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  1. InitialConditions
    Thread

    [Blog] BACME, NHS ME/CFS clinics shift from deconditioning to dysregulation model of ME/CFS in anticipation of updated NICE Guideline

    https://domsalisbury.github.io/mecfs/bacme_dysregulation/ I have written more about the emerging theme of a 'dysregulation model of ME/CFS' from...
    Thread by: InitialConditions, Aug 8, 2021, 133 replies, in forum: General ME/CFS news
  2. Sly Saint
    Thread

    Royal London Hospital for Integrated Medicine: Physiotherapy for Chronic Fatigue (CFS), Aug 5 2021

    Unbelievable.............. [MEDIA]
    Thread by: Sly Saint, Aug 6, 2021, 36 replies, in forum: UK clinics and doctors
  3. Andy
    Thread

    Open ME Association: The UK ME/CFS Post Mortem Tissue Bank and Tissue Donation

    "The ME Association is the only M.E. charity involved in the collection of post mortem tissue samples from people diagnosed with the disease in...
    Thread by: Andy, Jul 27, 2021, 1 replies, in forum: Recruitment into current ME/CFS research studies
  4. Andy
    Thread

    UK: ME/CFS and Long Covid Group for Black Communities

    "This is an online group for Black and Black-mixed adults living with ME/CFS or Long-Covid in the UK. It is a safe space to share experiences and...
    Thread by: Andy, Jul 16, 2021, 5 replies, in forum: Advocacy Projects and Campaigns
  5. Andy
    Thread

    Blog: Royal College of Physicians: "Doctors believe in ME", Nina Muirhead

    "In a follow up to her 2019 blog post, Dr Nina Muirhead discusses a recent surge in clinical interest in myalgic encephalomyelitis/chronic fatigue...
    Thread by: Andy, Jul 15, 2021, 2 replies, in forum: General ME/CFS news
  6. Andy
    Thread

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    "Main points At 2 May 2021, an estimated 1.0 million people living in private households in the UK (1.6%) were experiencing self-reported long...
    Thread by: Andy, Jun 4, 2021, 91 replies, in forum: Long Covid news
  7. Andy
    Thread

    UK: News from ME Research UK

    A thread for news from ME Research UK, starting with Funding: Investigating brain-stem dysfunction in ME/CFS using 7-Tesla MRI...
    Thread by: Andy, May 10, 2021, 26 replies, in forum: News from organisations
  8. Andy
    Thread

    UK: Video: Disability employment gap - Commons Work and Pensions Committee - 28 April 2021

    "The Commons Work and Pensions Committee is investigating the gap between the employment rates of disabled and non-disabled people and how the...
    Thread by: Andy, Apr 29, 2021, 4 replies, in forum: General disability topics and advocacy
  9. Andy
    Thread

    UK: BBC survey: the experiences of disabled people in the UK during the Covid-19 pandemic

    "How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your...
    Thread by: Andy, Apr 27, 2021, 3 replies, in forum: General disability topics and advocacy
  10. Sly Saint
    Thread

    Trial By Error: Why Have Experts in MUS Spent Ten Years Mis-Citing a Study about Costs to the NHS? David Tuller

    What does it mean that the top investigators in a field of research have collectively and consistently misrepresented a seminal figure in their...
    Thread by: Sly Saint, Apr 24, 2021, 12 replies, in forum: General ME/CFS news
  11. Sly Saint
    Thread

    UK: Exeter - temporary job researching family carers of people with ME/CFS, 2021

    Job advert: This part-time (0.5 FTE) post is available from 1st June 2021 on a fixed-term basis until 30th November 2021. The post The College...
    Thread by: Sly Saint, Apr 24, 2021, 6 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Andy
    Thread

    A Multidisciplinary NHS COVID-19 Service to Manage Post-COVID-19 Syndrome in the Community, 2021, Parkin et al

    Abstract The National Institute for Health and Care Excellence (NICE) describe “post COVID-19 syndrome” or “Long COVID” as a set of persistent...
    Thread by: Andy, Apr 22, 2021, 4 replies, in forum: Long Covid research
  13. Tom Kindlon
    Thread

    United Kingdom: The Gibson Inquiry, (Inquiry into the status of CFS/M.E. and research into causes and treatment), 2006

    This post copied from the members only thread in memory of Dr Ian Gibson Invest in ME Research report that their advisor and friend Dr Ian Gibson...
    Thread by: Tom Kindlon, Apr 10, 2021, 4 replies, in forum: General ME/CFS news
  14. Sly Saint
    Thread

    UK article: Occupational Health the key to helping employers understand, and support, less well-known conditions

    Less common, or less well-known or understood, health conditions such as auto-immune diseases, ME, epilepsy and MS can often go under the radar...
    Thread by: Sly Saint, Apr 9, 2021, 1 replies, in forum: Work, Finances and Disability Insurance
  15. Suffolkres
    Thread

    NICE Health topics: Tiredness/Fatigue in adults (includes CFS).

    Moved from this thread It was suggested yesterday that this Member of the House of Lords local to me is joining Forward ME? She has been...
    Thread by: Suffolkres, Apr 7, 2021, 89 replies, in forum: 2020 UK NICE ME/CFS Guideline
  16. Andy
    Thread

    UK govt: Open consultation: Women's Health Strategy: Call for Evidence

    Executive summary We are seeking your views to help inform the development of the government’s Women’s Health Strategy. This call for evidence is...
    Thread by: Andy, Mar 29, 2021, 8 replies, in forum: General disability topics and advocacy
  17. Sly Saint
    Thread

    Medical School Education on Myalgic Encephalomyelitis, 2021, Muirhead,Marsh et al

    Preprint " Abstract Background and objectives: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS is a common complex multi-system...
    Thread by: Sly Saint, Mar 17, 2021, 4 replies, in forum: ME/CFS research
  18. Andy
    Thread

    Open UK: Action for ME's list of current research projects recruiting.

    People with M.E. often ask us how they can get involved with research. If you haven't registered your interest to potentially take part in...
    Thread by: Andy, Mar 5, 2021, 27 replies, in forum: Recruitment into current ME/CFS research studies
  19. rvallee
    Thread

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done...
    Thread by: rvallee, Feb 25, 2021, 286 replies, in forum: 2020 UK NICE ME/CFS Guideline
  20. Kitty
    Thread

    UK: Disability benefits (ESA and PIP) - news and updates 2021 onwards

    I found out by accident some time ago that my award has been extended. I needed an up-to-date award letter to renew my Blue Badge, and when they...
    Thread by: Kitty, Jan 22, 2021, 125 replies, in forum: Work, Finances and Disability Insurance
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