A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here.
I'll start with the UberResearch/Action for ME report from 2016.
ONS
Health state life expectancies, UK: 2018 to 2020
1. Main Points
Healthy life expectancy (HLE) at birth in the UK showed no significant change between 2015 to 2017 and 2018 to 2020.
In Scotland, there was a statistically significant decrease of more than a year in male HLE at birth...
The Kings Fund
How does the NHS compare to the health care systems of other countries ?
Siva Anandaciva
*Comparing the health care systems of different countries can help politicians and policy‑makers assess how the UK health care system is performing and where it could improve.
*For...
Institute for Government
"This report – written jointly report by the Institute for Government and Public First, and funded by the Health Foundation – assesses why NHS hospitals are failing to deliver higher activity despite higher spending on the service and higher levels of staffing over the...
This thread has been created by merging threads and copying posts form UK news
S4ME and the UK Covid Inquiry
I'm still not spending much time online unfortunately so this may have been discussed elsewhere. Apologies if it has.
As those of us in the UK are aware the Covid Inquiry is just...
Updated 2nd May 2023.
"Apply for funding to research myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS).
You can get the funding through any:
grants from MRC research boards
MRC fellowships
We would particularly welcome proposals within MRC remit that address 1 or...
I saw this post by @MEFoggyDog on Mastodon so I thought I'd share.
This same hashtag - #MPDoYourJobForME - is also being used on twitter so you can search for it there.
I did not watch the whole video, but the title of the document linked in the post is:
Politician's Guide: How To Advocate...
Does anyone know when the old GP training video from Kings with Chalder/Gerada was published? Or any ideas how I could find out.
The earliest I could find was this from 2002
https://web.archive.org/web/20021124114432/http://www.iop.kcl.ac.uk/Main/Publications/videos.html
@Dolphin
Thanks
updated Feb 9 2023
All the leaflets (all using CFS/ME) appear to have been modified since the new guidelines although the content looks pretty much as before.
eg. Boom and Bust
I don't recognise this pattern, particularly with relation to sleep. For me the worsening in sleep...
Split from the 2021-2 thread
From today’s Politico newsletter:
Shadow Work and Pensions Secretary Jonathan Ashworth will deliver a speech to the Center for Social Justice think tank this morning, pledging reforms to out-of-work support. The Labour plans involve allowing people on sickness...
Westminster (England only) Dept of H&SC Ministerial Responsibilities as of December 2022
full detail pdf= https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/1124948/2022-12-15_-_List_of_Ministerial_Responsibilities_final_for_publication.docx.pdf...
INTRODUCTION
“Long COVID” is defined as symptoms that persist 12 weeks beyond the acute phase of the coronavirus-2019 (COVID-19) infection and is estimated to affect 3.0% to 11.7% of the UK population. Symptoms include headache, myalgia, fatigue, and loss of taste and smell.1 Parosmia can...
This post has been copied and following discussion moved from
ME/CFS services in the United Kingdom
job ad
Royal Cornwall Hospitals
Specialist Occupational Therapist...
Britons now have the worst access to healthcare in Europe, and it shows
"For the past few months, a fierce debate has been raging over the question of what exactly is behind the sudden, sharp exodus of older British workers into economic inactivity. Is it driven by rapidly worsening health or...
https://www.pmlive.com/pharma_news/uk_government_announces_800m_boost_to_support_innovation_and_improve_patient_safety_1456936
eta: see also
https://www.nihr.ac.uk/news/new-multimillion-investment-to-help-turn-research-discoveries-into-treatments-for-patients/31653
(includes list of NIHR...
See also News from Scotland
_________________
Moved from the News from the MEA thread.
not news from MEA as such; but anyone know about this person https://www.wandabelisle.com/
according to her website "
FEATURED on
article
dwp
england
foi
long covid
miranda hart
northern ireland
patient experience
sajid javid
speight
starvation
support groups
telegraph
unitedkingdom
wales
The report covers the:
extraordinary meeting on 28 April 2020
41st meeting (part 1) of SaBTO on 6 October 2020 and 41st meeting (part 2) on 13 October 2020
42nd meeting (part 1) on 29 March 2021 and 42nd meeting (part 2) on 12 April 2021
activities of working parties...
Based in Harley Street so guaranteed to be pricey.
conflates chronic fatigue with Chronic fatigue syndrome
common symptoms
Insomnia
Chronic Fatigue
Persistent Cough
Sleep Disturbances
Reoccurring Infections
Congnitive Diffciulties
Weight Gain
Urefreshed sleep
Muscle Weakness
Depression...
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