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#meaction

  1. Sly Saint
    Thread

    USA: #MEAction ME/CFS clinical seminars

    " #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for...
    Thread by: Sly Saint, Jul 14, 2020, 2 replies, in forum: General ME/CFS News
  2. Sly Saint
    Thread

    #MillionsMissing 2020 UK

    email from #MEAction With support from a professional filmmaker, we are putting together a short film for #MillionsMissing 2020 in the UK. If you...
    Thread by: Sly Saint, Apr 20, 2020, 1 replies, in forum: Advocacy Projects and Campaigns
  3. Trish
    Thread

    Millions Missing events, 9th to 17th May 2020

    From an e-mail from #MEAction: It’s already time to start thinking and planning for #MillionsMissing 2020! This year #MillionsMissing global...
    Thread by: Trish, Feb 7, 2020, 7 replies, in forum: Advocacy Projects and Campaigns
  4. Gecko
    Thread

    Your experience of ME services - #MEAction UK survey report concludes services 'not fit for purpose'

    Your experience of ME services - Survey report by #MEAction UK Article:...
    Thread by: Gecko, Oct 17, 2019, 42 replies, in forum: General ME/CFS News
  5. Michiel Tack
    Thread

    A proposal for ME Action: a commitment to evidence-based medicine

    I would like to send the following proposal to ME Action, as it is currently in the process of specifying its core values and principles. I’m...
    Thread by: Michiel Tack, Oct 2, 2019, 154 replies, in forum: General Advocacy Discussions
  6. Sly Saint
    Thread

    #MEAction Advocates will Speak at Stanford MEDx Conference this Weekend (Sun 22 Sep 2019)

    #MEAction advocate, Terri Wilder, and #MEAction board member, Ryan Prior, are co-presenting at the Stanford MEDx conference this weekend about how...
    Thread by: Sly Saint, Sep 21, 2019, 3 replies, in forum: Advocacy Action Alerts
  7. ahimsa
    Thread

    Postcards to Doctors - new project from ME Action

    A new project from ME Action: #MEAction is excited to announce the launch of our Postcards to Doctors medical education campaign. Send...
    Thread by: ahimsa, Aug 1, 2019, 15 replies, in forum: Advocacy Projects and Campaigns
  8. Sly Saint
    Thread

    Scottish Parliament hearings and report on #MEAction Scotland petition - 2019/20

    Scottish Petitions Committee discussion on M.E./CFS [MEDIA]
    Thread by: Sly Saint, May 31, 2019, 23 replies, in forum: Advocacy Projects and Campaigns
  9. Sly Saint
    Thread

    Article in 'Philly voice' - This 'invisible illness' doesn't have a known cause or effective treatment

    Not a particularly bad article that quotes #MEAction a lot (The Myalgic Encephalomyelitis Action Network). However, I question the bit at the end...
    Thread by: Sly Saint, Apr 12, 2019, 0 replies, in forum: General ME/CFS News
  10. Andy
    Thread

    #MEAction: Next steps: a letter to our community [from Jen Brea]

    Hi everyone, I just wanted to take a moment to comment on some of the confusion and concern of these last few weeks and offer some steps forward...
    Thread by: Andy, Jun 28, 2018, 3 replies, in forum: General ME/CFS News
  11. Joh
    Thread

    #MEAction - new website design

    A new website design is up at https://www.meaction.net. I read that "it's designed to be a more accessible introduction to #MEAction for newcomers...
    Thread by: Joh, Jan 10, 2018, 3 replies, in forum: Advocacy Projects and Campaigns
  12. Andy
    Thread

    #MEAction 2017 annual report now available

    From #MEAction's mailshot It's been an incredible year and a remarkable journey since the launch of #MEAction on May 12, 2015. In just a few...
    Thread by: Andy, Dec 19, 2017, 1 replies, in forum: Advocacy Projects and Campaigns
  13. Andy
    Thread

    Ecard: Thank Massachusetts Congressional Delegation for their statement of support for people with ME/CFS [#MEAction]

    From a #MEAction email Recently we witnessed something groundbreaking. The entire Massachusetts Congressional Delegation signed on to a joint...
    Thread by: Andy, Nov 30, 2017, 0 replies, in forum: Advocacy Action Alerts
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