united kingdom

MRC is now part of UKRI. On UKRI website: https://www.ukri.org/news/ukri-issues-statement-on-bullying-complaint/ News article (paywalled): https://www.thetimes.co.uk/article/scientist-who-took-on-bullies-says-shes-sorry-for-bullying-7pstqn0qr Watt, for those who had forgotten, has been a...

Note: There are two services in Oxfordshire dedicated to help patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): the OUH ME/CFS Service - and the Oxford Health ME/CFS Service. Website updated Dec 2021 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Service...

Abstract The objective of this paper is to model lost Quality Adjusted Life Years (QALYs) from symptoms arising from COVID-19 disease in the UK population, including symptoms of ‘long-COVID’. The scope includes QALYs lost to symptoms, but not deaths, due to acute COVID-19 and long-COVID. The...

"The Physical Health Psychology team offer a range of services across Cumbria and North Lancashire to help you to manage your physical symptoms and live a happier, healthier life. We are a team of Healthcare Professionals made up of Psychological Practitioners, CBT Therapists, Occupational...

Some threads have been merged to create this news thread The future of the NHS: no longer the envy of the world? Picked up from social media. Article in the Lancet London School of Economics have this project with an independent commission looking to identify big challenges faced by the NHS...

The NUT Hospital Trust operates a 'Chronic Fatigue Syndrome (CFS/ME) therapy psychology service' to assess and treat 'patients with CFS/ME'. Their services are described as "Our team provides individualised care for patients to: Sustain or gradually extend their physical, emotional and mental...

How do Health Service (NHS) organisations respond to patient concerns? A qualitative interview study of the Patient Advice and Liaison Service (PALS) Abstract Objectives To describe the current work of the Patient Advice and Liaison Service (PALS) and assess the service’s potential to resolve...

ABSTRACT Introduction: Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) has been limited. This study aimed to understand how their subjective well-being had been affected by their condition by exploring their experiences and sense-making processes...

"Millions of people with mild depression in England should be offered therapy, exercise, mindfulness or meditation before antidepressants, according to the first new NHS guidelines in more than a decade. Under draft guidance, the National Institute for Health and Care Excellence (Nice)...

News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK

Ended up a bit rambling and ranty so moving my question to the top! Does anyone have any recommendations for life insurance cover with companies that understand that ME isn't a mental health disorder? ××××××××××× My wife and I are remortgaging to fund some work on the house. We both work part...

Seems someone got in there first... :wink: https://petition.parliament.uk/petitions/601237

https://www.rcpch.ac.uk/resources/me-cfs-nice-clinical-guideline-member-briefing

The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always interesting to look at how they present themselves. Someone sent me this old report recently, and while it's not that interesting or relevant to us, I...

https://www.gov.uk/government/news/government-to-invest-375-million-in-neurodegenerative-disease-research

https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harms-ab215021-5d66-4f72-9ba2-06a633f298f3?source_location=topic_page

Oxford to test potential treatment for fatigue in long COVID patients https://www.ox.ac.uk/news/2021-10-29-oxford-test-potential-treatment-fatigue-long-covid-patients Dr Alison Schecter, President of R&D at Axcella, said: 'While Long COVID’s enormous patient and socioeconomic burden has become...

Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE. The submissions were made by stakeholders in December 2020. These tables with both the...

Moderation note: The Academy of Royal Medical Colleges particularly came to our notice when they were a member of the Oct 2021 NICE Roundtable Meeting that took place to ensure support for the implementation of the 2021 ME/CFS Guideline. The ARMC is the coordinating body for the UK and...