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United Kingdom: News from #MEAction Network UK

Discussion in 'News from organisations' started by MSEsperanza, Nov 22, 2021.

  1. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Last edited by a moderator: Nov 22, 2021
    Joh, DokaGirl, Starlight and 4 others like this.
  2. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Joh, cfsandmore, DokaGirl and 8 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "interestingly nice often publishes something in the bmj but in this case
    nothing has been published yet
    "

    does anyone know if NICE have anything in the pipeline on this?
     
    cfsandmore, Ash, Wyva and 1 other person like this.
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "by saying post-exertional malaise is a key symptom for me cfs i think is critical"

    yes, but it still isn't mentioned on the NHS websites.

    Also, PEM is now being picked up by others not just the ME community and they are putting their own spin on it. It is crucial that it is put out there asap as the defining symptom of ME, but that this is expanded on with the full NICE guideline description of what it is.
    "
    Post-exertional malaise
    The worsening of symptoms that can follow minimal cognitive, physical, emotional or social activity, or activity that could previously be tolerated. Symptoms can typically worsen 12 to 48 hours after activity and last for days or even weeks, sometimes leading to a relapse. Post-exertional malaise may also be referred to as post-exertional symptom exacerbation.


    Activity
    Any effort that uses energy, which includes cognitive, emotional and social activity as well as physical activity. Different activities combine and interact to cause a cumulative impact for the person."
     
    cfsandmore, Ash, Wyva and 2 others like this.

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