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#MEAction Sends Recommendations to CDC to Update its ME Website

Discussion in 'Advocacy Projects and Campaigns' started by Andy, Oct 12, 2018.

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  1. Andy

    Andy Committee Member

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    17,519
    Location:
    Hampshire, UK
    https://www.meaction.net/2018/10/11/meaction-sends-recommendations-to-cdc-for-me-website/

    Direct link to PDF with recommendations - http://www.meaction.net/wp-content/...ended-Changes-to-the-CDC-Webpages-on-ME-2.pdf
     
    Andy, Oct 12, 2018
    #1
    ahimsa, Sly Saint, Webdog and 1 other person like this.
  2. Milo

    Milo Senior Member (Voting Rights)

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    At page 3 of the recommendations, it reads that BP should be taken at 10 minutes intervals, during a poor man tilt table test, was it a typo? Should it read 1 minute interval instead?
     
    Milo, Oct 12, 2018
    #2
  3. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,254
    Very good. Just one little observation.

    It can also lead to patients' families misunderstanding why their relative is not recovering, and potentially laying the blame at their door for not doing so. I suppose this is loosely embraced within 'social support'. Probably outside the scope of this though.
     
    Barry, Oct 12, 2018
    #3
    obeat, MeSci, NelliePledge and 1 other person like this.

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