UK: ME Local Network

"The ME Local Network (MELN) has been created and is being steered by local ME support groups across the UK, [...]. The aims of this network include strengthening mutual help between local support groups, sharing information and best practice, ensuring the grassroots voice is heard and feeding back to national charities and organisations."

Source: https://www.sheffieldmegroup.co.uk/post/2-short-surveys-to-help-influence-change


Aims of the ME Local Network.

https://docs.google.com/document/d/1JaAv9up0je7SFajz_oyjeegiKwTRzCm_r-8W4sSEchg/

 

"2 short surveys to help influence change

Your experience of claiming or renewing PIP in 2019-2022

Have you applied or started a renewal since October 2019? We'd like your opinion on how well or badly the DWP and its assessors are handling the process, so we can feed back and try to influence change through our network's campaigning work. The more responses we get, the stronger the impact!


Complete the short survey here or click the button below [button is on the original page, linked below]. Closing date 28th February 2022.


Contacting your MP

Have you been in touch with your MP about specific issues to the ME community? Please let us know about your experience, as it will help us build a record of who has been contacted and who is yet to contact.


Complete the short survey here or click the button below [button is on the original page, linked below]. Closing date 28th February 2022."

Original page, https://www.sheffieldmegroup.co.uk/post/2-short-surveys-to-help-influence-change

 

If any other ME/Fibro groups wish to join the discussions, please email

ME Local Network: melocalnetwork@gmail.com

 

Merged thread

PIP Survey from MELN (ME Local Network) : MEA

"The MEA is part of the MELN – a network of representatives of local support groups who are conducting a survey on PIP renewal problems. Below is an outline of the aims of the group together with links to the survey."

https://meassociation.org.uk/2022/07/pip-survey-from-meln/