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united kingdom

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Thread
UK - Nominate someone for an honour or award (honours list)

Overview The honours system recognises people who have: made achievements in public life committed themselves to serving and helping Britain...

Thread by: Sly Saint, Dec 2, 2019, 3 replies, in forum: Advocacy Projects and Campaigns
Thread
UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and 11th March 2020

Early bird tickets are now available for the 2020 UK CFS/M.E. Research Collaborative conference, which takes place in Bristol on Tuesday 10 and...

Thread by: Andy, Oct 21, 2019, 160 replies, in forum: General ME/CFS News
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Your experience of ME services - #MEAction UK survey report concludes services 'not fit for purpose'

Your experience of ME services - Survey report by #MEAction UK Article:...

Thread by: Gecko, Oct 17, 2019, 42 replies, in forum: General ME/CFS News
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UK Westminster Hall debate on Electromagnetic Fields: Health Effects (25 June 2019)

Tonia Antoniazzi Labour, Gower 4:35 pm, 25th June 2019 I beg to move, That this House has considered the health-related effects of...

Thread by: Sly Saint, Jun 26, 2019, 3 replies, in forum: Health News and Research unrelated to ME/CFS
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Questionnaire to see what different people in the community Hope from the UK MRC

please can people comment on the reasons why if they wish I’m trying to see what the views are and why on this matter Basically the MRC are in...

Thread by: Cinders66, Jun 10, 2019, 15 replies, in forum: Fundraising
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Mirror: Woman, 28, goes from keen runner to year in dark room because of severe disorder

Woman, 28, goes from keen runner to year in dark room because of severe disorder Jonathan admits he has seen his beloved fiancée’s character...

Thread by: Kalliope, May 1, 2019, 28 replies, in forum: General ME/CFS News
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BBC1 Doctors 17 April 2019 Storyline about PIP (UK benefit)

Warning - this may be a programme that is upsetting for PIP claimants, or those awaiting a PIP assessment. On the other hand, it at least shows...

Thread by: ladycatlover, Apr 17, 2019, 1 replies, in forum: Work, Finances and Disability Insurance
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Don't merge the assessments for PIP and ESA - April 2019

UK Gov petition (ie at 10,000 Govt will respond) In a speech on 5/3/19, Work & Pensions Secretary Amber Rudd announced plans to merge assessments...

Thread by: Sly Saint, Apr 11, 2019, 10 replies, in forum: Petitions
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MUS services in UK and other MUS related issues

As increasingly pw ME/CFS are being referred through IAPT for treatment as MUS I thought I'd set up a separate thread from the ME/CFS Services in...

Thread by: Sly Saint, Feb 24, 2019, 149 replies, in forum: General ME/CFS News
Thread
MYRIAD - My Resilience in Adolescence project UK

MYRIAD is a research project. We are interested in how schools promote young people’s wellbeing and resilience (the ability to adapt in the face...

Thread by: Sly Saint, Feb 19, 2019, 8 replies, in forum: Health News and Research unrelated to ME/CFS
Thread
Academy of Medical Sciences - UK

I had not heard of this 'charity' before. Who we are We are the independent body in the UK representing the diversity of medical science. Our...

Thread by: Sly Saint, Feb 8, 2019, 2 replies, in forum: General Advocacy Discussions
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METRIC (UK) Royal College of GPs' online course on ME/CFS

[MEDIA] [MEDIA]

Thread by: Tom Kindlon, Jan 25, 2019, 70 replies, in forum: Advocacy Projects and Campaigns
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Advice RE claiming UK benefits, paying NI contributions

Hi all, Looking for some advice given it's possible I may have to go down the route of claiming benefits. First a little about me: I'm a single...

Thread by: InitialConditions, Jan 15, 2019, 25 replies, in forum: Work, Finances and Disability Insurance
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UK CMRC Conference 2016 - Video of Esther Crawley's lecture

[MEDIA] @1:55 Esther Crawley says "...there's good evidence for CBT in paediatric CFS". What evidence is she referring to? Also why are the...

Thread by: DigitalDrifter, Nov 24, 2018, 0 replies, in forum: PsychoSocial ME/CFS News
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Woman's fight to stop disabled people having to travel for benefit assessments - UK petition

" A disabled woman from Thamesmead has started a petition to stop people on benefits having to travel so far for assessments. Claudette Lawrence,...

Thread by: Sly Saint, Nov 1, 2018, 10 replies, in forum: Petitions
Thread
Is IVIG treatment possible in the UK?

If so, how to get it and from whom?

Thread by: veganmua, Oct 18, 2018, 2 replies, in forum: Antivirals, Antibiotics and Immune Modulators
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NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

Just spotted this on ME Research UK's Facebook page. [The current committee member list can be found on this page,...

Thread by: Andy, Oct 16, 2018, 784 replies, in forum: General ME/CFS News
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NICE guidelines: Final scope and equality impact assessment published

Just received notice that NICE have published their final scope for their review of the diagnosis and management guidelines. Final scope can be...

Thread by: Andy, Oct 16, 2018, 60 replies, in forum: General ME/CFS News
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Neurophysiology of pain in ME and FM - unpublished study by White and Bourke - CFS research Foundation/AfME

This thread has been split from a thread about a new study: UK: Brighton and Sussex University Hospital and Medical School - Chronic Pain and...

Thread by: obeat, Oct 7, 2018, 15 replies, in forum: BioMedical ME/CFS Research
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UK state benefits and pensions discussion

Moderator note: This post and subsequent posts have been moved from this thread: David Tuller: Trial By Error: The Cochrane Controversy I wasn't...

Thread by: Barry, Sep 10, 2018, 14 replies, in forum: Work, Finances and Disability Insurance

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