Writing for some advice/guidance on pursuing an appeal of a rejected FOIA request for information on the dissolution of the Chronic Fatigue...
Does anyone know the status of the proposed ME/CFS Project Echo that was discussed at the June 2018 Chronic Fatigue Syndrome Advisory Committee...
Congress to HHS: What's replacing CFSAC? ME/CFS must be represented! On September 6, the Secretary of Health and Human Services disbanded the...
Moderator note: This thread combines all threads on the CFSAC closure to save confusion and duplicate discussions. It includes links to...
(Don't ask me anything - I just got this in my Inbox!) Report CFSAC 21-22 june 2018,...
Mother Shares Heartbreaking Testimony about Sons with Severe ME This mother has participated in CFSAC meetings more than 20 times in an effort to...
I delivered these comments via telephone today at the CFS Advisory Committee meeting: My name is Jennifer Spotila. I will soon begin my 25th year...
Source: U.S. Federal Register Vol. 83, #90, pp 21300 Date: May 9, 2018 URL:...
Carol Head is applying for a voting member position on CFSAC and posted a Twitter message that we can sign the letter through a form on their...
https://twitter.com/TomKindlon/status/967444649790058496 [MEDIA]
https://www.meaction.net/2018/01/15/the-public-testifies-about-me [MEDIA] [MEDIA] [MEDIA] [MEDIA]
Day one, part one is linked below and is the first video in the playlist covering the two day meeting. [MEDIA]
Edit: Deadline for registering to submit a comment is Monday, 27 Nov. https://twitter.com/TomKindlon/status/934257699763695618 [MEDIA] The...
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