usa

https://www.washingtonpost.com/lifestyle/2020/05/08/what-i-learned-watching-my-mom-parent-with-disability/ Brittany Collins, author The mom has ME. May be paywalled.

Chronic Fatigue Syndrome (Systemic Exertion Intolerance Disease; SEID; Myalgic Encephalomyelitis; ME/CFS) By Stephen Gluckman , MD, Perelman School of Medicine at The University of Pennsylvania Last full review/revision Apr 2020| Content last modified Apr 2020 Consumer Version...

Increasing Prevalence of Antinuclear Antibodies in the United States. Dinse GE1, Parks CG2, Weinberg CR3, Co CA1, Wilkerson J1, Zeldin DC4, Chan EKL5, Miller FW6. Author information 1. Clinical and Public Health Sciences, Social & Scientific Systems, Durham, NC, U.S.A. 2. Epidemiology Branch...

2nd Annual EmPOWER M.E. Roundtable: Navigating Public and Private Disability Insurance with ME/CFS We're less than a week away from the 2nd Annual EmPOWER M.E. Roundtable: Navigating Public and Private Disability Insurance with ME/CFS. Since we could not be there in person, we will bring...

Free full text: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2763606

A. Voth, MD, LMCC, FRCP, (Can) Fellow ACP http://www.cpsa.ca/guest-column-the-orphan-patients/ ME/CFS is mentioned specifically I learned about this in the newsletter of the National ME/FM Action Network

Free full text: https://www.nature.com/articles/s41398-020-0741-x

Don't think I've seen this discussed here? Society to Improve Diagnosis in Medicine: https://www.improvediagnosis.org/ Appears to be US based. May be an advocacy opportunity for someone, especially the patient engagement bit? Have only skimmed the site and found no mention of ME...

USA/ Canada classes LDT Applications to Chronic Fatigue Syndrome, Fibromyalgia, MS & Chronic Neuroinflammations (LCFS-FM) I think noto_O https://chiklyinstitute.com/Class/LDT/LCFS-FM https://chiklyinstitute.com/ [also available in Malaysia...

The Solve M.E. group is organizing another ME/CFS Advocacy Week this year for April 19 – 26, 2020. A limited number of folks can get financial aid to help them to make the trip to Washington, DC. You must register to be eligible. The deadline is Friday, February 21. There are a lot of links...

“We need to know what causes one of the most debilitating health conditions, which is ME/CFS. The best way to figure this out is to identify healthy individuals and then observe what occurs when they are infected with something that might be triggering the disease, such as a virus, like...

" CME Information Target Audience and Goal Statement This activity is intended for primary care physicians, pediatricians and other clinicians who manage patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The goal of this activity is to assess physician knowledge of...

" Women's Health Clinical Trials We are currently recruiting women and men for all of the following studies in the Greater Cincinnati (Ohio) area: Fibromyalgia Studies In these studies, we are testing new medications for the treatment of fibromyalgia symptoms in adolescents and adults...

Dear Friends, Throughout 2019, I reported on our advocacy gains for ME/CFS. Thank you for standing with me and our advocacy partners during a particularly turbulent year while we fought for ME/CFS in Washington D.C. Today, with this final FY20 budget update, I’m so happy to report that our...

A program developed to reduce healthcare utilization by "superutilizers" failed to show any effect on healthcare utilization. https://www.nejm.org/doi/full/10.1056/NEJMsa1906848 This may be of interest to readers here because this was a behavioural health approach that involves searching for...

https://denver.cbslocal.com/2020/01/02/electric-scooter-stolen-denver-capitol-hill-neighborhood/ (@Hell..hath..no..fury... have the teletubbies emigrated?)

https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf

This article was originally behind a paywall. full text here: https://www.bmj.com/content/367/bmj.l7064?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage

http://onlinesciencepublishing.com/assets/journal/JOU0022/ART00450/1576732660_AJSSH-2020-5(1)-104-115.pdf

Feel free to like, comment and retweet! She deserves extra thank you especially in this busy time for Senate.