usa

Columbia University: Insights from Metabolites Get Us Closer to a Test for Chronic Fatigue Syndrome A study led by researchers at the Center for Infection and Immunity (CII) at Columbia University’s Mailman School of Public Health has identified a constellation of metabolites related to myalgic...

"Funding is harder to find in general, and the current approach favors low-risk research and proposals by older scientists...." https://mobile.nytimes.com/2018/06/18/upshot/why-the-medical-research-grant-system-could-be-costing-us-great-ideas.html

Merged threads - MEAction are tweeting from the conference. Here's their Twitter thing: https://twitter.com/MEActNet This is some big dysautonomia conference and might be very interesting.

Medicare will become insolvent in 2026, U.S. Government says

https://www.law360.com/articles/1049513/ex-reporter-prevails-in-erisa-suit-against-prudential- (I can't remember Brian's name on the forum...)

WASHINGTON D.C. – The Solve ME/CFS Initiative (SMCI) announced Tuesday that 102 people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and their loved ones rallied together in the largest Capitol Hill action for the disease to date. Advocates from across the country called for...

I thought this was an interesting podcast to listen to from way back in the early 2000s. Specifically, it shows how if people unquestioningly carry out therapies that are based on poor science they can have devastating consequences. I’m sure you could draw parallels with some of the issues we...

Pa. state Rep. Peter Schweyer speaks on House Resolution 854 designating May 12, 2018, as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day” in Pennsylvania.

A new research landscape emerges in America Things are changing in the US for ME/CFS research as four new collaboratives set up and get to work. In September last year, the National Institutes of Health (NIH) announced $35 million of funding to establish three new ME/CFS research...

https://www.everydayhealth.com/multiple-sclerosis/treatment/new-guidelines-ms-treatment-start-treatment-early/

Please go upvote the questions about ME/CFS so they stay visible: (start with www.) reddit.com/r/science/comments/8dn0jo/im_francis_collins_director_of_the_national/

This page is listed as being updated April 2018. Not sure what has been changed but there are some good points in it. https://www.health.ny.gov/diseases/conditions/me-cfs/

Thread for US MillionsMissing Saturday, May 12, 2018 12-1pm #MillionsMissing Visibility Action Lianne B. Hosted by Lianne B. From The Twin Cities ME/CFS Interest Group Hennepin County Government Center 300 South 6th Street · Minneapolis, MN North Plaza, near the fountain by the Hennepin...

https://themighty.com/2017/11/pain-acceptance-patient-response-vox/?utm_source=Facebook&utm_medium=VideoComment "The podcast prompted a backlash from people with chronic pain, who argued that saying a level of chronic pain is “acceptable” essentially abandons chronic pain patients. Rather than...

coverage last month of the NIH changes https://www.nbcnews.com/nightly-news/video/what-doctors-want-you-to-know-about-chronic-fatigue-syndrome-397029955917 looked ok as a report until the end where Natalie Azar their "medical contributor" who is a rheumatologist said that treatments vary and...

Don't know if this is of any interest (copied from email received): Source: U.S. Federal Register Vol. 83, #50, pp 11222 Date: March 14, 2018 URL: https://www.federalregister.gov/documents/2018/03/14/2018-05082/center-for-scientific-review-notice-of-closed-meetings...

Here is a place collecting stories about access (or not) to Medicare home health services in the USA. You can choose who they will anonymously (or not anonymously) share your info with (or have them not share it at all), but they do ask for your name, email, phone number, and ZIP code for...

“NEW YORK (AP) — Five New York City doctors were arrested Friday on charges that they accepted bribes and kickbacks from an Arizona-based pharmaceutical company to prescribe large volumes of a highly addictive painkiller. They pleaded not guilty in Manhattan federal court to an unsealed...

Brian Vastag asked me to post this here as he isn’t on Science 4 ME. Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that I'd reiterate to the community that the study is still recruiting and still needs patients. To volunteer, contact patient coordinator Angelique Gavin...