usa

I don't recall anyone ever mentioning this, and thought I'd draw it to people's attention. You never know, it might be helpful to somebody, someday : https://commonfund.nih.gov/diseases I got the link from this article : Title : When the Illness Is a Mystery, Patients Turn to These...

https://www.gordonmedical.com/event/touro-integrative-medicine-symposium/ eta: don't know anything about this doctor. (still digging). https://www.gordonmedical.com/eric-gordon-md-speaking-on-the-challenge-of-diagnosing-the-complex-chronic-patient/

From the New York Times: Federal Judge in Texas Strikes Down Obama’s Affordable Care Act The judge ruled on the grounds that the mandate requiring people to buy health insurance was unconstitutional and the law could not stand without it. The case will almost certainly make its way to the...

I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives. Signature deadline has been extended (again) to Wednesday, December 12 Email text: Here's the link I found on the ME Action website...

it’s towards the end of the day and I just saw this, perhaps there isn’t time and we should keep it in mind for next year. (Assuming it’s a regular thing) https://www.theberylinstitute.org/page/PXInnovationAwards

Station: University of Minnesota / SMCI / YouTube Date: November 13, 2018 WebTV: Item: Medical education ME/CFS-event at the University of Minnesota On November 7, SMCI in partnership with the Minnesota ME/CFS Alliance co-sponsored a medical education event at the University of Minnesota...

Ten organisations ask congress to create legislation for ME/CFS On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives – Representatives Eshoo (CA18), Lofgren (CA19), McGovern (MA02)...

Here's a relatively easy advocacy action for patients in the USA: Ask your health care professional to watch Unrest online and get continuing education credit. What I did was print out some flyers (found here https://www.meaction.net/wp-content/uploads/2018/10/Doctor-flyer.pdf ) and then gave...

There have been many discussions on NIH funding, and in particular the new funds dedicated to the new collaborative centers, as well as the see-saw of funding increases and decreases. Especially since this is basically the only actual significant source of funding we know of that is supposed to...

I'm glad to see Dave back in the USA after working so much opposing so many problems across the pond.

Per Fink in New York Someone uninformed or stupid or maybe both decided to invite Danish physician Per Fink to present at a conference on so-called psychosomatic medicine being held this weekend at Columbia University

Don't ask me anything about this - am just forwarding, and don't know any more! Source: U.S. Federal Register Vol. 83, #199, p 51964-51965 Date: October 15, 2018 URL: https://www.federalregister.gov/documents/2018/10/15/2018-22318/center-for-scientific-review-notice-of-closed-meetings...

This article was published 9 days ago, but I just discovered it via a tweet from OMF. My apologies if this has already been posted. School Nurse Net: CDC Awards NASN $1,3 Million Contract September 24, 2018 (Silver Spring, MD) – The Centers for Disease Control and Prevention (CDC) has awarded...

This thread has been split from the Stanford Community Symposium 2018 thread. Ron Tompkins new Harvard based group have been engaging with U.K. biomedical researchers at Birmingham and Nottingham and are looking at putting in for MRC funding Didn’t catch names but I think they were on his slides.

from Gabby Kleins blog: "A meeting took place on September 11 and 12, 2018 by the ICD-10 Coordination and Maintenance Committee. On September 12, Donna Pickett discussed a proposal for “chronic fatigue syndrome”. Dr. Lily Chu of the IACFS/ME called in with her approval of NCHS/CDC’s proposal...

"Based on new draft guidance it seems that the FDA and NIH are teaming up in a big new way to punish those who are non-compliant with the Clinicaltrials.gov-related regulations and laws, including potentially with large fines. What do sponsors of specific listings do that’s so bad? There are a...

From the program: Bodily Distress Syndrome or Functional Somatic Syndromes: How to diagnose and treat Per Fink, MD, Dr.Med.Sc., PhD Aarhus University Hospital, Denmark How to Treat Functional Disorders in Primary Care and General Medical Hospitals: A brief introduction to a training program...

Perhaps of interest to somebody Found by Dr. Marc-Alexander Fluks

Moderator note: This thread combines all threads on the CFSAC closure to save confusion and duplicate discussions. It includes links to information and calls for action from Solve, #MEAction and Jennie Spotila's Occupy ME blog. The US CFSAC operates under a charter which was up for renewal...

#MEAction: NIH Update: Collins Will Meet With #MEAction Representatives! The persistent dedication of our community to fight for our lives continues to yield results. We are pleased to announce #MEAction has secured a meeting with Dr. Francis Collins, Director of the National Institutes of...