Discussion in 'General ME/CFS News' started by CFS_for_19_years, Mar 12, 2019.
@Webdog Hooray for you and all your effort!
Came here to say this
All hail @Webdog
ME/CFS patients with Kaiser Permanente deserve much better than they have been offered in the past. They need real hope that their care will improve, and better support from educated doctors.
Roughly 100 million in the US belong to managed healthcare, and ME/CFS care is almost universally abysmal. Hopefully other HMOs are watching Kaiser Permanente change direction on ME/CFS.
Though i think we need to train an army to do what you did here and "educate" every other health care company. From reading your various threads it was a lot of work on your part and a great deal of persistence
Well done @Webdog Any chance you can bring up the subject of skyping death prognoses? Can't help but feel for that poor family in CA. (Just kidding, of course. Still, a jaw-dropping incident)
Couldn't have come at a better time!
Wow! All hail @Webdog indeed!
There's just paragraph after paragraph of amazing statements from Dr. Olson in that article, such as...
Fantastic, @Webdog. I know how much this took. Thank you for being so persistent
Webdog for Prez!
Oh say can you see
by the dawn's early light,
our furry little friend
with the great big sharp bite!
"How did we remain ignorant for so long?"
Whatever the final explanation for that is, it will gave to include the word 'wilful' in it.
That KP basically did not change position because nobody deeply investigated the topic is a pointer to how at least some other providers might change if we can get someone interested enough to look deeply at the science.
Its a lot more complicated then that, from the posts by @Webdog it took a lot of back and forth and convincing to get to here.
This whole section rings in my head as exactly what I realised when first introduced to ME by IiME. The first paragraph is as important as the second I think.
The universe of patients that complain of fatigue is large. When you see them, you look for hypothyroidism, you look for mononucleosis, and so on, and when you don’t find anything, you do find a lot of people with a mental health condition, such as depression. But the percentage of people in that universe that actually have ME/CFS is small. People with ME/CFS are different though, and would say, ‘If I do something, I’m just wiped out.’
So there is this group of patients that we now understand has an objective illness that is not psychiatric—whether it’s metabolic, neurological, or whatever. And what fascinates me is that this condition has been so mismanaged throughout medicine. What’s the sociology behind this? How did we remain ignorant for so long? We have made well-meaning recommendations that were harmful. I can say that—that’s the truth. There is no evidence that this is a primary psychiatric illness, and it’s not related to deconditioning at all. And so the treatments we have been advising aren’t the appropriate treatments.
@Webdog is a super hero! Great job!
So nice to hear this.
Indeed, a huge contrast to what the PACErs claim about us.
You would think we had multiple personalities on the same topic...
Separate names with a comma.