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#meaction

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  1. Andy
    Thread

    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    As part of #MEAction’s continued efforts to deliver medical education tools and events to healthcare professionals, #MEAction UK has organised a...
    Thread by: Andy, Mar 4, 2020, 28 replies, in forum: Advocacy Projects and Campaigns
  2. ahimsa
    Thread

    #MEAction: Meet the scientist: Dr. Lucinda Bateman

    #MEAction has posted an interview with Dr. Lucinda Batemen of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia. Dr....
    Thread by: ahimsa, Feb 19, 2020, 0 replies, in forum: General ME/CFS news
  3. ME/CFS Skeptic
    Thread

    ME Action: The EU committee on petition is preparing a resolution on ME

    "Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...
    Thread by: ME/CFS Skeptic, Feb 9, 2020, 68 replies, in forum: Advocacy Projects and Campaigns
  4. ahimsa
    Thread

    #MEAction UK: "Take ME Seriously" project needs comments & signatures to send to NICE

    #MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They...
    Thread by: ahimsa, Feb 7, 2020, 14 replies, in forum: Advocacy Action Alerts
  5. Trish
    Thread

    Millions Missing events, 9th to 17th May 2020

    From an e-mail from #MEAction: It’s already time to start thinking and planning for #MillionsMissing 2020! This year #MillionsMissing global...
    Thread by: Trish, Feb 7, 2020, 7 replies, in forum: Advocacy Projects and Campaigns
  6. ahimsa
    Thread

    MEAction: NIH Receives Surprise Holiday Gift from ME Community

    MEAction has an article reporting on their "Cards to Koroshetz" campaign. They asked folks to send holiday cards to Dr. Koroshetz, Director of...
    Thread by: ahimsa, Jan 11, 2020, 0 replies, in forum: Advocacy Projects and Campaigns
  7. ringding
    Thread

    MEAction: How did your local service perform?

    MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a...
    Thread by: ringding, Dec 5, 2019, 17 replies, in forum: General ME/CFS news
  8. DokaGirl
    Thread

    A Trial of ME - Elizabeth's Story. #MEAction article, November 2019

    I haven't seen this posted. It's a personal account by a UK pwME who participated in a study, pre-PACE, using GET/CBT. Very unfortunately, and...
    Thread by: DokaGirl, Nov 24, 2019, 21 replies, in forum: Psychosomatic theories and treatments discussions
  9. ahimsa
    Thread

    #MEAction: Dr. Koroshetz Declines to Take Urgent Action for ME. Read His Response and Take Action!

    An excerpt from today's ME Action email about the #NotEnough4ME campaign: On Nov. 4th, NINDS Institute director, Dr. Walter Koroshetz, responded...
    Thread by: ahimsa, Nov 18, 2019, 28 replies, in forum: Advocacy Action Alerts
  10. Andy
    Thread

    MEAction: "DEMYSTIFYING THE DIAGNOSTIC CRITERIA FOR ME AND RELATED DISEASE"

    We know that our community continues to wrestle over the appropriate diagnostic criteria for myalgic encephalomyelitis to the point that it has...
    Thread by: Andy, Nov 14, 2019, 54 replies, in forum: Diagnostic Criteria and Naming Discussions
  11. Gecko
    Thread

    Your experience of ME services - #MEAction UK survey report concludes services 'not fit for purpose'

    Your experience of ME services - Survey report by #MEAction UK Article:...
    Thread by: Gecko, Oct 17, 2019, 41 replies, in forum: General ME/CFS news
  12. ahimsa
    Thread

    Postcards to Doctors returns! (project from ME Action)

    After a brief pause the "Postcards to Doctors" project has been relaunched as of Oct. 1. The aim of this project is to have patients (as well as...
    Thread by: ahimsa, Oct 10, 2019, 3 replies, in forum: Advocacy Projects and Campaigns
  13. NelliePledge
    Thread

    MEAction looking for Board Members, October 2019

    https://www.meaction.net/board-of-directors/ I don’t think this has been posted. The meetings are by video conference you don’t need to be US based.
    Thread by: NelliePledge, Oct 9, 2019, 0 replies, in forum: General Advocacy Discussions
  14. ahimsa
    Thread

    ME Activist Evelien Van Den Brink Testifies before EU Parliament

    News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
    Thread by: ahimsa, Oct 5, 2019, 1 replies, in forum: General Advocacy Discussions
  15. Andy
    Thread

    MEAction editorial: "Inside/outside activism: Why we must shout in the streets and sit at the table."

    ..almost as soon as ACT UP formed, a group within ACT UP realized: it would not be enough to inform the world of our plight and put the people in...
    Thread by: Andy, Oct 5, 2019, 1 replies, in forum: General Advocacy Discussions
  16. ME/CFS Skeptic
    Thread

    A proposal for ME Action: a commitment to evidence-based medicine

    I would like to send the following proposal to ME Action, as it is currently in the process of specifying its core values and principles. I’m...
    Thread by: ME/CFS Skeptic, Oct 2, 2019, 154 replies, in forum: General Advocacy Discussions
  17. Andy
    Thread

    MEAction: Join Our Values and Policy Initiative! September 2019

    From an email newsletter. On behalf of #MEAction International’s board, staff, volunteers and everyone who form a part of our wider community, I...
    Thread by: Andy, Sep 25, 2019, 72 replies, in forum: Advocacy Projects and Campaigns
  18. Sly Saint
    Thread

    #MEAction Advocates will Speak at Stanford MEDx Conference this Weekend (Sun 22 Sep 2019)

    #MEAction advocate, Terri Wilder, and #MEAction board member, Ryan Prior, are co-presenting at the Stanford MEDx conference this weekend about how...
    Thread by: Sly Saint, Sep 21, 2019, 3 replies, in forum: Advocacy Action Alerts
  19. DokaGirl
    Thread

    MEAction Responds to Attacks on ME Community in the Guardian and Psychology Today

    https://www.meaction.net/2019/08/01/meaction-responds-to-attacks-on-me-community-in-the-guardian-and-psychology-today/?mc_cid=0039916b6f&mc_eid=ee6...
    Thread by: DokaGirl, Aug 2, 2019, 6 replies, in forum: General Advocacy Discussions
  20. ahimsa
    Thread

    Postcards to Doctors - new project from ME Action

    A new project from ME Action: #MEAction is excited to announce the launch of our Postcards to Doctors medical education campaign. Send...
    Thread by: ahimsa, Aug 1, 2019, 15 replies, in forum: Advocacy Projects and Campaigns
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