NHS Scotland website not yet updated Nov 2021

Discussion in 'UK clinics and doctors' started by Sly Saint, Nov 1, 2021.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  2. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    Scotland has it's own version of NICE (SIGN), so I don't think we should automatically expect this website to change due to the new guideline.
     
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  3. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    This case aside, it does bring up the question of what are the plans for disseminating the new guidelines?

    It seems there are often gaps in communicating updates. At any rate, patient advocates may be busy. I know it's an ongoing task in Canada.

    I hope the policies and guidelines for Scotland change soon!
     
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "ME - CFS Chronic Fatigue Syndrome

    Background

    NICE guidance was last published in 2010 and is due to be updated in 2021. The Scottish Good Practice Reference Guide gives useful background information, but some of its guidance is now outdated.

    Please also see the 2021 Scottish update on Graded Exercise Therapy (GET) "

    https://apps.nhslothian.scot/refhelp/InfectiousDiseases/ME-CFS

    https://www.scot.nhs.uk/scottish-good-practice-statement-on-me-cfs/
     
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    The website has now been updated and reflects the new NICE guidelines:

    https://www.nhsinform.scot/illnesse...myelitis-me-and-chronic-fatigue-syndrome-cfs/
     
    Last edited: Apr 9, 2022
  6. Hutan

    Hutan Moderator Staff Member

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    Good to see the update, it's pretty good. It says the information is sourced from AfME.

    I'm not sure that there is any credible evidence to support those statements. I think there might be a link between the menstrual cycle and migraines, but is there any evidence that PEM is more likely at a particular time during the menstrual cycle? If there was, that might be a clue as to what is going on.
     
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  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I think that statement is back to front ie should be 'Some pwME improve over time, although most dont make a full recovery'
     
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  8. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

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