usa

  1. Patient4Life

    USA: Legislation overhauls Maryland medical network's board

    Legislation overhauls Maryland medical network's board ABC News
  2. A

    Open Letter to Secretary Azar and Calls to Action (USA)

    I hope I’m not duplicating a thread - I’ve searched but can’t find anything on this subject. “On April 9, 2019, ME advocates Eileen Holderman and Gabby Klein sent an open letter to the Secretary of the U.S. Department of Health and Human Services (HHS), Alex M. Azar II. “The letter urges...
  3. R

    Project Echo: for ME/CFS

    Does anyone know the status of the proposed ME/CFS Project Echo that was discussed at the June 2018 Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting? The Project Echo model is... Their website: https://echo.unm.edu/ Example condition partner website...
  4. CFS_for_19_years

    Trial By Error: Kaiser Permanente Changes Course

    http://www.virology.ws/2019/03/11/trial-by-error-kaiser-permanente-changes-course/
  5. M

    Michigan State Medical Society CMEs

    Two more CMEs for physicians were released today by the Michigan State Medical Society (MSMS). MSMS is nationally accredited for health care providers across the United States. Both of these CMEs were presented by Cindy Bateman. 1. "Update on Chronic Fatigue Syndrome Part 1: Clinical Diagnostic...
  6. M

    CDC CME for medical providers

    CDC and Medscape released a CME activity for physicians and other healthcare providers. This CME is a discussion moderated by Dr. Bateman, with Drs. Azar, Klimas, and Montoya as panel members https://www.medscape.org/viewarticle/907632?src=acdmpart_cdc I have not looked at this yet. This is...
  7. Andy

    Motivated Reasoning Is Disfiguring Social Science

    A very familiar story. https://quillette.com/2019/02/23/motivated-reasoning-is-disfiguring-social-science/
  8. Forbin

    Kawasaki Disease Outbreak in San Diego

    There's been a small outbreak of Kawasaki disease in San Diego. Usually a disease of young children, it causes inflammation of blood vessels throughout the body and can be fatal if not treated. Kawasaki's is considered rare. Its cause is unknown. In San Diego, sixteen children have come down...
  9. Joh

    Unrest Continuing Medical Education Program (CME/CE)

    From the Unrest website: Watch Unrest and receive CME credit US healthcare providers can now watch Unrest and receive continuing education credits through the American Medical Women’s Association and Indiana University School of Medicine. THE FOLLOWING STEPS WILL TAKE APPROXIMATELY TWO...
  10. MeSci

    A Proposed Rule by the Veterans Affairs Department on 02/05/2019 (US format - UK format 05/02/2019)

    Source: U.S. Federal Register Vol. 84, #24, p 1678-1690 Date: February 5, 2019 URL: https://www.federalregister.gov/documents/2019/02/05/2019-00636/schedule-for-rating-disabilities-infectious-diseases-immune-disorders-and-nutritional-deficiencies...
  11. Andy

    Onset patterns and course of myalgic encephalomyelitis/ chronic fatigue syndrome, 2019, Chu et al

    Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00012/abstract ETA: Change "Paywall" to "Open access"
  12. akrasia

    The $35 billion race to cure a silent killer that affects 30 million Americans

    https://www.cnbc.com/2018/12/21/the-35-billion-race-for-a-cure-for-a-liver-disease-that-affects-millions.html (from later in the article my bold) In spite of the large U.S. patient population at risk, the CDC has not addressed the crisis, and there is no FDA-approved treatment available...
  13. Andy

    Are You a Young Person Affected by ME? How do you Visualize Health Equity? Join a National Contest

    https://www.meaction.net/2019/01/11/are-you-a-young-person-affected-by-me-how-do-you-visualize-health-equity-join-a-national-contest/
  14. Arnie Pye

    The Undiagnosed Diseases Network (a US organisation)

    I don't recall anyone ever mentioning this, and thought I'd draw it to people's attention. You never know, it might be helpful to somebody, someday : https://commonfund.nih.gov/diseases I got the link from this article : Title : When the Illness Is a Mystery, Patients Turn to These...
  15. Sly Saint

    USA Touro Integrative Medicine Symposium - Jan 6 2019

    https://www.gordonmedical.com/event/touro-integrative-medicine-symposium/ eta: don't know anything about this doctor. (still digging). https://www.gordonmedical.com/eric-gordon-md-speaking-on-the-challenge-of-diagnosing-the-complex-chronic-patient/
  16. zzz

    Entire Affordable Care Act (Obamacare) Ruled Unconstitutional

    From the New York Times: Federal Judge in Texas Strikes Down Obama’s Affordable Care Act The judge ruled on the grounds that the mandate requiring people to buy health insurance was unconstitutional and the law could not stand without it. The case will almost certainly make its way to the...
  17. ahimsa

    USA advocacy: Ask Congress to sign letter to HHS - NEW deadline Dec. 12

    I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives. Signature deadline has been extended (again) to Wednesday, December 12 Email text: Here's the link I found on the ME Action website...
  18. W

    Deadline today, Dec 1 (USA): Nomination for Patient Experience Innovation Awards

    it’s towards the end of the day and I just saw this, perhaps there isn’t time and we should keep it in mind for next year. (Assuming it’s a regular thing) https://www.theberylinstitute.org/page/PXInnovationAwards
  19. MeSci

    University of Minnesota ME/CFS Medical Education Event

    Station: University of Minnesota / SMCI / YouTube Date: November 13, 2018 WebTV: Item: Medical education ME/CFS-event at the University of Minnesota On November 7, SMCI in partnership with the Minnesota ME/CFS Alliance co-sponsored a medical education event at the University of Minnesota...
  20. Kalliope

    Solve ME/CFS Initiative and #MEAction lead 10 organizations in request for ME/CFS legislation

    Ten organisations ask congress to create legislation for ME/CFS On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives – Representatives Eshoo (CA18), Lofgren (CA19), McGovern (MA02)...
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