Guest, the 'News in Brief' for the week beginning 28th November 2022 is here.
Dismiss Notice
Welcome! To read the Core Purpose and Values of our forum, click here.
Dismiss Notice

#meaction

Page 1 of 6

Thread
USA: 2022 Sep 19: Long COVID, ME/CFS Patients Protest in Front of White House

Threads about different articles have been merged Article about today's protest at the White House from MedPage Today: "Long COVID, ME/CFS...

Thread by: ahimsa, Sep 20, 2022, 18 replies, in forum: General ME/CFS news
Thread
USA: Why I'm Getting Arrested on Monday at the White House, and How You Can Help (Millions Missing protest in Washington, DC)

Why I'm Getting Arrested on Monday at the White House, and How You Can Help...

Thread by: ahimsa, Sep 15, 2022, 3 replies, in forum: General Advocacy Discussions
Thread
Journalist Primer: How to Report on ME/CFS (from MEAction)

I'm not sure how exactly our forum members might use this type of guideline, but I came across this recently and found it interesting. Link to...

Thread by: ahimsa, Aug 20, 2022, 3 replies, in forum: Resources
Thread
Pacing and Management Guide for Pediatric ME/CFS and Long Covid: #MEAction, Aug 2022

https://www.meaction.net/wp-content/uploads/2022/08/Pediatric-Guide-to-Pacing-2.pdf

Thread by: Sly Saint, Aug 20, 2022, 3 replies, in forum: Resources
Thread
USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited recommendations for...

Thread by: Sly Saint, May 28, 2022, 0 replies, in forum: Advocacy Projects and Campaigns
Thread
International Business Times: What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID

What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID...

Thread by: ahimsa, Feb 26, 2022, 1 replies, in forum: General ME/CFS news
Thread
United Kingdom: News from #MEAction Network UK

News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK

Thread by: MSEsperanza, Nov 22, 2021, 12 replies, in forum: News from organisations
Thread
#MEAction: Tell your Doctor that GET is gone

"The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and...

Thread by: Sly Saint, Nov 10, 2021, 7 replies, in forum: Advocacy Projects and Campaigns
Thread
#MEAction: strategic planning survey 2021

from email We're excited to share that #MEAction is engaged in a strategic planning process facilitated by the Center for Nonprofit Management...

Thread by: Sly Saint, Nov 3, 2021, 9 replies, in forum: General ME/CFS news
Thread
Walktober for ME Action: A Day To Walk For You (October 30)

https://www.mightycause.com/story/Walktober A nonprofit fundraiser supporting Myalgic Encephalomyelitis Action Network Inc Welcome to Greg...

Thread by: ahimsa, Oct 30, 2021, 2 replies, in forum: Fundraising
Thread
2021 US ICD-10-CM change proposal: addition of code for ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic...

Thread by: Sly Saint, Aug 24, 2021, 9 replies, in forum: Disease coding
Thread
Sign on to #MEAction’s response to flawed CDC review, deadline 15th Aug 2021

" MEAction Response to CDC #MEAction has released a draft response to the CDC’s flawed systematic evidence review on ME/CFS treatments. Sign our...

Thread by: Sly Saint, Aug 13, 2021, 30 replies, in forum: Advocacy Action Alerts
Thread
July 2021 edition of Medical Board of California News includes article about ME/CFS and Long COVID by MEAction

The July 2021 edition of Medical Board of California News issue includes a 2-page article called, "Myalgic Encephalomyelitis/Chronic Fatigue...

Thread by: ahimsa, Jul 16, 2021, 5 replies, in forum: General ME/CFS news
Thread
USA: NIH National Institutes of Health news

A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research From an email to the NIH MECFS Information List....

Thread by: Andy, Dec 30, 2020, 137 replies, in forum: News from organisations
Thread
USA: News from #MEAction

This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December...

Thread by: ahimsa, Nov 9, 2017, 54 replies, in forum: News from organisations
Thread
Jen Brea to step down as Executive Director of MEAction to focus on health

https://www.meaction.net/2020/11/12/important-news-from-jennifer-brea/?fbclid=IwAR3_GgqUDp3qe3woHXjeH04-n_sdapO-xKepc1EvJ4Gz0TTvCLXmo12st0U...

Thread by: InitialConditions, Nov 12, 2020, 5 replies, in forum: General ME/CFS news
Thread
#MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf

Thread by: Sly Saint, Oct 28, 2020, 11 replies, in forum: General ME/CFS news
Thread
Stop. Rest. Pace. Campaign

Stop. Rest. Pace. - New global information campaign around Long Covid, ME, and PEM. We knew this was coming. So many people with myalgic...

Thread by: Gecko, Oct 21, 2020, 3 replies, in forum: Advocacy Projects and Campaigns
Thread
#MEAction: Here's what happened at the CDC's sep. 2020 ME/CFS meeting

On Wednesday, September 23 the CDC helt its ME/CFS Stakeholder Engagement and Communication (SEC) conference call ant the #MEAction community...

Thread by: Kalliope, Sep 26, 2020, 4 replies, in forum: General ME/CFS news
Thread
USA: #MEAction ME/CFS clinical seminars

" #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for...

Thread by: Sly Saint, Jul 14, 2020, 2 replies, in forum: General ME/CFS news

Showing results 1 to 20 of 101

Page 1 of 6

#meaction

Useful Searches