STAT
Inside a push to create an NIH office for post-infection chronic illness
When the White House released President Biden’s 2025 budget requests this week, funding for biomedical research was stagnant. The more conservative wishlist from the president acknowledges a reduced appetite in...
December 6 press release from the NIH:
Home Test to Treat program extends nationwide
Program now offers testing, telehealth and treatment for COVID-19 and flu.
https://www.nih.gov/news-events/news-releases/home-test-treat-program-extends-nationwide
(some line breaks added, bolding mine)...
This thread is for a list of sub-national US ME/CFS and Long Covid organisations.
National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National.
Massachusetts ME/CFS & FM Association - forum thread
Minnesota ME/CFS Alliance
New Jersey ME/CFS...
Prevalence of Fibromyalgia and Chronic Fatigue Syndrome among Individuals with Irritable Bowel Syndrome: An Analysis of United States National Inpatient Sample Database
Abstract:
Background and Aim: Irritable bowel syndrome (IBS) is a functional gastrointestinal disorder associated with other...
There's just been an interview of Professor Lisa Sanders, of Diagnosis fame, who is now running the Yale Long Covid Clinic.
Sunday 17 September Radio New Zealand - If I remember, I'll add a better link when it is up...
Social Security Administration: Providing Medical Evidence for Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
This 3-page official document is from the US but could be useful for people applying for disability payments in other countries also...
falls at the first hurdle
https://www.conciergehealthla.com/post/myalgic-encephalomyelitis-chronic-fatigue-syndrome
maybe someone could send him a link to the excellent video on PEM
https://www.s4me.info/threads/post-exertional-malaise-in-me-cfs-webinar-for-health-professionals.33887/
ABSTRACT
Objective
Chronic fatigue syndrome (CFS) is a debilitating illness characterized by persistent fatigue among other symptoms. Pain symptoms are common and included in the diagnostic criteria for CFS but are not required for diagnosis. Despite the association between CFS and pain, few...
Dr Jacob Teitelbaum comes up a lot in various threads.
Podcast:
Debunking the Myths of Chronic Fatigue
Join Dr. Jacob Teitelbaum, Medical Director of the Fibromyalgia and Fatigue Centers and author of "From Fatigued to Fantastic" as he offers a Chronic Fatigue Syndrome 101...
[wasn't sure where to post this...]
Washington Post: Denials of health-insurance claims are rising — and getting weirder
Regular link: https://www.washingtonpost.com/opinions/2023/05/17/health-insurance-denial-claims-reasons/
Gift link: https://wapo.st/3OzxkxA
Article from the official FTC (Federal Trade Commission) government website:
https://www.ftc.gov/business-guidance/blog/2023/03/ftc-says-online-counseling-service-betterhelp-pushed-people-handing-over-health-information-broke
(line breaks added)
From Solve M.E. - a call to action for Advocacy Week:
"Ask your Members of Congress to support the CARE for Long COVID Act!"
https://p2a.co/Xpr5nVf
This link goes to a form that sends an email to your government officials with one click.
If you like you can modify their sample message before...
Financial Times
US life expectancy is in freefall as the young and the poor bear the brunt of struggles for shared prosperity.
I’m not sure people on my side of the Atlantic fully appreciate quite how much better off the average American is than the average European. A car-wash manager in...
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is common in post-acute sequelae of SARS-CoV-2 infection (PASC): Results from a post-COVID-19 multidisciplinary clinic
Hector Bonilla, Tom Quach, Anushri Tiwari, Andres Bonilla, Mitchell G Miglis, PhillipYang, Lauren Eggert, Husham...
Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: A Workshop to Examine Common, Overlapping Clinical and Biological Factors
The National Academies of Sciences, Engineering, and Medicine
The two-day event will be held June 29 and 30 in Washington DC. You can also attend...
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