#meaction

#MEAction: Fall advocacy round-up - a season of protest and petition An extensive summary of this autumn's advocacy work around the world. Quite impressive list! :) Includes petitions, introduction of new staff members, news from different parts of the world, protests, and updates on among...

Forum member @JaimeS and her assistant Julia has written an extensive news roundup for September and October. It contains among other news from research, conferences and talks, medical news, science advocacy news, books & media and even Science4ME's 1. anniversary. Well done! #MEAction: Sept...

Ten organisations ask congress to create legislation for ME/CFS On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives – Representatives Eshoo (CA18), Lofgren (CA19), McGovern (MA02)...

Here's a relatively easy advocacy action for patients in the USA: Ask your health care professional to watch Unrest online and get continuing education credit. What I did was print out some flyers (found here https://www.meaction.net/wp-content/uploads/2018/10/Doctor-flyer.pdf ) and then gave...

https://www.meaction.net/2018/10/18/cdc-contract-update-nys-depart-of-health-and-meaction-bid-for-contract/

https://www.meaction.net/2018/10/11/meaction-sends-recommendations-to-cdc-for-me-website/ Direct link to PDF with recommendations - http://www.meaction.net/wp-content/uploads/2018/10/Recommended-Changes-to-the-CDC-Webpages-on-ME-2.pdf

https://www.meaction.net/2018/10/11/meet-with-your-mp-about-me-toolkit/

From the Unrest website: Watch Unrest and receive CME credit US healthcare providers can now watch Unrest and receive continuing education credits through the American Medical Women’s Association and Indiana University School of Medicine. THE FOLLOWING STEPS WILL TAKE APPROXIMATELY TWO...

I would be very grateful for suggestions for the most useful articles from big international newspapers (or similar sources) in giving background info on Unrest, Brea and the expanding global MillionsMissing events May 12th. Any you would recommend? I really like this article from The...

#MEAction: NIH Update: Collins Will Meet With #MEAction Representatives! The persistent dedication of our community to fight for our lives continues to yield results. We are pleased to announce #MEAction has secured a meeting with Dr. Francis Collins, Director of the National Institutes of...

#MEAction: Full text: https://www.meaction.net/2018/08/26/stop-cdc-from-hiring-shoddy-contractor-for-me-treatment-guidelines/?mc_cid=20165100b3&mc_eid=926b73a95d Link to petition: https://my.meaction.net/petitions/demand-expert-input-community-consultation-on-new-me-guidelines-from-cdc

https://www.meaction.net/2018/08/08/july-2018-scientific-studies/

From #MEAction today: ''Amplifying the voices of seniors with ME - join the group.'' A Facebook group for pwME aged over 55 years called MESeniors Connect has been set up and already has over 500 global members.

Don't think this has been posted yet? https://www.meaction.net/2018/08/02/meaction-uk-activist-speaks-at-the-international-deaf-disabled-peoples-solidarity-summit/

https://www.meaction.net/2018/07/29/cdc-revises-its-information-on-me/?mc_cid=435242023b&mc_eid=83ddbd3a71 Detailed analysis of the CDC content on ME, not just the recent update, by @JaimeS

https://twitter.com/jenbrea/status/1020024278270406656

The NIH responds to #MEAction, nexts steps Following the global day of action on May 12, 2018, #MEAction gathered photos and petition signatures from people all over the world and mailed it to Director of the NIH, Francis Collins. Along with your beautiful photos and anecdotes, we delivered a...

just received this email We have some exciting news to share. Thanks to everyone’s hard work and efforts, we are able to expand our team! We haven’t fully funded the UK position (if you want to help us get to our goal, go here), but there is too much happening to wait! We will be hiring a UK...

https://www.meaction.net/2018/06/29/volunteer-of-the-month-scottish-trio/ Congrats @Emsho :)

https://www.meaction.net/2018/06/28/next-steps-a-letter-to-our-community/