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United Kingdom: Humber CFS service

Discussion in 'UK clinics and doctors' started by Sly Saint, Jun 29, 2022.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    8,299
    Location:
    UK
    Humber teaching hospital
    service is under Adult Mental Health Services
    Chronic Fatigue Syndrome Service (CFS)
    The Team provides a multi-disciplinary service for adult patients with a diagnosis of Chronic Fatigue Syndrome (CFS).


    No mention of ME anywhere, nor the NICE guidelines.

    https://www.humber.nhs.uk/Services/chronic-fatigue-syndrome-service-cfs.htm
     
    Missense, Amw66, RedFox and 9 others like this.
  2. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    10,204
    Location:
    Canada
    They keep saying it's evidence-based even after the evidence base has been debunked and invalidated as a recommendation.

    They are doing the equivalent of homeopaths saying "we treat cancer with homeopathic remedies", which is a true statement regardless of whether they are effective. They are using it, it's true. There is evidence for this, it's true. All of it bad and unreliable, misleading, even.

    So really evidence-based is more of a mantra, like a company with a slogan that says "we do quality", as if any company would ever have a slogan that says something like "we're really bad at this, we only build crap!".
     
    RedFox, Simbindi, bobbler and 7 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    8,299
    Location:
    UK
  4. RedFox

    RedFox Senior Member (Voting Rights)

    Messages:
    648
    Location:
    Pennsylvania
    It absolutely is. There's degrees of evidence, you know. The studies recommending GET are (at best) collections of anecdotes. The sources recommending against CBT/GET or claiming ME is a real illness are clinicial practice guidelines, generally accepted as the strongest form of medical evidence.
     
  5. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    5,289
    Location:
    Australia
    This service does not take the view that CFS is ‘all in the mind’, not do we believe that patients are mentally ill. However evidence suggests that, as with many long term physical conditions, there may be psychological or social issues which can predispose trigger or perpetuate CFS.

    The more things change, the more they stay the same.
     
  6. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    2,703
    Please also send these sort of things to Charles at the MEA, if he doesn't have the info already. He's good at reaching out and putting their responses into the public domain.

    Thanks for this. Another one to watch.
     
    MEMarge, Lilas, Sean and 4 others like this.

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