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Guidelines website aimed at healthcare professionals - summarises new NICE ME/CFS guideline

This might be a good link to share, as it has an accurate summary of the new NICE guidelines, and is listed under Neurology. Apparently for use by...

Thread by: Sly Saint, Jan 10, 2022, 0 replies, in forum: Resources for Health Professionals
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Encyclopedia Britannica website: entry on CFS

in dire need of updating. Judging by the editing history, a lot of the misinfo comes from the Mayo clinic. most recently updated in Aug 19, 2021...

Thread by: Sly Saint, Jan 10, 2022, 0 replies, in forum: General Advocacy Discussions
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The Chrysalis Effect

see https://www.s4me.info/threads/problematic-training-courses-please-add.1796/ the research series based on the PACE trial has been removed....

Thread by: Sly Saint, Dec 17, 2021, 22 replies, in forum: Alternative Therapies
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physio.co.uk website Chronic fatigue syndrome/ME

Aggravating factors of chronic fatigue syndrome include: Stress Poor diet Recurring infections Too little exercise Too much exercise no...

Thread by: Sly Saint, Dec 15, 2021, 4 replies, in forum: General ME/CFS News
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Physio-pedia

physio-pedia pretty awful entry under chronic fatigue syndrome. the good news is it says that it is currently under review....

Thread by: Sly Saint, May 2, 2019, 4 replies, in forum: Resources for Health Professionals
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NHS England MUS page updated June 2021

Possible causes of medically unexplained symptoms Many people with medically unexplained symptoms, such as tiredness, pain and heart...

Thread by: Sly Saint, Nov 5, 2021, 12 replies, in forum: General ME/CFS News
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NHS Scotland website not yet updated Nov 2021

This website is in need of updating. The first page isn't too bad but...... Chronic fatigue syndrome (CFS) GET and CBT stuff is still there and...

Thread by: Sly Saint, Nov 1, 2021, 3 replies, in forum: 2020 UK NICE ME/CFS Guideline
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New US ME/CFS Clinician Coalition website

The US ME/CFS Clinician Coalition has released a website for medical providers with information to help them deliver better care for people with...

Thread by: Medfeb, Sep 16, 2020, 20 replies, in forum: General ME/CFS News
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Harvard Health CFS website content

https://www.health.harvard.edu/a_to_z/chronic-fatigue-syndrome-a-to-z There is no proven treatment for chronic fatigue syndrome. Both gradual...

Thread by: InitialConditions, Jul 5, 2020, 17 replies, in forum: General Advocacy Discussions
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Website Tool : "Connected Papers" - Explore connected papers in a visual graph

I thought this website tool might be useful for those folks wanting to see how papers are connected. There have been a few threads lately trying...

Thread by: wigglethemouse, Jul 4, 2020, 2 replies, in forum: Other Health News and Research
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NHS website: MS vs CFS/ME

I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the...

Thread by: ProudActivist, Feb 29, 2020, 12 replies, in forum: General disability topics and advocacy
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David Tuller - Trial By Error: Mayo Clinic's Crappy Website

Mayo Clinic's Crappy Website What’s going on at the Mayo Clinic? It has been more than two years since the US Centers for Disease Control and...

Thread by: Kalliope, Dec 10, 2019, 31 replies, in forum: General ME/CFS News
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Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

Following discussion on this thread I have now sent the following personal letter to Sonya Chowdhury, Chief Executive of the UK charity Action for...

Thread by: Trish, Oct 20, 2019, 24 replies, in forum: Open Letters and Replies
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M.E. Awareness NZ launches website

Our social media post... :) We are excited to announce the launch of our new www.m.e.awareness.nz website. ____________________________ We have...

Thread by: RoseE, Aug 15, 2019, 5 replies, in forum: Advocacy Projects and Campaigns
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Chronic fatigue tests being sold online

This company appears to be selling a test which it describes as TATT or 'tired all the time' is one of the most common complaints that female...

Thread by: Sly Saint, May 20, 2019, 16 replies, in forum: General Advocacy Discussions
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New Website on Severe ME

I have created a website on severe ME: “A Life Hidden is dedicated to those shut away from the world because of the intense suffering of ME...

Thread by: Naomi10, Nov 29, 2018, 9 replies, in forum: Advocacy Projects and Campaigns
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Healthy Women article - How to Tell if You Have Chronic Fatigue Syndrome

This wasn't too bad until they started trying to explain the symptoms: " If you have CFS, you may have: Sore throat Fatigue Memory or...

Thread by: Sly Saint, Nov 1, 2018, 7 replies, in forum: General ME/CFS News
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#MEAction Sends Recommendations to CDC to Update its ME Website

This past July, 2018, the U.S. Center for Disease Control and Prevention (CDC) launched new webpages about myalgic encephalomyelitis / chronic...

Thread by: Andy, Oct 12, 2018, 2 replies, in forum: Advocacy Projects and Campaigns
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ME/CFS sites promoting the Lightning Process

Thought it might be useful to have a thread on this for reference. I found this site which sells disability aids. It has a large section on CFS...

Thread by: Sly Saint, Jul 25, 2018, 2 replies, in forum: Advocacy Projects and Campaigns
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Action for ME have "reworked our treatment and symptom management page" and "updated our pages on GET and CBT"

Text from their Facebook post While there might not be a proven pharmaceutical cure for M.E. yet, there are a number of treatment approaches that...

Thread by: Andy, Jun 18, 2018, 46 replies, in forum: General ME/CFS News

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