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cfsac

  1. Andy
    Thread

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    Congress to HHS: What's replacing CFSAC? ME/CFS must be represented! On September 6, the Secretary of Health and Human Services disbanded the...
    Thread by: Andy, Dec 4, 2018, 8 replies, in forum: Advocacy Action Alerts
  2. Medfeb
    Thread

    CFSAC charter has not been renewed. Solve, #MEAction and Occupy ME all call for action.

    Moderator note: This thread combines all threads on the CFSAC closure to save confusion and duplicate discussions. It includes links to...
    Thread by: Medfeb, Sep 6, 2018, 23 replies, in forum: Advocacy Action Alerts
  3. Andy
    Thread

    MEAction: Testimonies to June 2018 CFSAC meeting

    Mother Shares Heartbreaking Testimony about Sons with Severe ME This mother has participated in CFSAC meetings more than 20 times in an effort to...
    Thread by: Andy, Jun 26, 2018, 2 replies, in forum: General ME/CFS News
  4. Andy
    Thread

    Blog: Occupy ME: Public Comment on Engaging People with ME

    I delivered these comments via telephone today at the CFS Advisory Committee meeting: My name is Jennifer Spotila. I will soon begin my 25th year...
    Thread by: Andy, Jun 21, 2018, 1 replies, in forum: General ME/CFS News
  5. Melanie
    Thread

    I support Carol Head for CFSAC! - Solve ME/CFS Initiative

    Carol Head is applying for a voting member position on CFSAC and posted a Twitter message that we can sign the letter through a form on their...
    Thread by: Melanie, Apr 20, 2018, 2 replies, in forum: Advocacy Projects and Campaigns
  6. Sasha
    Thread

    20/21 June 2018 | Next CFSAC meeting (webinar)

    https://twitter.com/TomKindlon/status/967444649790058496 [MEDIA]
    Thread by: Sasha, Feb 25, 2018, 18 replies, in forum: General ME/CFS News
  7. Andy
    Thread

    US Chronic Fatigue Syndrome Advisory Committee meeting December 2017 YouTube playlist

    Day one, part one is linked below and is the first video in the playlist covering the two day meeting. [MEDIA]
    Thread by: Andy, Dec 19, 2017, 5 replies, in forum: General ME/CFS News
  8. Sasha
    Thread

    Dec 13-14, 2017 | US Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting

    Edit: Deadline for registering to submit a comment is Monday, 27 Nov. https://twitter.com/TomKindlon/status/934257699763695618 [MEDIA] The...
    Thread by: Sasha, Nov 25, 2017, 25 replies, in forum: General ME/CFS News
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