The Solve M.E. group is organizing another ME/CFS Advocacy Week this year for April 19 – 26, 2020.
A limited number of folks can get financial aid to help them to make the trip to Washington, DC. You must register to be eligible. The deadline is Friday, February 21.
There are a lot of links...
“We need to know what causes one of the most debilitating health conditions, which is ME/CFS. The best way to figure this out is to identify healthy individuals and then observe what occurs when they are infected with something that might be triggering the disease, such as a virus, like...
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CME Information
Target Audience and Goal Statement
This activity is intended for primary care physicians, pediatricians and other clinicians who manage patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
The goal of this activity is to assess physician knowledge of...
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Women's Health Clinical Trials
We are currently recruiting women and men for all of the following studies in the Greater Cincinnati (Ohio) area:
Fibromyalgia Studies
In these studies, we are testing new medications for the treatment of fibromyalgia symptoms in adolescents and adults...
Dear Friends,
Throughout 2019, I reported on our advocacy gains for ME/CFS. Thank you for standing with me and our advocacy partners during a particularly turbulent year while we fought for ME/CFS in Washington D.C.
Today, with this final FY20 budget update, I’m so happy to report that our...
A program developed to reduce healthcare utilization by "superutilizers" failed to show any effect on healthcare utilization.
https://www.nejm.org/doi/full/10.1056/NEJMsa1906848
This may be of interest to readers here because this was a behavioural health approach that involves searching for...
https://denver.cbslocal.com/2020/01/02/electric-scooter-stolen-denver-capitol-hill-neighborhood/
(@Hell..hath..no..fury... have the teletubbies emigrated?)
This article was originally behind a paywall.
full text here:
https://www.bmj.com/content/367/bmj.l7064?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage
This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS
Supposed treatments for ME CFS - plus overview by Mayo clinic
https://www.drugs.com/condition/chronic-fatigue-syndrome-cfs.html
Content supplied by Mayo clinic...
https://www.meaction.net/2019/12/05/neurocognitive-research-institute-is-back-in-business-assessing-people-with-me/
In my opinion, it reads like an advert.
More than 40 Colorado schools close after virus outbreak via ABC News (Nov 21, 2019)
When I read these types of news reports of flus and other outbreaks, I wonder how many will recover from the initial illness but left unwell the rest of their life.
National institute of Environmental Health Sciences, Research Triangle Park, NC
https://www.training.nih.gov/postdoc_jobs_nih/view/_31/6990/Methods_in_Statistical_Genetics_and_Bioinformatics
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