#meaction

Two important actions in the #MEAction report on yesterday's Westminster debate: Thank the MPs who attended We need your help to keep the momentum going. Now more than ever, it’s crucial we have the capacity to sustain and grow the impact of this work. Donate today to our crowdfunding...

New(ish) caregivers' guide by #MEAction Caregivers' guide: Brochure: http://www.meaction.net/wp-content/uploads/2018/05/MEAction-Caregivers-Brochure.pdf

Just got this email: " Thanks to your generous support of our Indiegogo campaign, #MEAction is adding a new team member! We’re thrilled to welcome Jaime Seltzer as our Director of Scientific and Medical Outreach. She will work with ME clinicians and researchers in order to facilitate engagement...

#ME Action Network have just announced a fundraiser for a U.K. organiser. “to support another year of mass awareness, medical and scientific outreach, advocacy, and community for impact like #MillionsMissing and our parliamentary actions” Edit: Link will be added when can work out how to do...

https://www.meaction.net/take-action/

https://www.meaction.net/2018/05/11/letter-to-francis-collins/

Australians with ME/CFS continue to be harmed by GET. If you’ve been harmed by GET, write a letter to one of our campaign targets (RACGP President, Dr Bastian Seidel, or Chief Medical Officer, Dr Brendan Murphy) or your local MP, to explain the impact of this treatment on you, and ask for...

The new #MillionsMissing campaign video 2018 was published today.

https://themighty.com/2018/05/millions-missing-chronic-fatigue-syndrome-myalgic-encephalomyelitis-events/

You'll need to unmute the audio: Donation page here: Please retweet: And share on FB - except I can't seem to provide a link without just inserting the video here. :(

Hi folks, I just got off a planning call with ME Action volunteers about how to coordinate #MillionsMissing events planned for May 12th. I was encouraged to register an event with ME Action. I learned that even though all I am going to do for May 12th this year is take some photos and share...

The MEAction website has info on how to set up or participate in #MillionsMissing protests on May 12, 2018. https://millionsmissing.meaction.net/get-started/

This CNN article profiles several people who were unable to march (for many different reasons) in Saturday's "March for Our Lives" protest but who supported the movement in other ways. The second profile in the article is about someone with ME/CFS. I'm thrilled that this CNN article...

See the bottom of the page. https://pineapplefund.org/ We have been seriously fortunate :)

http://thirdforcenews.org.uk/tfn-news/campaigners-call-for-more-me-funding Campaigners are calling on the Scottish Government to provide specialist care and funding for research into ME. Jennifer Brea, director of the Oscar-nominated documentary Unrest, is backing the call and will join...

A new website design is up at https://www.meaction.net. I read that "it's designed to be a more accessible introduction to #MEAction for newcomers to the disease and/or ME activism".

From #MEAction's mailshot PDF report, 32 pages, http://www.meaction.net/wp-content/uploads/2015/05/MEAction_2017_Annual_Report.pdf

From a #MEAction email Sign at https://www.kudoboard.com/boards/HVS8LIQQ - To add your comment to the card, click on the button “ADD KUDO/IMAGE/VIDEO.

On Sunday, November 5th (11 am Los Angeles, 2 pm New York, 7 pm London) there will be an overview of volunteering with #MEAction. Community organizer Ben HsuBorger will talk about previous accomplishments and upcoming opportunities to get involved. The majority of the time will be left for Q&A...