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Project Echo: for ME/CFS

Discussion in 'General ME/CFS news' started by RoseE, Apr 6, 2019.

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  1. RoseE

    RoseE Senior Member (Voting Rights)

    Messages:
    341
    Does anyone know the status of the proposed ME/CFS Project Echo that was discussed at the June 2018 Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting?

    The Project Echo model is...
    Their website: https://echo.unm.edu/

    Example condition partner website: http://www.ehlers-danlos.com/echo/?...5IZHqteW_7ZTItFwSXB54ugSONI8h_Z2c2oPpQepomMpk
     
    RoseE, Apr 6, 2019
    #1
    Roy S, andypants, ME/CFS Skeptic and 2 others like this.
  2. Webdog

    Webdog Senior Member (Voting Rights)

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    Webdog, Apr 7, 2019
    #2
    Andy likes this.
  3. Medfeb

    Medfeb Senior Member (Voting Rights)

    Messages:
    565
    @RoseE - that committee went away when CFSAC was disbanded. But the clinicians at the US MECFS Clinician Summit/Coalition have been discussing it and US advocates pushed for funding for it on Lobby Day last week
     
    Medfeb, Apr 7, 2019
    #3
    TiredSam, Roy S, andypants and 5 others like this.

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