And it comes at a cost. https://www.marketplace.org/2024/03/20/protecting-yourself-from-covid-19-these-days-is-hard-and-it-comes-at-a-cost/

STAT Inside a push to create an NIH office for post-infection chronic illness When the White House released President Biden’s 2025 budget requests this week, funding for biomedical research was stagnant. The more conservative wishlist from the president acknowledges a reduced appetite in...

From the Los Angeles Times, by Eric Topol: Opinion: The U.S. is facing the biggest COVID wave since Omicron. Why are we still playing make-believe? https://www.latimes.com/opinion/story/2024-01-04/covid-2024-flu-virus-vaccine In case anyone hits a paywall here's an image of the article that...

December 6 press release from the NIH: Home Test to Treat program extends nationwide Program now offers testing, telehealth and treatment for COVID-19 and flu. https://www.nih.gov/news-events/news-releases/home-test-treat-program-extends-nationwide (some line breaks added, bolding mine)...

I'm not sure this has been posted yet (it's dated 17th Nov 2023). https://www.federalregister.gov/documents/2023/11/17/2023-24586/announcement-of-intent-to-establish-federal-advisory-committee-on-long-covid Office of the Assistant Secretary for Health, Office of the Secretary, Department of...

This thread is for a list of sub-national US ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Massachusetts ME/CFS & FM Association - forum thread Minnesota ME/CFS Alliance New Jersey ME/CFS...

Prevalence of Fibromyalgia and Chronic Fatigue Syndrome among Individuals with Irritable Bowel Syndrome: An Analysis of United States National Inpatient Sample Database Abstract: Background and Aim: Irritable bowel syndrome (IBS) is a functional gastrointestinal disorder associated with other...

There's just been an interview of Professor Lisa Sanders, of Diagnosis fame, who is now running the Yale Long Covid Clinic. Sunday 17 September Radio New Zealand - If I remember, I'll add a better link when it is up...

Social Security Administration: Providing Medical Evidence for Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) This 3-page official document is from the US but could be useful for people applying for disability payments in other countries also...

falls at the first hurdle https://www.conciergehealthla.com/post/myalgic-encephalomyelitis-chronic-fatigue-syndrome maybe someone could send him a link to the excellent video on PEM https://www.s4me.info/threads/post-exertional-malaise-in-me-cfs-webinar-for-health-professionals.33887/

ABSTRACT Objective Chronic fatigue syndrome (CFS) is a debilitating illness characterized by persistent fatigue among other symptoms. Pain symptoms are common and included in the diagnostic criteria for CFS but are not required for diagnosis. Despite the association between CFS and pain, few...

Exercise Therapy for Chronic Fatigue Syndrome You Must Know (consumerhealthdigest.com)

NIH awards will fund Post-Treatment Lyme Disease Syndrome research | National Institutes of Health (NIH)

Dr Jacob Teitelbaum comes up a lot in various threads. Podcast: Debunking the Myths of Chronic Fatigue Join Dr. Jacob Teitelbaum, Medical Director of the Fibromyalgia and Fatigue Centers and author of "From Fatigued to Fantastic" as he offers a Chronic Fatigue Syndrome 101...

[wasn't sure where to post this...] Washington Post: Denials of health-insurance claims are rising — and getting weirder Regular link: https://www.washingtonpost.com/opinions/2023/05/17/health-insurance-denial-claims-reasons/ Gift link: https://wapo.st/3OzxkxA