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united kingdom

Page 4 of 17
  1. Esther12
    Thread

    United Kingdom: Science Media Centre (including Fiona Fox)

    The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always...
    Thread by: Esther12, Dec 10, 2017, 674 replies, in forum: News from organisations
  2. Sly Saint
    Thread

    UK: Government to invest £375 million in neurodegenerative disease research, 2021

    Funding includes at least £50 million for motor neurone disease (MND) related research to find a cure New National Institute for Health Research...
    Thread by: Sly Saint, Nov 15, 2021, 6 replies, in forum: Other health news and research
  3. Suffolkres
    Thread

    United Kingdom: Social Prescribing - a potential part of ME/CFS services

    There is a potentially very serious issue about the likely direction of travel for ME Service - its likely reliance on UK initiative, Social...
    Thread by: Suffolkres, Nov 9, 2021, 9 replies, in forum: General disability topics and advocacy
  4. John Mac
    Thread

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harm...
    Thread by: John Mac, Nov 2, 2021, 35 replies, in forum: Petitions
  5. rvallee
    Thread

    Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021

    Oxford to test potential treatment for fatigue in long COVID patients...
    Thread by: rvallee, Oct 30, 2021, 62 replies, in forum: Long Covid news
  6. Science For ME
    Thread

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS...
    Thread by: Science For ME, Oct 28, 2021, 231 replies, in forum: 2020 UK NICE ME/CFS Guideline
  7. Suffolkres
    Thread

    UK: Academy of Royal Medical Colleges

    Moderation note: The Academy of Royal Medical Colleges particularly came to our notice when they were a member of the Oct 2021 NICE Roundtable...
    Thread by: Suffolkres, Aug 23, 2021, 3 replies, in forum: News from organisations
  8. Sly Saint
    Thread

    TV Program: Clapped Out: Is the NHS Broken?, Dispatches, Channel 4, UK

    "After 18 months of Covid, award-winning journalist Matthew Syed travels the country asking some tough questions about the performance of our...
    Thread by: Sly Saint, Oct 19, 2021, 8 replies, in forum: Other health news and research
  9. Suffolkres
    Thread

    United Kingdom: Petition, Create a Task Force to Oversee Drug Procurement for ALL Post Viral Conditions - deadline 20 November 2021

    Moved post The great majority of doctors will not get to hear about this. However, quite a high proportion of GPs are likely to take note since it...
    Thread by: Suffolkres, Oct 19, 2021, 0 replies, in forum: Petitions
  10. Haveyoutriedyoga
    Thread

    BMJ podcast: Psychological coercion in UK government workfare programmes (11 minutes), 2015

    [MEDIA] There is a full paper somewhere out there too. Key points Route out to employment is positive mindset Lack of employment is a character...
    Thread by: Haveyoutriedyoga, Oct 16, 2021, 8 replies, in forum: Other health news and research
  11. Sly Saint
    Thread

    Royal College of General Practitioners Conference, Oct 14th - 15th, 2021

    https://www.rcgpac.org.uk/programme/ speakers include Dr Amy Small Professor Chew-Graham Dr Julia Newton https://www.rcgpac.org.uk/speakers-2021/
    Thread by: Sly Saint, Oct 14, 2021, 2 replies, in forum: Other health news and research
  12. Sly Saint
    Thread

    Bristol Chronic Fatigue Syndrome/ME Service changes its name to Bristol M.E. Service

    Bristol M.E. Service: Supporting people with M.E./CFS and PVFS across Gloucestershire, Bristol and North Somerset We have renamed our Service...
    Thread by: Sly Saint, Oct 4, 2021, 34 replies, in forum: UK clinics and doctors
  13. Esther12
    Thread

    [NIHR/MRC document] Framework for the development and evaluation of complex interventions, 2021, Skivington et al

    I thought it could be of interest to some people here, though I only had a very quick look myself. 172 pages....
    Thread by: Esther12, Oct 3, 2021, 2 replies, in forum: Other health news and research
  14. Sly Saint
    Thread

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    "Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome –...
    Thread by: Sly Saint, Sep 15, 2021, 45 replies, in forum: 2020 UK NICE ME/CFS Guideline
  15. Sly Saint
    Thread

    An Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis, 2021, Hng, Geraghty & Pheby

    Abstract Background and Objectives: There is some evidence that knowledge and understanding of ME among doctors is limited. Consequently, an audit...
    Thread by: Sly Saint, Aug 27, 2021, 1 replies, in forum: General ME/CFS news
  16. Andy
    Thread

    Long Covid – The illness narratives, 2021, Rushforth, Greenhalgh et al

    Highlights • Long Covid is a patient-defined illness which gained legitimacy in online communities. • We analysed long Covid narratives using...
    Thread by: Andy, Aug 24, 2021, 21 replies, in forum: Long Covid research
  17. MSEsperanza
    Thread

    The new NICE Guideline for ME/CFS: Ten Questions Answered (Brian Hughes)

    https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought...
    Thread by: MSEsperanza, Aug 18, 2021, 1 replies, in forum: 2020 UK NICE ME/CFS Guideline
  18. Andy
    Thread

    Long Covid in adults discharged from UK hospitals after Covid-19: A prospective, multicentre cohort study..., 2021, Sigfrid et al

    Full title: Long Covid in adults discharged from UK hospitals after Covid-19: A prospective, multicentre cohort study using the ISARIC WHO...
    Thread by: Andy, Aug 14, 2021, 1 replies, in forum: Long Covid research
  19. Blueskytoo
    Thread

    NHS CRD Report 22: The effectiveness of interventions used in the treatment/management of CFS and/or ME in adults and children (2002) Bagnall et al

    Split from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 MEpedia states this on the page about the York Centre...
    Thread by: Blueskytoo, Aug 11, 2021, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. FMMM1
    Thread

    Recent research funded UK Government - does it address NICE findings?

    Hi guys now that the long awaited revision of the NICE guidance on ME/CFS is nearing completion (18th August) I thought I'd create a thread to...
    Thread by: FMMM1, Aug 10, 2021, 10 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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