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  1. Sly Saint
    Thread

    ME/CFS services in the United Kingdom

    This appears to be a new service(?) under Lancashire Care NHS trust. Found this job advert: " Lancashire Care NHS Foundation Trust Clinical...
    Thread by: Sly Saint, Sep 5, 2018, 224 replies, in forum: ME/CFS Doctors
  2. Indigophoton
    Thread

    David Tuller: Trial By Error: My Letter to Parliament’s Science and Technology Committee

    Earlier today, I e-mailed the following letter to the members of the House of Commons Science and Technology Committee, which has been...
    Thread by: Indigophoton, Jul 11, 2018, 19 replies, in forum: General ME/CFS News
  3. Andy
    Thread

    Member comments wanted: Third section (What the guideline will cover) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide...
    Thread by: Andy, Jun 29, 2018, 27 replies, in forum: General ME/CFS News
  4. Andy
    Thread

    Member comments wanted: Second section (Who the guideline is for) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide...
    Thread by: Andy, Jun 29, 2018, 42 replies, in forum: General ME/CFS News
  5. Andy
    Thread

    Member comments wanted: First section (Why the guideline is needed) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide...
    Thread by: Andy, Jun 29, 2018, 25 replies, in forum: General ME/CFS News
  6. Andy
    Thread

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Email from NICE. Dear Colleague, RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and...
    Thread by: Andy, Jun 21, 2018, 116 replies, in forum: General ME/CFS News
  7. Indigophoton
    Thread

    UK: Government to end unnecessary PIP reviews for people with most severe health conditions

    People with the most severe, life-long conditions will no longer have to attend regular reviews for Personal Independence Payment (PIP)....
    Thread by: Indigophoton, Jun 18, 2018, 8 replies, in forum: Health News and Research unrelated to ME/CFS
  8. Andy
    Thread

    Consultation on the update to Developing NICE guidelines: the manual

    Note: this isn't specific to the NICE ME/CFS guidelines, this applies to all guidelines. Summary NICE has launched a public consultation on the...
    Thread by: Andy, Jun 18, 2018, 1 replies, in forum: Advocacy Action Alerts
  9. Andy
    Thread

    NICE guideline on ME/CFS: diagnosis and management: draft scope consultation period and lay member recruitment period

    Communication just received from NICE Please be advised that the draft scope consultation period for this NICE guideline will now run for an...
    Thread by: Andy, Jun 11, 2018, 1 replies, in forum: General ME/CFS News
  10. Sly Saint
    Thread

    #MillionsMissing 2018 UK

    I know there are already a couple of threads on #Millions Missing for the UK (ie London, Southampton) but as they are all likely to be on the same...
    Thread by: Sly Saint, Apr 8, 2018, 9 replies, in forum: Advocacy Projects and Campaigns
  11. Sly Saint
    Thread

    Hidden disease in the spot light in York: more about Myalgic Encephalomyelitis (M.E.)

    "M.E awareness: Liberal Democrats look to kick-start campaign on the hidden disease In a motion to Council on the 22nd March, Liberal Democrat...
    Thread by: Sly Saint, Mar 17, 2018, 7 replies, in forum: General ME/CFS News
  12. Andy
    Thread

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Finally received email confirmation of this: Dear Colleague, NICE guideline: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue...
    Thread by: Andy, Mar 16, 2018, 278 replies, in forum: General ME/CFS News
  13. Sly Saint
    Thread

    The M.E. trust (UK charity)

    Anyone know anything about this charity (apart from Countess of Mar is one of their patrons). They are on the NICE stakeholders list. I only found...
    Thread by: Sly Saint, Mar 4, 2018, 5 replies, in forum: General ME/CFS News
  14. Sly Saint
    Thread

    Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

    raised on another thread by @MEMarge. The CQC only deals with services in England but from briefly looking at their website the only ME/CFS...
    Thread by: Sly Saint, Mar 2, 2018, 11 replies, in forum: Advocacy Projects and Campaigns
  15. Sly Saint
    Thread

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the...
    Thread by: Sly Saint, Feb 23, 2018, 140 replies, in forum: Petitions
  16. Sly Saint
    Thread

    Funding on ME/CFS research in the UK

    I thought that in response to the Ministers statement at the debate on PACE yesterday that a break down of funding for research between...
    Thread by: Sly Saint, Feb 21, 2018, 3 replies, in forum: Advocacy Projects and Campaigns
  17. Skycloud
    Thread

    Work and Pensions Select Comittee (UK) findings re: failures of PIP and ESA assessments

    Article in the Guardian Friday Feb 9th 2018 'Substantial minority' of disability claimants failed by system – MPs A “substantial minority” of...
    Thread by: Skycloud, Feb 9, 2018, 18 replies, in forum: Health News and Research unrelated to ME/CFS
  18. Andy
    Thread

    King's Health Partners, "Medically Unexplained Symptoms A Practical Guide", March 2017

    This was highlighted on @Tom Kindlon 's Facebook page. Delightful presentation from just under a year ago from King's Health Partners...
    Thread by: Andy, Feb 1, 2018, 25 replies, in forum: PsychoSocial ME/CFS News
  19. Andy
    Thread

    UK: Personal Independence payments: All 1.6 million claims to be reviewed

    Every person receiving Personal Independence Payments (PIP) will have their claim reviewed, the Department for Work and Pensions has said. A...
    Thread by: Andy, Jan 29, 2018, 10 replies, in forum: Work, Finances and Disability Insurance
  20. Sly Saint
    Thread

    SNOMED CT implementation in primary care UK

    " Why primary care needs to migrate to SNOMED CT Two versions of clinical codes (Read v2 and CTV3) currently exist in General Practice. Not all GP...
    Thread by: Sly Saint, Jan 28, 2018, 0 replies, in forum: Health News and Research unrelated to ME/CFS
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