united kingdom

Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians, and healthcare services. The threat of long COVID remains ignored by Governments, the media and public health messaging, and patients’ experiences must...

https://www.bmj.com/content/382/bmj.p1983

https://www.elft.nhs.uk/medically-unexplained-symptoms-bodily-distress-disorder

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

ONS Health state life expectancies, UK: 2018 to 2020 1. Main Points Healthy life expectancy (HLE) at birth in the UK showed no significant change between 2015 to 2017 and 2018 to 2020. In Scotland, there was a statistically significant decrease of more than a year in male HLE at birth...

The Kings Fund How does the NHS compare to the health care systems of other countries ? Siva Anandaciva *Comparing the health care systems of different countries can help politicians and policy‑makers assess how the UK health care system is performing and where it could improve. *For...

Institute for Government "This report – written jointly report by the Institute for Government and Public First, and funded by the Health Foundation – assesses why NHS hospitals are failing to deliver higher activity despite higher spending on the service and higher levels of staffing over the...

This thread has been created by merging threads and copying posts form UK news S4ME and the UK Covid Inquiry I'm still not spending much time online unfortunately so this may have been discussed elsewhere. Apologies if it has. As those of us in the UK are aware the Covid Inquiry is just...

Updated 2nd May 2023. "Apply for funding to research myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). You can get the funding through any: grants from MRC research boards MRC fellowships We would particularly welcome proposals within MRC remit that address 1 or...

I saw this post by @MEFoggyDog on Mastodon so I thought I'd share. This same hashtag - #MPDoYourJobForME - is also being used on twitter so you can search for it there. I did not watch the whole video, but the title of the document linked in the post is: Politician's Guide: How To Advocate...

Does anyone know when the old GP training video from Kings with Chalder/Gerada was published? Or any ideas how I could find out. The earliest I could find was this from 2002 https://web.archive.org/web/20021124114432/http://www.iop.kcl.ac.uk/Main/Publications/videos.html @Dolphin Thanks

updated Feb 9 2023 All the leaflets (all using CFS/ME) appear to have been modified since the new guidelines although the content looks pretty much as before. eg. Boom and Bust I don't recognise this pattern, particularly with relation to sleep. For me the worsening in sleep...

Split from the 2021-2 thread From today’s Politico newsletter: Shadow Work and Pensions Secretary Jonathan Ashworth will deliver a speech to the Center for Social Justice think tank this morning, pledging reforms to out-of-work support. The Labour plans involve allowing people on sickness...

Westminster (England only) Dept of H&SC Ministerial Responsibilities as of December 2022 full detail pdf= https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/1124948/2022-12-15_-_List_of_Ministerial_Responsibilities_final_for_publication.docx.pdf...

INTRODUCTION “Long COVID” is defined as symptoms that persist 12 weeks beyond the acute phase of the coronavirus-2019 (COVID-19) infection and is estimated to affect 3.0% to 11.7% of the UK population. Symptoms include headache, myalgia, fatigue, and loss of taste and smell.1 Parosmia can...

This post has been copied and following discussion moved from ME/CFS services in the United Kingdom job ad Royal Cornwall Hospitals Specialist Occupational Therapist...

Britons now have the worst access to healthcare in Europe, and it shows "For the past few months, a fierce debate has been raging over the question of what exactly is behind the sudden, sharp exodus of older British workers into economic inactivity. Is it driven by rapidly worsening health or...

https://www.pmlive.com/pharma_news/uk_government_announces_800m_boost_to_support_innovation_and_improve_patient_safety_1456936 eta: see also https://www.nihr.ac.uk/news/new-multimillion-investment-to-help-turn-research-discoveries-into-treatments-for-patients/31653 (includes list of NIHR...

See also News from Scotland _________________ Moved from the News from the MEA thread. not news from MEA as such; but anyone know about this person https://www.wandabelisle.com/ according to her website " FEATURED on

The report covers the: extraordinary meeting on 28 April 2020 41st meeting (part 1) of SaBTO on 6 October 2020 and 41st meeting (part 2) on 13 October 2020 42nd meeting (part 1) on 29 March 2021 and 42nd meeting (part 2) on 12 April 2021 activities of working parties...