usa

Here's a relatively easy advocacy action for patients in the USA: Ask your health care professional to watch Unrest online and get continuing education credit. What I did was print out some flyers (found here https://www.meaction.net/wp-content/uploads/2018/10/Doctor-flyer.pdf ) and then gave...

There have been many discussions on NIH funding, and in particular the new funds dedicated to the new collaborative centers, as well as the see-saw of funding increases and decreases. Especially since this is basically the only actual significant source of funding we know of that is supposed to...

I'm glad to see Dave back in the USA after working so much opposing so many problems across the pond.

Per Fink in New York Someone uninformed or stupid or maybe both decided to invite Danish physician Per Fink to present at a conference on so-called psychosomatic medicine being held this weekend at Columbia University

Don't ask me anything about this - am just forwarding, and don't know any more! Source: U.S. Federal Register Vol. 83, #199, p 51964-51965 Date: October 15, 2018 URL: https://www.federalregister.gov/documents/2018/10/15/2018-22318/center-for-scientific-review-notice-of-closed-meetings...

This article was published 9 days ago, but I just discovered it via a tweet from OMF. My apologies if this has already been posted. School Nurse Net: CDC Awards NASN $1,3 Million Contract September 24, 2018 (Silver Spring, MD) – The Centers for Disease Control and Prevention (CDC) has awarded...

This thread has been split from the Stanford Community Symposium 2018 thread. Ron Tompkins new Harvard based group have been engaging with U.K. biomedical researchers at Birmingham and Nottingham and are looking at putting in for MRC funding Didn’t catch names but I think they were on his slides.

from Gabby Kleins blog: "A meeting took place on September 11 and 12, 2018 by the ICD-10 Coordination and Maintenance Committee. On September 12, Donna Pickett discussed a proposal for “chronic fatigue syndrome”. Dr. Lily Chu of the IACFS/ME called in with her approval of NCHS/CDC’s proposal...

"Based on new draft guidance it seems that the FDA and NIH are teaming up in a big new way to punish those who are non-compliant with the Clinicaltrials.gov-related regulations and laws, including potentially with large fines. What do sponsors of specific listings do that’s so bad? There are a...

From the program: Bodily Distress Syndrome or Functional Somatic Syndromes: How to diagnose and treat Per Fink, MD, Dr.Med.Sc., PhD Aarhus University Hospital, Denmark How to Treat Functional Disorders in Primary Care and General Medical Hospitals: A brief introduction to a training program...

Perhaps of interest to somebody Found by Dr. Marc-Alexander Fluks

Moderator note: This thread combines all threads on the CFSAC closure to save confusion and duplicate discussions. It includes links to information and calls for action from Solve, #MEAction and Jennie Spotila's Occupy ME blog. The US CFSAC operates under a charter which was up for renewal...

#MEAction: NIH Update: Collins Will Meet With #MEAction Representatives! The persistent dedication of our community to fight for our lives continues to yield results. We are pleased to announce #MEAction has secured a meeting with Dr. Francis Collins, Director of the National Institutes of...

Source: Journal of the American Medical Association (JAMA) Vol 320, #8, p 750 Date: August 28, 2018 URL: https://jamanetwork.com/journals/jama/article-abstract/2698504 Chronic Fatigue Care -------------------- Bridget Kuehn, MSJ A new CDC website aims to improve the diagnosis and care of...

Speech she gave on May 12, 2018, at the Washington, DC Millions Missing Rally, with a few details added. ".......Prior to my ME diagnosis, I worked in healthcare for a decade as a healthcare social worker. I was a hospital trauma social worker, a case manager at a clinic for people with...

https://www.emeraldinsight.com/doi/pdfplus/10.1108/LM-10-2017-0101

Recall Alert: FDA Warning About Two Thyroid Medications August 15, 2018 at 1:00 pm PITTSBURGH (KDKA) — The Food and Drug Administration has a new warning and recall about two thyroid medications made by a Chinese manufacturer. The FDA has issued a voluntary recall for the medications because...

I don't know any more about this - just copied from an incoming post: Title: The American Psychiatric Association Publishing Textbook of Psychosomatic Medicine and Consultation-Liaison Psychiatry, Third Edition Chapter: 25. Chronic Fatigue and Fibromyalgia Syndromes Authors: Michael C. Sharpe...

I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure. Full article (may require Medscape registration/login) - https://reference.medscape.com/viewarticle/900291_5

CDC Page for ME/CFS Take a look around each page. How does it look to everyone?