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#meaction

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USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited recommendations for...

Thread by: Sly Saint, May 28, 2022, 0 replies, in forum: Advocacy Projects and Campaigns
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International Business Times: What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID

What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID...

Thread by: ahimsa, Feb 26, 2022, 1 replies, in forum: General ME/CFS news
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United Kingdom: News from #MEAction Network UK

News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK

Thread by: MSEsperanza, Nov 22, 2021, 4 replies, in forum: News from organisations
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#MEAction: Tell your Doctor that GET is gone

"The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and...

Thread by: Sly Saint, Nov 10, 2021, 7 replies, in forum: Advocacy Projects and Campaigns
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#MEAction: strategic planning survey 2021

from email We're excited to share that #MEAction is engaged in a strategic planning process facilitated by the Center for Nonprofit Management...

Thread by: Sly Saint, Nov 3, 2021, 9 replies, in forum: General ME/CFS news
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Walktober for ME Action: A Day To Walk For You (October 30)

https://www.mightycause.com/story/Walktober A nonprofit fundraiser supporting Myalgic Encephalomyelitis Action Network Inc Welcome to Greg...

Thread by: ahimsa, Oct 30, 2021, 2 replies, in forum: Fundraising
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2021 US ICD-10-CM change proposal: addition of code for ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic...

Thread by: Sly Saint, Aug 24, 2021, 9 replies, in forum: Disease coding
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Sign on to #MEAction’s response to flawed CDC review, deadline 15th Aug 2021

" MEAction Response to CDC #MEAction has released a draft response to the CDC’s flawed systematic evidence review on ME/CFS treatments. Sign our...

Thread by: Sly Saint, Aug 13, 2021, 30 replies, in forum: Advocacy Action Alerts
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July 2021 edition of Medical Board of California News includes article about ME/CFS and Long COVID by MEAction

The July 2021 edition of Medical Board of California News issue includes a 2-page article called, "Myalgic Encephalomyelitis/Chronic Fatigue...

Thread by: ahimsa, Jul 16, 2021, 5 replies, in forum: General ME/CFS news
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USA: NIH National Institutes of Health news

A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research From an email to the NIH MECFS Information List....

Thread by: Andy, Dec 30, 2020, 109 replies, in forum: News from organisations
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USA: News from #MEAction

This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December...

Thread by: ahimsa, Nov 9, 2017, 42 replies, in forum: News from organisations
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Jen Brea to step down as Executive Director of MEAction to focus on health

https://www.meaction.net/2020/11/12/important-news-from-jennifer-brea/?fbclid=IwAR3_GgqUDp3qe3woHXjeH04-n_sdapO-xKepc1EvJ4Gz0TTvCLXmo12st0U...

Thread by: InitialConditions, Nov 12, 2020, 5 replies, in forum: General ME/CFS news
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#MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf

Thread by: Sly Saint, Oct 28, 2020, 11 replies, in forum: General ME/CFS news
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Stop. Rest. Pace. Campaign

Stop. Rest. Pace. - New global information campaign around Long Covid, ME, and PEM. We knew this was coming. So many people with myalgic...

Thread by: Gecko, Oct 21, 2020, 3 replies, in forum: Advocacy Projects and Campaigns
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#MEAction: Here's what happened at the CDC's sep. 2020 ME/CFS meeting

On Wednesday, September 23 the CDC helt its ME/CFS Stakeholder Engagement and Communication (SEC) conference call ant the #MEAction community...

Thread by: Kalliope, Sep 26, 2020, 4 replies, in forum: General ME/CFS news
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USA: #MEAction ME/CFS clinical seminars

" #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for...

Thread by: Sly Saint, Jul 14, 2020, 2 replies, in forum: General ME/CFS news
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#MillionsMissing 2020 UK

email from #MEAction With support from a professional filmmaker, we are putting together a short film for #MillionsMissing 2020 in the UK. If you...

Thread by: Sly Saint, Apr 20, 2020, 1 replies, in forum: Advocacy Projects and Campaigns
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MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

As part of #MEAction’s continued efforts to deliver medical education tools and events to healthcare professionals, #MEAction UK has organised a...

Thread by: Andy, Mar 4, 2020, 28 replies, in forum: Advocacy Projects and Campaigns
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#MEAction: Meet the scientist: Dr. Lucinda Bateman

#MEAction has posted an interview with Dr. Lucinda Batemen of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia. Dr....

Thread by: ahimsa, Feb 19, 2020, 0 replies, in forum: General ME/CFS news
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ME Action: The EU committee on petition is preparing a resolution on ME

"Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...

Thread by: ME/CFS Skeptic, Feb 9, 2020, 68 replies, in forum: Advocacy Projects and Campaigns

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