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School Nurse Net: CDC Awards NASN $ 1,2 Million Contract

Discussion in 'General ME/CFS News' started by Kalliope, Oct 4, 2018.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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    This article was published 9 days ago, but I just discovered it via a tweet from OMF. My apologies if this has already been posted.

    School Nurse Net: CDC Awards NASN $1,3 Million Contract
    September 24, 2018 (Silver Spring, MD) – The Centers for Disease Control and Prevention (CDC) has awarded the National Association of School Nurses (NASN) a $1.3 million three-year contract to educate and support the school nurse workforce so that they can conduct national active surveillance among U.S. school children for chronic conditions, including myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and characterize the association of these chronic conditions with chronic school absenteeism and school withdrawal.
     
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  2. Kalliope

    Kalliope Senior Member (Voting Rights)

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    A surveillance among pupils with ME was done by Tymes Trust in England in the 1990's, and last year in Norway (by initiative from the prime minister). Both concluded that ME was the main cause of school absence due to long term illness.

    Anyone know if other countries have done something similar?
     
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  3. JaimeS

    JaimeS Senior Member (Voting Rights)

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    Pretty sure no, so this is a first in the US.
     
  4. JaimeS

    JaimeS Senior Member (Voting Rights)

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    I have not been able to find anything from Norway. Do you have a link?
     
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  5. WillowJ

    WillowJ Senior Member (Voting Rights)

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    I’m happy they’re looking for the teen peak, but do we know whether NASN or University of Minnesota knows anything about how to diagnose and support M.E. patients?

    Are they working with OMF or people from ME Action?
     
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  6. WillowJ

    WillowJ Senior Member (Voting Rights)

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  7. JaimeS

    JaimeS Senior Member (Voting Rights)

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    @WillowJ I mean something saying it's the lead cause of school absence in Norway. I haven't seen anything like that...
     
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  8. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Huh, this might be an inaccurate statement from me ..

    I can't find a quote or source relating to the survey which clearly states that ME is the main cause of school absence in Norway due to long term illness.

    The survey says 270 pupils with ME are absent from school for over three months, but that the actual number might larger, even double. But as long as it's not compared with other diagnoses, we're none the wiser.. I wonder if proper overviews of this even exists..

    So we don't really have a clear number, or anything to compare it with.

    In other words I stand corrected.
     
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  9. WillowJ

    WillowJ Senior Member (Voting Rights)

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    The news article I cited at the end of post #6 gave the 270 number, spoke about how the real number could be larger, and also gave the other numbers:

    “In total there were 1,877 absent students for more than three months in the previous school year. A total of 735 had other diagnosis than ME and 873 had unknown diagnosis.”
     
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  10. JaimeS

    JaimeS Senior Member (Voting Rights)

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    Thank you very much, Kalliope and Willow!
     
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