1. The 'News In Brief' post for w/c 8th October is now available Guest, click here.
    Dismiss Notice

Medscape: "New Clinical Practice Guidelines, August 2018 Edition"

Discussion in 'General ME/CFS News' started by ahimsa, Aug 9, 2018.

  1. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    386
    Likes Received:
    3,174
    Location:
    Oregon, USA
    I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure.
    Full article (may require Medscape registration/login) - https://reference.medscape.com/viewarticle/900291_5
     
    Joh, MEMarge, ladycatlover and 12 others like this.
  2. Hutan

    Hutan Moderator Staff Member

    Messages:
    2,328
    Likes Received:
    10,077
    There's quite a bit to like in this brief guideline.


    I'm not sure what happened to the last paragraph though - it seems to have been cut off mid-word.
     
  3. Webdog

    Webdog Senior Member (Voting Rights)

    Messages:
    1,228
    Likes Received:
    7,907
    Location:
    California
    You'd think with 7 authors, someone would have noticed. ;)

    Agreed it's a very nice summary. Hopefully they will fix the cut-off ending. I'd like to share this with some doctors when it's corrected.

    I sent quick notes to WebMD (ETA: and Medscape) editors. If they don't respond, I will send notes to the authors.

    Edit: Still no response from editorial, so I will start contacting the 7 authors one by one until I get a response.
     
    Last edited: Aug 10, 2018
  4. Trish

    Trish Moderator Staff Member

    Messages:
    6,941
    Likes Received:
    41,258
    Location:
    UK
    It starts very well, then vanishes mid word (strategies to ma...) at the crucial point of what I assume is 'strategies to manage ...'. So does it advise pacing, rest, activity management, GET??? Or is it just going to leave us with a vague 'manage symptoms' without saying how?
     
  5. Webdog

    Webdog Senior Member (Voting Rights)

    Messages:
    1,228
    Likes Received:
    7,907
    Location:
    California
    Just spoke on the phone with one of the listed article authors (turns out he's an editor), Brian Feinberg. Brian said he would take care of getting it fixed and send me an email when it's done.
     
    Last edited: Aug 10, 2018
  6. Webdog

    Webdog Senior Member (Voting Rights)

    Messages:
    1,228
    Likes Received:
    7,907
    Location:
    California
    Looks like the article has been fixed. The final sentence now reads: "Each patient’s program typically includes a combination of therapies to address symptoms, techniques to help patients cope, and strategies to manage daily activities."
     
  7. Andy

    Andy Committee Member

    Messages:
    3,764
    Likes Received:
    28,331
    Location:
    Hampshire, UK
    I understand you may prefer not to but Medscape logins can be had by anyone, it's a free sign-up.
     
    Joh, rvallee, adambeyoncelowe and 2 others like this.
  8. Andy

    Andy Committee Member

    Messages:
    3,764
    Likes Received:
    28,331
    Location:
    Hampshire, UK
  9. Andy

    Andy Committee Member

    Messages:
    3,764
    Likes Received:
    28,331
    Location:
    Hampshire, UK
    Selected excerpts from the CFS series of pages
    Under Epidemiology
    Quoting this bit in full as it's less good
    References are
    14 - Longitudinal follow-up of employment status in patients with chronic fatigue syndrome after mononucleosis, 2014, Nyland et al, https://bmjopen.bmj.com/content/4/11/e005798
    15 & 16 - The prognosis of chronic fatigue and chronic fatigue syndrome: a systematic review., 1997, Joyce J; Hotopf M; Wessely S, https://reference.medscape.com/medline/abstract/9093600

    All pages say they were updated Aug 9th 2018. Apart from the couple of uses of CSF when CFS is meant, and the prognosis bit, my scan through tells me that otherwise it's pretty much as we would want it at the moment.
     
    Joh, adambeyoncelowe, Trish and 3 others like this.
  10. Keela Too

    Keela Too Senior Member (Voting Rights)

    Messages:
    556
    Likes Received:
    5,381
    Location:
    Sally Burch - Northern Ireland
    Sure a load of stakeholders said GET should go, but NICE themselves haven’t yet changed their recommendation for GET. Sadly.
     

Share This Page