united kingdom

  1. Sly Saint

    United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service

    Note: There are two services in Oxfordshire dedicated to help patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): the OUH ME/CFS Service - and the Oxford Health ME/CFS Service. Website updated Dec 2021 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Service...
  2. Andy

    A model framework for projecting the prevalence and impact of Long-COVID in the UK, 2021, Martin et al

    Abstract The objective of this paper is to model lost Quality Adjusted Life Years (QALYs) from symptoms arising from COVID-19 disease in the UK population, including symptoms of ‘long-COVID’. The scope includes QALYs lost to symptoms, but not deaths, due to acute COVID-19 and long-COVID. The...
  3. Andy

    United Kingdom: South Cumbria CFS Service (Physical Health Psychology)

    "The Physical Health Psychology team offer a range of services across Cumbria and North Lancashire to help you to manage your physical symptoms and live a happier, healthier life. We are a team of Healthcare Professionals made up of Psychological Practitioners, CBT Therapists, Occupational...
  4. NelliePledge

    United Kingdom: National Health Service (NHS) news

    Some threads have been merged to create this news thread The future of the NHS: no longer the envy of the world? Picked up from social media. Article in the Lancet London School of Economics have this project with an independent commission looking to identify big challenges faced by the NHS...
  5. Hutan

    United Kingdom: Newcastle-upon-tyne Hospital Trust

    The NUT Hospital Trust operates a 'Chronic Fatigue Syndrome (CFS/ME) therapy psychology service' to assess and treat 'patients with CFS/ME'. Their services are described as "Our team provides individualised care for patients to: Sustain or gradually extend their physical, emotional and mental...
  6. Haveyoutriedyoga

    How do Health Service (NHS) organisations respond to patient concerns? A qualitative interview study of PALS, 2021, Shepard et al

    How do Health Service (NHS) organisations respond to patient concerns? A qualitative interview study of the Patient Advice and Liaison Service (PALS) Abstract Objectives To describe the current work of the Patient Advice and Liaison Service (PALS) and assess the service’s potential to resolve...
  7. Wyva

    Feeling like ‘a damaged battery’: exploring the lived experiences of UK university students with ME/CFS, 2021, Waite, Elliot

    ABSTRACT Introduction: Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) has been limited. This study aimed to understand how their subjective well-being had been affected by their condition by exploring their experiences and sense-making processes...
  8. Andy

    UK: Guardian: "NHS to give therapy for depression before medication under new guidelines"

    "Millions of people with mild depression in England should be offered therapy, exercise, mindfulness or meditation before antidepressants, according to the first new NHS guidelines in more than a decade. Under draft guidance, the National Institute for Health and Care Excellence (Nice)...
  9. MSEsperanza

    United Kingdom: News from #MEAction Network UK

    News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK
  10. ringding

    Life insurance

    Ended up a bit rambling and ranty so moving my question to the top! Does anyone have any recommendations for life insurance cover with companies that understand that ME isn't a mental health disorder? ××××××××××× My wife and I are remortgaging to fund some work on the house. We both work part...
  11. Lucibee

    United Kingdom: Petition: Set up a national harms reporting scheme for non-pharmacological treatments

    Seems someone got in there first... :wink: https://petition.parliament.uk/petitions/601237
  12. Hoopoe

    UK: Secretary of State for Health and Social Care met with ME/CFS researchers Nov 2021

  13. Sly Saint

    UK RCPCH: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) - Member briefing on new NICE guideline

    https://www.rcpch.ac.uk/resources/me-cfs-nice-clinical-guideline-member-briefing
  14. Esther12

    United Kingdom: Science Media Centre (including Fiona Fox)

    The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always interesting to look at how they present themselves. Someone sent me this old report recently, and while it's not that interesting or relevant to us, I...
  15. Sly Saint

    UK: Government to invest £375 million in neurodegenerative disease research, 2021

    https://www.gov.uk/government/news/government-to-invest-375-million-in-neurodegenerative-disease-research
  16. John Mac

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harms-ab215021-5d66-4f72-9ba2-06a633f298f3?source_location=topic_page
  17. rvallee

    Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021

    Oxford to test potential treatment for fatigue in long COVID patients https://www.ox.ac.uk/news/2021-10-29-oxford-test-potential-treatment-fatigue-long-covid-patients Dr Alison Schecter, President of R&D at Axcella, said: 'While Long COVID’s enormous patient and socioeconomic burden has become...
  18. Science For ME

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE. The submissions were made by stakeholders in December 2020. These tables with both the...
  19. Suffolkres

    UK: Academy of Royal Medical Colleges

    Moderation note: The Academy of Royal Medical Colleges particularly came to our notice when they were a member of the Oct 2021 NICE Roundtable Meeting that took place to ensure support for the implementation of the 2021 ME/CFS Guideline. The ARMC is the coordinating body for the UK and...
  20. Sly Saint

    TV Program: Clapped Out: Is the NHS Broken?, Dispatches, Channel 4, UK

    "After 18 months of Covid, award-winning journalist Matthew Syed travels the country asking some tough questions about the performance of our much-loved NHS" https://www.channel4.com/programmes/clapped-out-is-the-nhs-broken-dispatches/on-demand/72600-001 I watched some of this last night and...
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