united kingdom

Full title: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries and experiences in the month prior to COVID-19 infection and the development of long COVID and specific long COVID symptoms Abstract Background Long COVID is increasingly...

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Copied post. This thread has been created to discuss the Nottingham service and their online materials. There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the...

Highlights We prospectively identified acute FND referrals in a UK city hospital. Dynamic, moving maps of patient pathways show loops around recurrent ED attendance. Rates of appropriate FND care are low, including documented diagnosis. Better practice FND care is associated with reduced risk...

Copied from the Long Covid thread This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to build support for a BPS approach to LC. You know what to do: answer honestly. It's short, about 5-10 minutes.

Edit: another one Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only difference here is perception, this is essentially the same issue.

Dear all, It’s great to be part of this forum. Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and management of long-term neurological conditions. We support six allied health professional disciplines; Physios, Occupational Therapists, Speech and...

Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...

Hello, Thank you for being so welcoming on this forum. My name is Mariana, I'm currently doing a professional doctorate in Educational Psychology at the University of Bristol (School of Policy Studies), and I am researching the school experiences of teenagers with ME/CFS for my thesis. A...

Moved post This post may be taking the current discussion slightly off track, but I didn't intend it to as my first immediate thought when reading the opinion piece was the RCP's refusal to champion the new guidelines has influenced such propaganda, so I thought I would check to see if they...

COVID-19 Schools Infection Survey, England: mental health and long COVID, November to December 2021 "1.Main points Since March 2020, 1.0% of primary school-aged pupils and 2.7% of secondary school-aged pupils met the Delphi criteria for having experienced long COVID lasting at least 12 weeks...

Full title: Burnout and long COVID among the UK nephrology workforce: results from a national survey investigating the impact of COVID-19 on working lives ABSTRACT Background The coronavirus disease 2019 (COVID-19) pandemic is placing a significant strain on healthcare. We conducted a...

@Tom Kindlon posted a link to the following on fb (sorry but I've l lost without trace Tom's original fb post), but thought I'd capture this here, seeing as the Royal Liverpool have been deleting comments people made. Captured this too late for those deleted comments, but in case any more get...

This is an update to this thread, What ME/CFS research, funded by UK sources, is currently in process (as of end June 2019)?, this time looking at research in progress as at time of posting. I'm afraid that compared to the original thread it won't have the same care and attention paid to...

This is some of the information gathered when discussing my personal housing situation. thanks especially to the other members who knew a lot more than me and directed me towards these organisations & websites! I wanted all this information to be searchable on S4ME should someone else need it...

Split from this thread Independent SAGE is discussing Long Covid on Friday. I’ve emailed to suggest they invite some people like Jonathan who are knowledgeable about the problems with ME/CFS research and service provision. I’ve also sent a little background info and asked how we can ensure that...

https://www.bbc.co.uk/news/uk-59964353

"A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every survey respondent (98 per cent) said that lack of understanding of ELC was a barrier to inclusion. The second biggest barrier revealed by the survey was...

UK Government Rapid Response on Long COVID Long COVID: The long-term health effects of COVID-19 (17/12/21). (Not sure the "rapid response" label is entirely justified.) Describes symptoms as " fatigue, shortness of breath, cough, sleep disturbances, anxiety and depression, cognitive...

Science and Technology Select Committee inquiry on Reproducibility and research integrity Opened 22 July 2021. Written submissions and videos for two oral evidence sessions are available, with a transcript for the first only at present. Session 1 - 1 December: Professor Neil Ferguson OBE...