united kingdom

  1. Sly Saint

    United Kingdom: Hackney - Homerton Chronic Fatigue Service + Post Covid-19 service

    job ad Highly Specialist Pain Physiotherapist | Homerton University Hospital NHS Foundation Trust https://findajob.dwp.gov.uk/details/7729422
  2. InitialConditions

    United Kingdom: Nottingham ME/CFS Service

    Copied post. This thread has been created to discuss the Nottingham service and their online materials. There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the...
  3. Andy

    To the emergency room and back again: Circular healthcare pathways for acute functional neurological disorders, 2022, Williams et al

    Highlights We prospectively identified acute FND referrals in a UK city hospital. Dynamic, moving maps of patient pathways show loops around recurrent ED attendance. Rates of appropriate FND care are low, including documented diagnosis. Better practice FND care is associated with reduced risk...
  4. rvallee

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    Copied from the Long Covid thread This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to build support for a BPS approach to LC. You know what to do: answer honestly. It's short, about 5-10 minutes.
  5. rvallee

    United Kingdom: Long Covid Kids

    Edit: another one Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only difference here is perception, this is essentially the same issue.
  6. Ian NeuroProActive

    UK company Neuro ProActive

    Dear all, It’s great to be part of this forum. Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and management of long-term neurological conditions. We support six allied health professional disciplines; Physios, Occupational Therapists, Speech and...
  7. Jonathan Edwards

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...
  8. MarianaLewis

    Closed 2022 UK Recruiting: narrative inquiry exploring the school experiences of teenagers with ME/CFS (doctoral research)

    Hello, Thank you for being so welcoming on this forum. My name is Mariana, I'm currently doing a professional doctorate in Educational Psychology at the University of Bristol (School of Policy Studies), and I am researching the school experiences of teenagers with ME/CFS for my thesis. A...
  9. L

    UK: Specialist Rehabilitation Medicine Services for ME/CFS and Long Covid

    Moved post This post may be taking the current discussion slightly off track, but I didn't intend it to as my first immediate thought when reading the opinion piece was the RCP's refusal to champion the new guidelines has influenced such propaganda, so I thought I would check to see if they...
  10. Andy

    UK: Office of National Statistics: COVID-19 Schools Infection Survey, England: mental health and long COVID reports

    COVID-19 Schools Infection Survey, England: mental health and long COVID, November to December 2021 "1.Main points Since March 2020, 1.0% of primary school-aged pupils and 2.7% of secondary school-aged pupils met the Delphi criteria for having experienced long COVID lasting at least 12 weeks...
  11. Andy

    Burnout and long COVID among the UK nephrology workforce: results from a national survey...., 2022, Selvaskandan et al

    Full title: Burnout and long COVID among the UK nephrology workforce: results from a national survey investigating the impact of COVID-19 on working lives ABSTRACT Background The coronavirus disease 2019 (COVID-19) pandemic is placing a significant strain on healthcare. We conducted a...
  12. Barry

    United Kingdom service: Royal Liverpool and Broadgreen University Hospitals NHS Trust

    @Tom Kindlon posted a link to the following on fb (sorry but I've l lost without trace Tom's original fb post), but thought I'd capture this here, seeing as the Royal Liverpool have been deleting comments people made. Captured this too late for those deleted comments, but in case any more get...
  13. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Jan 2022)?

    This is an update to this thread, What ME/CFS research, funded by UK sources, is currently in process (as of end June 2019)?, this time looking at research in progress as at time of posting. I'm afraid that compared to the original thread it won't have the same care and attention paid to...
  14. lunarainbows

    Housing help for PwME in the U.K.: some links

    This is some of the information gathered when discussing my personal housing situation. thanks especially to the other members who knew a lot more than me and directed me towards these organisations & websites! I wanted all this information to be searchable on S4ME should someone else need it...
  15. R

    United Kingdom: Independent SAGE

    Split from this thread Independent SAGE is discussing Long Covid on Friday. I’ve emailed to suggest they invite some people like Jonathan who are knowledgeable about the problems with ME/CFS research and service provision. I’ve also sent a little background info and asked how we can ensure that...
  16. Sly Saint

    BBC article: Specialist mental health unit failures exposed by patients

    https://www.bbc.co.uk/news/uk-59964353
  17. Andy

    UK: Call for action on ‘unique’ barriers facing people with energy-limiting impairments

    "A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every survey respondent (98 per cent) said that lack of understanding of ELC was a barrier to inclusion. The second biggest barrier revealed by the survey was...
  18. SNT Gatchaman

    UK Parliamentary Office for Science and Technology briefing paper on Long Covid, December 2021

    UK Government Rapid Response on Long COVID Long COVID: The long-term health effects of COVID-19 (17/12/21). (Not sure the "rapid response" label is entirely justified.) Describes symptoms as " fatigue, shortness of breath, cough, sleep disturbances, anxiety and depression, cognitive...
  19. S

    UK: Science and Technology Select Committee inquiry on Reproducibility and research integrity, Opened 22 July 2021

    Science and Technology Select Committee inquiry on Reproducibility and research integrity Opened 22 July 2021. Written submissions and videos for two oral evidence sessions are available, with a transcript for the first only at present. Session 1 - 1 December: Professor Neil Ferguson OBE...
  20. J

    Fiona Watt, Chief Executive of MRC (UK), apologizes for bullying

    MRC is now part of UKRI. On UKRI website: https://www.ukri.org/news/ukri-issues-statement-on-bullying-complaint/ News article (paywalled): https://www.thetimes.co.uk/article/scientist-who-took-on-bullies-says-shes-sorry-for-bullying-7pstqn0qr Watt, for those who had forgotten, has been a...
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