usa

  1. ahimsa

    USA: Register now for ME/CFS Advocacy Week and DC Lobby Day 2020

    The Solve M.E. group is organizing another ME/CFS Advocacy Week this year for April 19 – 26, 2020. A limited number of folks can get financial aid to help them to make the trip to Washington, DC. You must register to be eligible. The deadline is Friday, February 21. There are a lot of links...
  2. Kalliope

    DePaul: NIH funds Chicago-based study of chronic fatigue syndrome and mono in college age students

    “We need to know what causes one of the most debilitating health conditions, which is ME/CFS. The best way to figure this out is to identify healthy individuals and then observe what occurs when they are infected with something that might be triggering the disease, such as a virus, like...
  3. Sly Saint

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Test Your Strengths and Gaps in Knowledge Authors: Nancy Klimas, MD

    " CME Information Target Audience and Goal Statement This activity is intended for primary care physicians, pediatricians and other clinicians who manage patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The goal of this activity is to assess physician knowledge of...
  4. Sly Saint

    Still to open University of Cincinatti - Department of Psychiatry and Behavioral Neuroscience

    " Women's Health Clinical Trials We are currently recruiting women and men for all of the following studies in the Greater Cincinnati (Ohio) area: Fibromyalgia Studies In these studies, we are testing new medications for the treatment of fibromyalgia symptoms in adolescents and adults...
  5. Emily Taylor

    Final US Federal Budget Report: Victory! 6 Major Federal Wins for ME/CFS

    Dear Friends, Throughout 2019, I reported on our advocacy gains for ME/CFS. Thank you for standing with me and our advocacy partners during a particularly turbulent year while we fought for ME/CFS in Washington D.C. Today, with this final FY20 budget update, I’m so happy to report that our...
  6. Hoopoe

    Health Care Hotspotting — A Randomized, Controlled Trial (2020) Finkelstein et al

    A program developed to reduce healthcare utilization by "superutilizers" failed to show any effect on healthcare utilization. https://www.nejm.org/doi/full/10.1056/NEJMsa1906848 This may be of interest to readers here because this was a behavioural health approach that involves searching for...
  7. Sly Saint

    Article: Electric Scooter Stolen From Woman Who Struggles With Condition That Impacts Stamina Jan 2020

    https://denver.cbslocal.com/2020/01/02/electric-scooter-stolen-denver-capitol-hill-neighborhood/ (@Hell..hath..no..fury... have the teletubbies emigrated?)
  8. Dolphin

    Open (California, USA) CDC-funded study on children aged 10-17 with ME/CFS

    https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf
  9. Sly Saint

    BMJ Article :Academic publishers urge Trump not to demand open access for federally funded research Dec 2019

    This article was originally behind a paywall. full text here: https://www.bmj.com/content/367/bmj.l7064?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage
  10. Hoopoe

    A Cross-National Comparison of ME and CFS at Tertiary Care Settings from the US and Spain (2019) Castro-Marrero et al

    http://onlinesciencepublishing.com/assets/journal/JOU0022/ART00450/1576732660_AJSSH-2020-5(1)-104-115.pdf
  11. M

    Senator Dianne Feinstein tweeted about ME yesterday!

    Feel free to like, comment and retweet! She deserves extra thank you especially in this busy time for Senate.
  12. Sly Saint

    USA - Mayo clinic

    This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS Supposed treatments for ME CFS - plus overview by Mayo clinic https://www.drugs.com/condition/chronic-fatigue-syndrome-cfs.html Content supplied by Mayo clinic...
  13. Andy

    MEAction: NEUROCOGNITIVE RESEARCH INSTITUTE IS BACK IN BUSINESS, ASSESSING PEOPLE WITH ME!

    https://www.meaction.net/2019/12/05/neurocognitive-research-institute-is-back-in-business-assessing-people-with-me/ In my opinion, it reads like an advert.
  14. J

    Americans dying young at alarming rates, Washington Post

    https://www.washingtonpost.com/health/theres-something-terribly-wrong-americans-are-dying-young-at-alarming-rates/2019/11/25/d88b28ec-0d6a-11ea-8397-a955cd542d00_story.html
  15. Patient4Life

    More than 40 Colorado schools close after virus outbreak via ABC News (Nov 21, 2019)

    More than 40 Colorado schools close after virus outbreak via ABC News (Nov 21, 2019) When I read these types of news reports of flus and other outbreaks, I wonder how many will recover from the initial illness but left unwell the rest of their life.
  16. Sly Saint

    NIH Job advert Nov 2019

    National institute of Environmental Health Sciences, Research Triangle Park, NC https://www.training.nih.gov/postdoc_jobs_nih/view/_31/6990/Methods_in_Statistical_Genetics_and_Bioinformatics
  17. Sly Saint

    US News : Western Wisconsin Residents struggle with chronic illness Nov 2019

    (not posted direct link to article as unsure of copyright/distribution permissions)
  18. Dolphin

    Interview w/ Dr. Ippolytos Kalofonos on gatekeeper role played by U.S. physicians in facilitating vulnerable patients’ access to disability benefits

    https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo005639&aid=10.1056/NEJMp1811661&viewType=Popup&viewClass=Audio&ctype=audiointerview&area=production&query=pfwNGTa&jwd=000020001524&jspc= I haven't listened myself yet
  19. John Mac

    Livestream: Ron Davis to speak at Columbia University

  20. Sly Saint

    Article - UM launches CAR-T clinical trial for patients with myasthenia gravis - Nov 2019

    https://www.news-medical.net/news/20191105/UM-launches-CAR-T-clinical-trial-for-patients-with-myasthenia-gravis.aspx
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