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#meaction

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  1. Sly Saint
    Thread

    USA : Ford Foundation Launches First-Ever U.S. Disability Rights Program

    Merged thread (MEAction funding) The Ford Foundation today announced the launch of its first-ever grantmaking program focused on advancing the...
    Thread by: Sly Saint, Oct 15, 2021 at 12:09 PM, 0 replies, in forum: Health News and Research unrelated to ME/CFS
  2. Sly Saint
    Thread

    2021 US ICD-10-CM change proposal: addition of code for ME/CFS

    Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic...
    Thread by: Sly Saint, Aug 24, 2021, 7 replies, in forum: Disease coding
  3. Sly Saint
    Thread

    Sign on to #MEAction’s response to flawed CDC review, deadline 15th Aug 2021

    " MEAction Response to CDC #MEAction has released a draft response to the CDC’s flawed systematic evidence review on ME/CFS treatments. Sign our...
    Thread by: Sly Saint, Aug 13, 2021, 29 replies, in forum: Advocacy Action Alerts
  4. Andy
    Thread

    A letter from the NIH ME/CFS Collaborative Research Center consortium Community Advisory Committee to Francis Collins, Apr 2021

    "Dear Dr. Collins, We are a Community Advisory Committee established with the support of the NIH to advise the ME/CFS Collaborative Research...
    Thread by: Andy, Apr 19, 2021, 2 replies, in forum: Epidemics (including Covid-19)
  5. Sly Saint
    Thread

    #MEAction: press outreach campaign

    from an email " Over the past year, #MEAction has focused on reaching out to the national press to educate journalists and medical professionals...
    Thread by: Sly Saint, Apr 18, 2021, 0 replies, in forum: Advocacy Projects and Campaigns
  6. Trish
    Thread

    USA: News from #MEAction

    From an email: #MEAction to Hold Press Conference on ME & long COVID! #MEAction is thrilled to announce that we are hosting a press conference...
    Thread by: Trish, Mar 18, 2021, 18 replies, in forum: News from Organisations
  7. Sly Saint
    Thread

    #MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

    https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf
    Thread by: Sly Saint, Oct 28, 2020, 11 replies, in forum: General ME/CFS News
  8. Gecko
    Thread

    Stop. Rest. Pace. Campaign

    Stop. Rest. Pace. - New global information campaign around Long Covid, ME, and PEM. We knew this was coming. So many people with myalgic...
    Thread by: Gecko, Oct 21, 2020, 3 replies, in forum: Advocacy Projects and Campaigns
  9. Sly Saint
    Thread

    USA: #MEAction ME/CFS clinical seminars

    " #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for...
    Thread by: Sly Saint, Jul 14, 2020, 2 replies, in forum: General ME/CFS News
  10. Sly Saint
    Thread

    #MillionsMissing 2020 UK

    email from #MEAction With support from a professional filmmaker, we are putting together a short film for #MillionsMissing 2020 in the UK. If you...
    Thread by: Sly Saint, Apr 20, 2020, 1 replies, in forum: Advocacy Projects and Campaigns
  11. Andy
    Thread

    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    As part of #MEAction’s continued efforts to deliver medical education tools and events to healthcare professionals, #MEAction UK has organised a...
    Thread by: Andy, Mar 4, 2020, 28 replies, in forum: Advocacy Projects and Campaigns
  12. Michiel Tack
    Thread

    ME Action: The EU committee on petition is preparing a resolution on ME

    "Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...
    Thread by: Michiel Tack, Feb 9, 2020, 68 replies, in forum: Advocacy Projects and Campaigns
  13. ahimsa
    Thread

    #MEAction UK: "Take ME Seriously" project needs comments & signatures to send to NICE

    #MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They...
    Thread by: ahimsa, Feb 7, 2020, 14 replies, in forum: Advocacy Action Alerts
  14. Trish
    Thread

    Millions Missing events, 9th to 17th May 2020

    From an e-mail from #MEAction: It’s already time to start thinking and planning for #MillionsMissing 2020! This year #MillionsMissing global...
    Thread by: Trish, Feb 7, 2020, 7 replies, in forum: Advocacy Projects and Campaigns
  15. DokaGirl
    Thread

    A Trial of ME - Elizabeth's Story. #MEAction article, November 2019

    I haven't seen this posted. It's a personal account by a UK pwME who participated in a study, pre-PACE, using GET/CBT. Very unfortunately, and...
    Thread by: DokaGirl, Nov 24, 2019, 21 replies, in forum: General ME/CFS News
  16. Andy
    Thread

    MEAction: "DEMYSTIFYING THE DIAGNOSTIC CRITERIA FOR ME AND RELATED DISEASE"

    We know that our community continues to wrestle over the appropriate diagnostic criteria for myalgic encephalomyelitis to the point that it has...
    Thread by: Andy, Nov 14, 2019, 54 replies, in forum: Diagnostic Guidelines
  17. Gecko
    Thread

    Your experience of ME services - #MEAction UK survey report concludes services 'not fit for purpose'

    Your experience of ME services - Survey report by #MEAction UK Article:...
    Thread by: Gecko, Oct 17, 2019, 42 replies, in forum: General ME/CFS News
  18. ahimsa
    Thread

    Postcards to Doctors returns! (project from ME Action)

    After a brief pause the "Postcards to Doctors" project has been relaunched as of Oct. 1. The aim of this project is to have patients (as well as...
    Thread by: ahimsa, Oct 10, 2019, 3 replies, in forum: Advocacy Projects and Campaigns
  19. Michiel Tack
    Thread

    A proposal for ME Action: a commitment to evidence-based medicine

    I would like to send the following proposal to ME Action, as it is currently in the process of specifying its core values and principles. I’m...
    Thread by: Michiel Tack, Oct 2, 2019, 154 replies, in forum: General Advocacy Discussions
  20. Andy
    Thread

    MEAction: Join Our Values and Policy Initiative! September 2019

    From an email newsletter. On behalf of #MEAction International’s board, staff, volunteers and everyone who form a part of our wider community, I...
    Thread by: Andy, Sep 25, 2019, 72 replies, in forum: Advocacy Projects and Campaigns
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